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ALICIA'S JOURNEY WITH FA

Welcome to our blog where we try to keep family & friends updated on our daughter/granddaughter, Alicia, who is one of the most adorable five year olds ever! She was born with a very rare & aggressive disease, called Fanconi anemia, which causes bone marrow failure, as well as different cancers . She is currently undergoing a bone marrow transplant to try to cure her bone marrow issues. If you'd like to gain a little more background, please visit our first entry HERE.



Monday, October 31, 2005

October 2005 Guestbook Entires


Image hosted by Photobucket.comThe Prayer Bearshave a safe and happy halloween
hailee
you are such a little cutie.. thanks for visiting hailee, we love making new friends..

melissa
cavecreek, az usa - Monday, October 31, 2005 4:47 PM CST

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Michelle and Alicia,
Praying and hoping that yaw'll have been able
to move and found a place. Keeping all in prayers
and thoughts. God Bless..
Prayers and Hugs,
LeAnn
ga/annettelee

LeAnn Mooneyham/Angel_Wings/www.caringbridge.org/ga/jcthetractorboy
Baxley, GA United States - Wednesday, October 26, 2005 9:20 AM CDT

Hi Michelle and Alicia....Johanna had her BMT in Cincinnati and just yesterday, at her doctor's appointment here in Fl, she said she missed Cincinnati. The nurses and doctors were very supportive and always indulging her. We were very pleased. I spent 3-1/2 months there and might have some insight into the area...if you need it.
Caringbridge.org/fl/joanbender

Bless you, Joan and Johanna
kissimmee, fl USA - Friday, October 14, 2005 9:38 PM CDT

Checking in on you-
Just wanted you to know that you are in our thougths and prayers.
Bret & Nanette Foster and Family
(Ryan, Nicolaus, Courtney, Kaelynn and Dianna)
www.caringbridge.org/tx/dianna

Nanette Foster
Lewisville, TX USA - Tuesday, October 11, 2005 10:51 AM CDT

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The Prayer Bears
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Donna Boggs, Papa Bear’s Site
Coeburn, Va - Thursday, October 6, 2005 2:05 PM CDT

Hi Michelle and Alicia and Erika,
Glad to hear from you. I hope you
do get moved sounds like it would be
a good thing to do. You are all
in my prayers. Love, Rose

Rose
SC - Wednesday, October 5, 2005 6:24 PM CDT

I just wanted to post a note to your website. My daughter, Erin, is an FA patient that is recovering from a bone marrow transplant she had this past May in Minneapolis, MN. She is 8 years old, and was diagnosed with Fanconi Anemia in September of 2003. We live in the Greater Cincinnati area, and if we can help your family as you navigate the BMT "waters" here -- we would be happy to do so (oh/erinmckee). Best of luck to you, and we will be praying for your family, and your upcoming move to Cincinnati.

-the McKee family

Barbara McKee
Bethel, OH USA` - Monday, October 3, 2005 1:44 PM CDT

Sunday, October 2, 2005

October 2, 2005

Hello to everyone,


Sorry its been so long since I updated everyone on Alicia. Everything is going well with us. Alicia counts are staying the same, we got her CBC counts back last week, her platelets are at 71,000. She's just getting over a cold but besides that she's doing really well.

We are trying to make arrangements to move to Cinncinnatti, Ohio. I want her to be able to get the best medical treatment possible. The Doctors here are wonderful, Dr Reddy, her Pediatrician is a Awesome Doctor, but The team of specialist in Cinncinnatti know so much more about FA. So right now I am trying to figure out a way to afford to make such a big move, I'm a single mother like my daughter Erika and our finances are kinda tight, but my goal right now is to have Alicia close to the Doctors in Cinncinnatti. I know the lord is on our side and everything will work out.

I am sorry again for such the long period between updates, and I will try harder to make them more frequent.

Your friend
Michelle

Friday, September 30, 2005

September 2005 Guestbook Entries

Image hosted by Photobucket.com
Thinking of you all and sending big hugs.
Love, Rose

Rose
sc - Friday, September 30, 2005 2:58 PM CDT


Image hosted by Photobucket.comFlying by to let you know you are in our prayers!
The Prayer Bears

Checking in to see how you are doing, Ms Cutie Pie! I can still feel those warm hugs and little kisses!
Blessings and Bear Hugs

Donna Boggs, Papa Bear’s Site
Coeburn, Va - Friday, September 30, 2005 12:31 AM CDT

I love you! You are all in my thoughts and
always in my prayers.
Hugs, Rose

Rose
sc - Saturday, September 24, 2005 11:10 AM CDT

Glad you enjoyed camp so much. Take care.
Candice Behm
Portland, OR USA - Friday, September 23, 2005 0:48 AM CDT

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Hi Alicia and Michelle,
I hope you are all doing fine. Just want to
let you know you are in my prayers.
Love, Rose

Rose
SC - Wednesday, September 21, 2005 7:29 PM CDT

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Sorry I haven't been by lately. Nanny was
in the hospital last week and she came home
yesterday. You are all in my thoughts
and my prayers.
Love, Rose

Rose
SC - Tuesday, September 20, 2005 7:43 PM CDT

The Prayer Bears

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praying for good news with counts..

melissa
cavecreek, az usa - Tuesday, September 20, 2005 5:43 PM CDT

Alice: Image hosted by TinyPic.com
Thinking of & praying for you today & always
Charlene Mom to BECKY
One Who Cares @ Angel_Wings
Dabbles & Doodles & other groups

..
- Tuesday, September 20, 2005 11:31 AM CDT

Hello Alicia
I will keep you in my prayers, hope all goes well. I know you have never meet me before I am new to this site. I just found out about a month ago on August22,2005 that my son sean has Fanconi Anemia also. Sean is only 4 yrs old
maybe you will get to meet him soon. he hasn't went through a bonemarrow transplant yet either. I have a web site for him. If you would like to visit it. its through caringbridge

Dorothea Sands
San Marcos , Calif 92078 - Tuesday, September 20, 2005 0:54 AM CDT

Thank you for the kind words Michelle. Hope Alicia is doing well. Our prayers are with you.
Joan Bender
kissimmee, fl usa - Monday, September 19, 2005 2:44 PM CDT

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Sending you lots of love and hugs today.You are in my thoughts and prayers.
Love & Hugs,
Jessica from We Care 4 Kids & Angel Wings
We Care 4 Kids

Jessica
- Monday, September 19, 2005 1:05 AM CDT

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Hi Alicia,
I'm thinking of you and hope you are having
some fun. I love you. Love, Rose
prayer_angels

Rose
SC - Tuesday, September 13, 2005 5:02 PM CDT

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Hi Alicia,
We are praying and thinking of you..
God Bless!!!
Prayers and Hugs,
LeAnn
www.caringbridge.org/ga/annettelee

LeAnn Mooneyham/Angel_Wings/www.caringbridge.org/ga/jcthetractorboy
Baxley, GA United States - Sunday, September 11, 2005 11:13 AM CDT

hi alicia,

aunt denise and uncle mike love you

aunt denise and uncle mike
Wichita, ks usa - Saturday, September 10, 2005 2:10 AM CDT

Image hosted by Photobucket.comWe’re praying for you little Miss Fireball! I can still feel them little kisses!
The Prayer Bears
Blessings and BearImage hosted by Photobucket.com

Donna Boggs, Papa Bear’s Site
Coeburn, Va - Tuesday, September 6, 2005 11:34 AM CDT

Hi Alicia,
You are a little doll. I heard that you can
sign your name. I'm so proud of you. I hope
you have a nice and fun week. Hugs, Rose

Rose
SC - Monday, September 5, 2005 8:13 PM CDT

Image hosted by Photobucket.com My first visit but I'll be back often. Sending you a note to say you are in my thoughts & prayers.
Charlene
One Who Cares, Dabbles & Doodles & Angel_Wings

..
- Sunday, September 4, 2005 6:38 PM CDT


Michelle and Alicia,
Wishing you a Happy Labor Weekend. Keeping
you in prayers and thoughts. I love the new
pic, boy have you grown.. God Bless!!!!
Prayers and Hugs,
LeAnn

LeAnn Mooneyham/Angel_Wings
Baxley, GA United States - Saturday, September 3, 2005 8:44 AM CDT

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Hello Alicia and Michelle, Ericka,
Hope you are all doing well. Want you to know
you are in my prayers and thoughts.
Love and hugs,
Rose

Rose
SC - Saturday, September 3, 2005 7:55 AM CDT

Tuesday, August 30, 2005

August 2005 Guestbook Entries

Hi Alicia,
I wanted to stop by and tell you
hello and that I love you. Give
grandma a hug for me and I'm
sending hugs to you. Love, Rose

Rose
SC - Tuesday, August 30, 2005 4:50 PM CDT


Michelle,
I am so happy to hear that Alicia enjoyed
camp so much.I love the picture of her she
is such a beautiful little girl..Sending her
a very special angel hug and lots of love and
prayers..

Trish/Angel_Wings
Kingston, TN USA - Sunday, August 28, 2005 4:08 PM CDT


Ailica and Family,
Hi there!! Hope you have a great
weekend!! Thinking and praying
for you!! God Bless!!
Prayers and Hugs,
LeAnn
www.caringbridge.org/ga/annettelee

LeAnn Mooneyham/Angel_Wings/www.caringbridge.org/ga/jcthetractorboy
Baxley, GA United States - Saturday, August 27, 2005 6:48 PM CDT

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Hi Alicia,
I'm thinking of you and hoping you are
having a good day. Love and hugs,
Rose

Rose
SC - Saturday, August 27, 2005 9:56 AM CDT

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Alicia,
I'm so happy to see your new friends here.
I wish I could give you sunshine everyday!
Keeping you all in my prayers. I love you.
Hugs, Rose
http://roseygirl7.tripod.com
prayer_angels

Rose
SC - Wednesday, August 24, 2005 5:21 PM CDT

Hi Michelle, Erica, and Alicia,

We loved meeting two of you at camp!! Alicia you are a doll!! We hope to see you again next year or sooner maybe, whenever we make it to Wichita:-) Hope things are going well with your counts. We'll be checking in often.

Love,
Teresa and Emma

www.caringbridge.com/or/emmarose
Aloha, OR USA - Wednesday, August 24, 2005 5:14 PM CDT

Hey Michelle and Alicia,
I am returning to Australia today....a long flight. We leave soon for the airport. It was SO great to meet you guys.
Alicia, thank you so much for the BIG, HUGE, LONG kisses you gave me while I was on camp. You are so welcoming. Thank you for lending us your shoes while they tried to find Isaac's lost luggage....we will send you shoes back to you eventually!!! HA!! But we really appreciated your hospitality. It was so nice. Well, I will talk to you more when we are back from the USA.
Love Charisse
(FA Adult)
www3.caringbridge.com/oceania/charisse

Charisse Howard-Jones
Adelaide, SA Australia - Wednesday, August 24, 2005 4:41 PM CDT

Keep us posted on the CBC!
You are in my thoughts and prayers!

Kayla - WILL POWER
Charlotte, NC USA - Wednesday, August 24, 2005 9:48 AM CDT

I'm happy that Alicia had so much fun at camp.
She has made many memories. I'm praying for
you all. Love, Rose

Rose
SC - Saturday, August 20, 2005 7:06 AM CDT

It was great meeting you at camp - Alicia is such a littke cutie pie! It made my day when she let me hold her!
I hope guys come back again next year!

Kayla - WILL POWER
- Friday, August 19, 2005 11:34 AM CDT

Hi Alicia,
I hope that you are enjoying yourself.
I'm keeping you in my prayers.
Love, Rose

Rose
SC - Thursday, August 18, 2005 5:00 PM CDT


Hi guys!! Wanted to stop by and let
ya know we are praying for yaw'll!!!
God Bless!!
Prayers and Hugs,
LeAnn

LeAnn Mooneyham/Angel_Wings
Baxley, GA United States - Tuesday, August 16, 2005 8:41 PM CDT

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Thinking of you and hope you are having
a great time at camp. I love you all.
Hugs, Rose

Rose
SC - Friday, August 12, 2005 6:10 PM CDT

Hi Alicia and Michelle,
can't believe I leave tomorrow morning for camp on the plane. I am sure that my son Isaac is going to love playing with you. And I am going to love meeting you all. See you Very, Very soon.
Love Charisse
(FA Adult)
www3.caringbridge.com/oceania/charisse

Charisse Howard-Jones/The Prayer Bears
Adelaide, SA Australia - Wednesday, August 10, 2005 2:51 AM CDT

Hi Michelle, Alicia, and Erika,
I'll take more time and put the
pictures in this weekend that
I know Alicia likes. I just got
home from volleyball practice
and a lot to do. I want you all
to know I'm thinking of you and keeping
you in my prayers. Love and hugs,
Rose

Rose
SC - Tuesday, August 9, 2005 7:21 PM CDT

Hi Alicia
thinking of you and praying for you always

Maria and Sammy Joe

the Liistro Family
Craigieburn ,Melbourne, Vic Australia - Tuesday, August 9, 2005 9:00 AM CDT

Hey Alicia,
Thinking of you as always.
Have a GREAT time at camp.
Hugs
Rose

Rose
SC - Monday, August 8, 2005 8:32 PM CDT

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Have a great weekend. Thinking of you
and keeping you in my prayers.
Hugs,
Rose

Rose
SC - Saturday, August 6, 2005 8:03 AM CDT

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Michelle, It will probably be in the afternoon
when I drop by to sign starting tomorrow. I will
be starting school back tomorrow. I pray that
Alicia is doing okay and having fun. I think
of you all often. Michelle, please pray for
my friend Cody. He is in the hospital and very
sick. He needs prayers and he needs a miracle.
I love you all. Hugs, Rose
http://roseygirl7.tripod.com
prayer_angels

Rose
SC - Wednesday, August 3, 2005 7:12 AM CDT


Hi Michelle and Alicia,
Wanted to top by and check on
you guys!! Hope you have alot
of fun at camp!!! God Bless!!!
Prayers and Hugs,
LeAnn

LeAnn Mooneyham/Angel_Wings
Baxley, GA United States - Tuesday, August 2, 2005 12:31 AM CDT

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The Prayer Bears

Camp is closer than ever before!!!
See you soon!
Blessings and Bear Hugs,

Donna Boggs, Papa Bear’s Site
Coeburn, Va - Tuesday, August 2, 2005 11:32 AM CDT

10 more days till I get to meet you!!! Yeah! I hope you and Wesley have a great time playing together while our brain's get turned to mush at all those conferences. Don't forget to bring a costume for the masquarade party. See you soon.
kristin young
gorham, me usa - Tuesday, August 2, 2005 8:31 AM CDT

Alicia,
I sure hope you are doing ok now, and that your concussion has healed wonderfully. I've saw some posts about you going to camp. I hope you get to go and have a wonderful time. We will be keeping you in our prayers.
Image hosted by Photobucket.com and Image hosted by Photobucket.com



Michelle/Angel_Wings & Bethany
Knoxville, TN - Monday, August 1, 2005 11:38 PM CDT

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Hi Michelle and Alicia,
I know you are busy getting ready for camp.
I want you to know I think of you often and
I'm praying for Alicia. Sending you all hugs.
Love, Rose

Rose
SC - Monday, August 1, 2005 8:06 AM CDT

Friday, August 19, 2005

August 19, 2005

Well we are all settled back home here in Kansas. I wish we could of stayed at Camp Sunshine forever!!!

Alicia had a very good time. It took me two days to finally get her to calm down. She is a hand full!!!

I am so glad I finally got to meet alot of new friends. I hope all is going well with every one now that you are back home.

Alicia gets her cbc count next week so I will keep every one updated.

Your Friend
Michelle