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ALICIA'S JOURNEY WITH FA

Welcome to our blog where we try to keep family & friends updated on our daughter/granddaughter, Alicia, who is one of the most adorable five year olds ever! She was born with a very rare & aggressive disease, called Fanconi anemia, which causes bone marrow failure, as well as different cancers . She is currently undergoing a bone marrow transplant to try to cure her bone marrow issues. If you'd like to gain a little more background, please visit our first entry HERE.



Wednesday, November 30, 2005

November 2005 Guestbook Entires

Happy Birthday Alicia,
sorry I am a bit late! I haven't stopped by for a while...but I am glad to hear that you loved the clown at your party!
Michelle, I haven't spoken to you for ages. It is good to hear an update from you and I hope all the packing and all the holidays go well for you all.
Lots of love,
Charisse
(FA Adult)
www3.caringbridge.com/oceania/charisse

Charisse Howard-Jones/The Prayer Bears
Adelaide, SA Australia - Thursday, November 24, 2005 2:17 AM CST


Image hosted by Photobucket.comHappy Bearthday!!
The Prayer Bears Website

Hope your day was just the sweetest day! Just like you!
Blessings and Bear hugs!



Donna Boggs, Papa Bear’s Site
Coeburn , Va - Wednesday, November 23, 2005 8:37 AM CST

Hi Alicia and Everyone.....Amelia and I wanted to stop by and wish you a very HAPPY BIRTHDAY!!!!Hope you have a wonderful day and that all of your wishes come true....we are always thinking of you.....can't wait till camp next year!!!!
The Bennett's
Kelly,
Marshall 12yo, 2 years Post BMT, Amelia 5yo FA-G and Nathan 2yo Non-FA

~Marshall and Amelia~
Covington, Louisiana - Friday, November 18, 2005 5:20 PM CST

Hi Alicia,
I was so glad to read that u are doing well. I will always have u in my thoughts and prayers.
Image hosted by Photobucket.com
I'll be back for a visit soon and see how u are doing.
((((((((((((((((((((((hugs)))))))))))))))))))))))))))
LoveEileen ThePrayerBears,OWC,Dabbles&Doodles

Eileen
NY, NY USA - Thursday, November 10, 2005 3:29 PM CST

Image hosted by Photobucket.com
The Prayer Bears Website

Donna Boggs, Papa Bear’s Site
Coeburn , Va - Tuesday, November 8, 2005 11:05 AM CST

Monday, November 21, 2005

November 21, 2005

Hello everyone,

Sorry it has been so long since I have updated on Alicia. Everything is going well. Alicia turned Three Friday. She is getting to be such a Big Little girl. We hired a Clown for her party and she loved it. His name was Sparkles and he did a real good job entertaining the 17 chldren that were there.

We are still planning to move to Cinncinnatti. We are going to wait till after the first of the year, so we can spend the Holidays with our family.

Alicia's counts have stayed the same. She just got over a Cold so her Platelets are low but that is expected.

I hope everyone is doing well, and I wish everyone a Happy Holidays.

Michelle

Monday, October 31, 2005

October 2005 Guestbook Entires


Image hosted by Photobucket.comThe Prayer Bearshave a safe and happy halloween
hailee
you are such a little cutie.. thanks for visiting hailee, we love making new friends..

melissa
cavecreek, az usa - Monday, October 31, 2005 4:47 PM CST

Image hosted by Photobucket.com
Michelle and Alicia,
Praying and hoping that yaw'll have been able
to move and found a place. Keeping all in prayers
and thoughts. God Bless..
Prayers and Hugs,
LeAnn
ga/annettelee

LeAnn Mooneyham/Angel_Wings/www.caringbridge.org/ga/jcthetractorboy
Baxley, GA United States - Wednesday, October 26, 2005 9:20 AM CDT

Hi Michelle and Alicia....Johanna had her BMT in Cincinnati and just yesterday, at her doctor's appointment here in Fl, she said she missed Cincinnati. The nurses and doctors were very supportive and always indulging her. We were very pleased. I spent 3-1/2 months there and might have some insight into the area...if you need it.
Caringbridge.org/fl/joanbender

Bless you, Joan and Johanna
kissimmee, fl USA - Friday, October 14, 2005 9:38 PM CDT

Checking in on you-
Just wanted you to know that you are in our thougths and prayers.
Bret & Nanette Foster and Family
(Ryan, Nicolaus, Courtney, Kaelynn and Dianna)
www.caringbridge.org/tx/dianna

Nanette Foster
Lewisville, TX USA - Tuesday, October 11, 2005 10:51 AM CDT

Image hosted by Photobucket.com
The Prayer Bears
Image hosted by Photobucket.com

Donna Boggs, Papa Bear’s Site
Coeburn, Va - Thursday, October 6, 2005 2:05 PM CDT

Hi Michelle and Alicia and Erika,
Glad to hear from you. I hope you
do get moved sounds like it would be
a good thing to do. You are all
in my prayers. Love, Rose

Rose
SC - Wednesday, October 5, 2005 6:24 PM CDT

I just wanted to post a note to your website. My daughter, Erin, is an FA patient that is recovering from a bone marrow transplant she had this past May in Minneapolis, MN. She is 8 years old, and was diagnosed with Fanconi Anemia in September of 2003. We live in the Greater Cincinnati area, and if we can help your family as you navigate the BMT "waters" here -- we would be happy to do so (oh/erinmckee). Best of luck to you, and we will be praying for your family, and your upcoming move to Cincinnati.

-the McKee family

Barbara McKee
Bethel, OH USA` - Monday, October 3, 2005 1:44 PM CDT

Sunday, October 2, 2005

October 2, 2005

Hello to everyone,


Sorry its been so long since I updated everyone on Alicia. Everything is going well with us. Alicia counts are staying the same, we got her CBC counts back last week, her platelets are at 71,000. She's just getting over a cold but besides that she's doing really well.

We are trying to make arrangements to move to Cinncinnatti, Ohio. I want her to be able to get the best medical treatment possible. The Doctors here are wonderful, Dr Reddy, her Pediatrician is a Awesome Doctor, but The team of specialist in Cinncinnatti know so much more about FA. So right now I am trying to figure out a way to afford to make such a big move, I'm a single mother like my daughter Erika and our finances are kinda tight, but my goal right now is to have Alicia close to the Doctors in Cinncinnatti. I know the lord is on our side and everything will work out.

I am sorry again for such the long period between updates, and I will try harder to make them more frequent.

Your friend
Michelle

Friday, September 30, 2005

September 2005 Guestbook Entries

Image hosted by Photobucket.com
Thinking of you all and sending big hugs.
Love, Rose

Rose
sc - Friday, September 30, 2005 2:58 PM CDT


Image hosted by Photobucket.comFlying by to let you know you are in our prayers!
The Prayer Bears

Checking in to see how you are doing, Ms Cutie Pie! I can still feel those warm hugs and little kisses!
Blessings and Bear Hugs

Donna Boggs, Papa Bear’s Site
Coeburn, Va - Friday, September 30, 2005 12:31 AM CDT

I love you! You are all in my thoughts and
always in my prayers.
Hugs, Rose

Rose
sc - Saturday, September 24, 2005 11:10 AM CDT

Glad you enjoyed camp so much. Take care.
Candice Behm
Portland, OR USA - Friday, September 23, 2005 0:48 AM CDT

Image hosted by Photobucket.com
Hi Alicia and Michelle,
I hope you are all doing fine. Just want to
let you know you are in my prayers.
Love, Rose

Rose
SC - Wednesday, September 21, 2005 7:29 PM CDT

Image hosted by Photobucket.com
Sorry I haven't been by lately. Nanny was
in the hospital last week and she came home
yesterday. You are all in my thoughts
and my prayers.
Love, Rose

Rose
SC - Tuesday, September 20, 2005 7:43 PM CDT

The Prayer Bears

Image hosted by Photobucket.com
praying for good news with counts..

melissa
cavecreek, az usa - Tuesday, September 20, 2005 5:43 PM CDT

Alice: Image hosted by TinyPic.com
Thinking of & praying for you today & always
Charlene Mom to BECKY
One Who Cares @ Angel_Wings
Dabbles & Doodles & other groups

..
- Tuesday, September 20, 2005 11:31 AM CDT

Hello Alicia
I will keep you in my prayers, hope all goes well. I know you have never meet me before I am new to this site. I just found out about a month ago on August22,2005 that my son sean has Fanconi Anemia also. Sean is only 4 yrs old
maybe you will get to meet him soon. he hasn't went through a bonemarrow transplant yet either. I have a web site for him. If you would like to visit it. its through caringbridge

Dorothea Sands
San Marcos , Calif 92078 - Tuesday, September 20, 2005 0:54 AM CDT

Thank you for the kind words Michelle. Hope Alicia is doing well. Our prayers are with you.
Joan Bender
kissimmee, fl usa - Monday, September 19, 2005 2:44 PM CDT

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Sending you lots of love and hugs today.You are in my thoughts and prayers.
Love & Hugs,
Jessica from We Care 4 Kids & Angel Wings
We Care 4 Kids

Jessica
- Monday, September 19, 2005 1:05 AM CDT

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Hi Alicia,
I'm thinking of you and hope you are having
some fun. I love you. Love, Rose
prayer_angels

Rose
SC - Tuesday, September 13, 2005 5:02 PM CDT

Image hosted by Photobucket.com
Hi Alicia,
We are praying and thinking of you..
God Bless!!!
Prayers and Hugs,
LeAnn
www.caringbridge.org/ga/annettelee

LeAnn Mooneyham/Angel_Wings/www.caringbridge.org/ga/jcthetractorboy
Baxley, GA United States - Sunday, September 11, 2005 11:13 AM CDT

hi alicia,

aunt denise and uncle mike love you

aunt denise and uncle mike
Wichita, ks usa - Saturday, September 10, 2005 2:10 AM CDT

Image hosted by Photobucket.comWe’re praying for you little Miss Fireball! I can still feel them little kisses!
The Prayer Bears
Blessings and BearImage hosted by Photobucket.com

Donna Boggs, Papa Bear’s Site
Coeburn, Va - Tuesday, September 6, 2005 11:34 AM CDT

Hi Alicia,
You are a little doll. I heard that you can
sign your name. I'm so proud of you. I hope
you have a nice and fun week. Hugs, Rose

Rose
SC - Monday, September 5, 2005 8:13 PM CDT

Image hosted by Photobucket.com My first visit but I'll be back often. Sending you a note to say you are in my thoughts & prayers.
Charlene
One Who Cares, Dabbles & Doodles & Angel_Wings

..
- Sunday, September 4, 2005 6:38 PM CDT


Michelle and Alicia,
Wishing you a Happy Labor Weekend. Keeping
you in prayers and thoughts. I love the new
pic, boy have you grown.. God Bless!!!!
Prayers and Hugs,
LeAnn

LeAnn Mooneyham/Angel_Wings
Baxley, GA United States - Saturday, September 3, 2005 8:44 AM CDT

Image hosted by Photobucket.com
Hello Alicia and Michelle, Ericka,
Hope you are all doing well. Want you to know
you are in my prayers and thoughts.
Love and hugs,
Rose

Rose
SC - Saturday, September 3, 2005 7:55 AM CDT