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ALICIA'S JOURNEY WITH FA

Welcome to our blog where we try to keep family & friends updated on our daughter/granddaughter, Alicia, who is one of the most adorable five year olds ever! She was born with a very rare & aggressive disease, called Fanconi anemia, which causes bone marrow failure, as well as different cancers . She is currently undergoing a bone marrow transplant to try to cure her bone marrow issues. If you'd like to gain a little more background, please visit our first entry HERE.



Tuesday, February 28, 2006

February 2006 Guestbook Entries

Alicia you are a beautiful angel. you are in my prayers
Roxanne Hall
Wichita, ks Sedgwick - Sunday, February 26, 2006 2:57 PM CST




Alicia, Thinking of you always..Praying for you...Prayers and Bearhugs, Love, MarcI the Prayer Bears, SOEW and OWC
www.caringbridge.org/visit/bryanandmark

Marci Connell
Valdosta, GA USA - Friday, February 24, 2006 2:14 PM CST

Image hosting by Photobucket Thinking of you today..Praying no news is good news....Bearhugs...

The Prayer Bears Website


Mary Mabe
Coeburn, va Usa - Monday, February 20, 2006 5:23 PM CST

HAPPY VALENTINE'S DAY, ALICIA~~

What a beauty you are!!

Have a super sweet day!

Love and giant bear hugs,

Eva and Rodney~The Prayer Bears~
www.caringbridge.org/mi/rodneyreeves, - Monday, February 13, 2006 1:52 PM CST

Image hosting by Photobucket Blessings and Bearhugs...
The Prayer Bears Website

Mary Mabe
Coeburn, va Usa - Monday, February 13, 2006 1:45 PM CST

Image hosting by Photobucket
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Chayce's Mission
Davison, MI - Monday, February 13, 2006 1:06 PM CST

Rolling in to say Hello and to let you know We I am thinking of you today..Praying that all is well with you and your family.
The Prayer Bears Website

Mary Mabe
Coeburn, va Usa - Wednesday, February 8, 2006 9:42 AM CST

I bet your SUPER BOWL party was a blast. I hope you are still feeling great..Prayers and Bearhugs, Love, Marci The Prayer Bears and SOEW

www.caringbridge.org/visit/bryanandmark

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Marci Connell
Valdosta, GA USA - Tuesday, February 7, 2006 8:37 AM CST

Tuesday, January 31, 2006

January 2006 Guestbook Entries


Image hosting by Photobucket Alicia..I am so happy to know that you are doing so well..Enjoy your Super Bowl Party...

The Prayer Bears Website


Mary Mabe
Coeburn, VA Usa - Monday, January 23, 2006 9:11 PM CST

Image hosted by Photobucket.com Hey Miss Alicia...Thinking of you daily..Praying all is well with you and your family..Sending Lots of Bear Hugs your way...

The Prayer Bears Website


Mary Mabe
Coeburn, VA Usa - Wednesday, January 11, 2006 5:32 PM CST

Image hosted by Photobucket.com
The Prayer Bears Website

Hey,

Tell you boss you have lots of buddies!!!!!! Ha!
Hope all is going well! Alicia go for it girl! Tooo many presents, too little time!
Blessings and Bear Hugs!

Donna Boggs, Papa Bear’s Site
Coeburn , va - Wednesday, January 4, 2006 2:57 PM CST

Friday, January 20, 2006

January 20, 2006

Hello Everyone,

I just wanted to give a little update on Alicia, She's doing really well. It's always good to get good news because usually most of the news we get is not so good.

Anyway Alicia went for her check up with the Heart specialist here in Wichita and we got really good news. All is well!!!!!! When Alicia was born she had two holes in her heart, and several mumors. When we went for her check up on Wednesday she told us that both holes had closed and healed completely, and all mumors are gone. YES!!!! She also got her cbc done but we don't have the results yet. (no news is good news, right?) Alicia had a hard day that day. It took two hours for them to run all the tests on her heart. It is very hard to keep a 3 year old to hold still for the Sonograms for two hours, there's only so many times you can play Dora the Explora over and over again before she finally said enough. After they were done with the tests her Pediatrician decided she wanted to give her a flu shot,that really didn't go over good with her. Then I had to take her to the lab to get her blood drawn, the lab is in the basement, and Alicia knows exactly where we are going when she gets off the elevator. Usually she runs right in, she's always happy, even we when go the lab. But not this time, she threw a fit the whole way there. Im just glad that day is over and it ended in good news!!!

We're planning now for Super Bowl Sunday. Alicia and I love to watch football together, Exspecially the KC Cheifs (loosers.) Our whole family is coming over our house for a Super Bowl Party, Alicia is going to have a blast, everyone always makes a big fuss over her, she loves it.

I will keep everyone updated on Alicia and I hope all is going well with everyone.


Michelle
The proudest grandma ever

Saturday, December 31, 2005

December 2005 Guestbook Entires

Alicia, Hi cutie. I wanted to stop in and say hello. I hope your New Year is filled with love, Peace and healing. Prayers and Bearhugs,Love, Marci The Prayer Bears

Marci Connell
Valdosta, GA USA - Friday, December 30, 2005 6:57 AM CST


Alicia, I hope you are doing great. I hope santa brings you lots of goodies..Praying for you always.Love,Marci The Prayer Bears www.freewebs.com/prayerbears

Marci Connell
Valdosta, GA USA - Wednesday, December 21, 2005 7:07 AM CST

Image hosted by Photobucket.com Beary Christmas!
The Prayer Bears Website

Hope this holiday is the merriest ever!
Blessings and Bear Hugs,

Donna J. Boggs
Coeburn , Va - Tuesday, December 20, 2005 11:55 AM CST

Image hosted by Photobucket.com Hoping that all is well...Wishing you and your Family a Very Merry Christmas...Sending Lots of Bear Hugs your way.
Mary Mabe
Coeburn, VA USA - Sunday, December 11, 2005 6:02 PM CST

Hi all,
Just wanted to stop by and say hi. Wishing you all a special holiday season. John, Dianne and Michelle Ploetz

Dianne Ploetz
St. Paul, MN - Friday, December 9, 2005 1:24 PM CST

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Hi Alicia,
Happy Late birthday honey.I'm sorry that i am
a little late.I love all the pictures you ae growing
so much and only get prettier all the time.Sending you
a great big hugs and lots of love and prayers.

Trish/Angel_Wings(Angel_Wings@yahoogroups.com)
Kingston, TN USA - Tuesday, December 6, 2005 3:13 PM CST

Friday, December 30, 2005

December 30, 2005

Hello Everyone,

Sorry it has been so long since I have given an update on Alicia. All is well here. Alicia is doing just fine, she is getting over a cold and a terible cough, but her counts are staying the same.

We had an awesome Christmas. Alicia got so many Dora Dolls, Dora is her favorite. She loves to open presents.
After we were done opening presents on Christmas morning I was taking a shower and erika was cooking breakfast and Alicia decided since there were still presents under the tree, that she would finish opening them, so I had to rewrap all the presents that went to Grandmas house. We all laughed so hard, Alicia just didnt understand.

We really did have a good Christmas. My boss gave me a cruise to Jaimaca, I am so excited. I am going in March and then we are going to make the big move to Cinncinnatti.

I will keep everyone updated on Alicia. Hope all is well with everyone.

Michelle Colgan