Day +281

I am soooo sorry I have not updated in a while. Alicia is still doing very well. We have had a few scares with her vomiting but she is doing fine other wise. We are trying to get back in the routine of being at home. It feels very weird and I miss all of my friends so much back in Cincinnati.


Erika and Anshon and Denise have been here everyday. Alicia keeps telling me that we can not go to the McDonald house, I think in the back of her mind she still thinks we are going back. We have an appointment there on the 21st. I know I am going to have to tell her over and over again that we are coming home. I can only imagine what is going through her little mind.


She seen Dr Rosen again yesterday and I told him my concerns with how the Nurse and his self clean her line. He assured me that it was safe but I am not convinced. The nurse came out Tuesday and changed her picc line dressing and it was a nightmare. It was the most unsterile procedure I have ever seen. I voiced my thoughts very loudly and I am not sure if I am going to let her do it ever again. I can do it myself. I definitely do not want Alicia to get another line infection.


Alicia's counts are all great. Her Platelets are still in the 400 thousands and her Wbc has finally came down to 10.8. Her Hbg is dropping slightly every week so they are keeping a close eye on that. Her electrolytes are finally under control which makes me feel a lot better.


We are going to Cincinnati the week of the 21st of April and until then we will be seeing Dr Rosen every week until told otherwise. I will keep everyone updated on her progress. Thank you so much for all of the support.

Here are pictures of Alicia and her Brothers... The first is with her and Lil Anshon and the 2nd is of her and Jayshon..................

Day +275

So far so good. Alicia is still doing great. I was a little freaked out though when i took her to see Dr Rosen, here in Wichita yesterday. He barely scrubbed her line. She has another appointment next week on Thursday, I plan on talking more to him and the home nurse about the way her line has been cared for. (Heck), we definitely don't need a third line infection.

Here is a picture of Alicia and her cousin Kortnie, who which has been spending alot of time at our apartment. She will be watching Alicia when the time come for me to go back to work in a couple of months.

This picture is of Alicia and the home nurse Becky. I have a feeling Alicia is going to eat her alive.

Alicia is taking a nap now so i better do the same. I will update more later!!

Home Sweet Home

This is Alicia at the Wings of Hope Headquarters... She got a grand tour..............................

We made it HOME!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! This is the best feeling ever!!!!!!!!!!!!! As soon as I got off the plane was drop to my knees and kiss the ground. I am totally serious I know it sounds unsanitary but who cares. Alicia was so excited. our whole family lined the Run way, My Mom told me she could see Alicia's little face waving as we pulled up. Alicia ran right to Ne Ne's Arms. It was an Awesome Home coming.

The leaving was a little hard though. I didn't realize how much of an impact everything and everyone had on me in Cincinnati. I am going to miss my friends very much. That 10 months of our life will forever be in my mind. I am starting to cry just writing about it. Our friends Tina, Jo, Jacy and Cameron came took us to the Airport to see us off. Tina about fell out of her chair when she seen how small the plane was that we were taking LOL it was so funny.

Erika, Anshons and the boys came over after Erika got off work. Boy my Grandsons are ROTTEN!!!!!!!!!!!!!!!!!!!!!!!! I have a lot of work to do before I think I can be able to handle all Three of them. I think the boys were just tired. Alicia was already laying down by the time Mommy and Daddy got here, her tummy had been upset but today is a lot better.

The Home Nurse was here within an hour after we got to the apartment, it took her all of ten minutes to teach me how to work the pump and an hour on all of the paper work. I do not know how well I am going to adjust to this lady. Alicia is pretty hard to handle and she kept looking at her crazy every time Alicia told her not to touch her. She has an appointment tomorrow at 2:30 with Dr Rosen the Hematologist here.

Dr Davies came to see Alicia Tuesday before we left our last appointment. I am so thankful for all that she did for us. She is an awesome person. Theo also came in to say good bye. it was so cute... Alicia told him she was going to miss him and she would call him and she gave him a huge hug.

Day +270

Sorry I have not updated in a few days. Everything is still good. Alicia is doing great and all plans are still in action. I held my breath all weekend and we made it!!!!!!!!!!!!!!!!!!!!! So this morning I got up and packed everything. I didn't dare move anything through the weekend. I was scared it would jinx us. Alicia was napping when I was packing and every time she woke up she would smile so big and ask if we were going home now. Finally I said YES!!!!!!!!!!!!!!!!!!!!!!!


We have one more appointment tomorrow so Dr Davies can give her the good look over and Michelle, our nurse coordinator can go over everything about the discharge and it HOME from there. Our flight leaves at 11 am with Wings of Hope again. They are such gracious and wonderful people.


Hopefully the next update will be from Kansas!!!!!!!!!!!!!!!!!!!!!! I plan on pacing my computer in the morning. Thank you for all of each and everyone of yours support!!!!!!!!!


WE DID IT!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! I AM SOOOO PROUD OF YOU ALICIA!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

Day +266

Well we made it out of the hospital today. I watched Alicia like a hawk all morning until we left (and all night also) Alicia was dancing and singing all the way down the elevators and she has been such a happy girl all day long. I have to admit I was very nervous when I hooked Alicia to her Antibiotic and fluids this evening. It has been a while but the main thing that worried me was she might get another line infection. It is all done and I feel better now, it was the first time jitters after we have been through so much.

Alicia has an appointment with Dr Davies tomorrow at 2pm and another Tuesday at 8:30 then we are Homeward bound!!!!!!!!!!!!!!!!!!!!!!! I feel we are going to make that flight this time. I am sooooo excited. I am sad because I will miss Anshon's Birthday Sunday but I will make it up to him when I get home.


Denise has not been feeling well lately so please keep her in your prayers. Between her and my Mom they have been a HUGE support to me. Erika is very excited we will be home also. That is all Alicia talks about is going to see mommy, daddy, ne ne and aunt Kelli. My self, I can not wait to see my Grandsons I know they have grown since I seen them at Christmas.


We will have to return to Cincinnati in 5 to 6 weeks after we get home but it is only for a short stay. Hopefully only good updates from this point on. Thank you so much for all of the support and prayers once again.