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ALICIA'S JOURNEY WITH FA

Welcome to our blog where we try to keep family & friends updated on our daughter/granddaughter, Alicia, who is one of the most adorable five year olds ever! She was born with a very rare & aggressive disease, called Fanconi anemia, which causes bone marrow failure, as well as different cancers . She is currently undergoing a bone marrow transplant to try to cure her bone marrow issues. If you'd like to gain a little more background, please visit our first entry HERE.



Monday, January 1, 2007

January 2007 entries

Thursday, January 4, 2007 10:57 PM CST

Today has been a great day!!! I feel like a ton of bricks has been lifted off my shoulders. The last week has been a complete mess and today I haven't felt a bit af stress. I am so thankful for all your prayers, GOD IS SO GREAT!!! I know that alot of people all over the world has been praying for Alicia this past week and all the prayers were answered. Thank you again so much.

I have to admit though that I have been a little mad. I can't believe that a pathologist here in Kansas could make so bad of a mistake as he did. My whole world has been turned upside down because of someone reading her tests wrong, I even gave a notice at my job and started to exit Alicia out of school. I can say that all the calls I made today with the news of Alicia felt way better than the calls i made last week. I'm not mad anymore though, I forgive who ever the pathologist is. All that matters is that Alicia is fine for now and all the rest don't matter.

Dr. Williams did say that he wants to do another biopsy in the middle of Febuary just to make sure that the results are the same as he seen Wensday. I will not loose my hope and faith that they will be fine.

I believe God was sending me a message or maybe a wake up call, I know that no one is promised tomorrow and I should make every day count that I get to spend with Alicia. Who knows when her time will come for transplant and I believe that he was telling me to be prepared next time, and maybe it will be a little easier to accept because this totally freaked me out. BUT MY BABY IS FINE FOR NOW.

I am so glad that I won't be missing my grandsons birth. That was bothering me alot also but I knew I had to focus on Alicia but now I will be here!!!

I want to thank everyone again so much for all your support. I wouldn't of been able to get through that without you, Thanks so much.

I want to give a big thanks to Krisstina, Dianne, Charisse, Teresa, Kelly, Lisa, Robin, Suzanne, The prayer bears, Dr. Williams, Roxanne, Sallie, my mom, Kayla, my whole family and my FA family also. I hope I didn't miss anyone, I am just sooooooooo happt.


Grandma michelle

Wednesday, January 3, 2007 7:09 PM CST

WAIT TIL YOU READ THIS!!!!!!

I AM A TRUE BELIEVER THAT GOD GIVES MIRACLES!!! HE HEARD ALL THE MANY PRAYERS THAT EVERYONE WAS PRAYING FOR ALICIA. GOD IS WONDERFUL!!!!!!

I GOT A CALL FROM DR. WILLIAMS AT 4 PM TODAY AND I COULD HEAR THE SMILE IN HIS VOICE. HE SAID THAT HE GOT THE SLIDES FROM KANSAS AND HIM AND DR. DAVIS BOTH AGREE THAT THE PATHOLIGISTS REPORT IS NOT CORRECT. HE SAID THAT HE DOES NOT SEE ANY SIGNS OF LUKEMIA!!!!!! HE SAID HE WILL DO A FOLLOW UP BIOPSY IN FEBUARY JUST TO MAKE SURE BUT HE SAID ALICIAS TRANSPLANT IS CANCELED!!!!! THIS IS A MIRACLE!!! I AM SOOOOO HAPPY!!!

I WILL UPDATE MORE TOMORROW BUT I JUST WANTED EVERYONE TO KNOW.

THANK YOU SO MUCH FOR ALL YOUR PRAYERS, YOU ARE THE REASON SHE IS NOT GOING TO TRANSPLANT.

MICHELLE

Tuesday, January 2, 2007 7:08 PM CST

Today has been a little better for me. Im taking it one day at a time. I know that Alicia needs me to be strong so I am getting stronger every day.


I didn't celebrate New Years, Alicia and me went to bed early and skipped any celebrations. In 2008 we will have a big celebration and make up for this years.


I caught myself gettin upset this weekend and little alicia went and got her pillow and crawled up in my lap and rubbed my leg and said its ok meema, at that moment I thought to myself who is supposed to comforting who? She needs me more than ever now so I promised to get myself together, this is going to be a hundred times harder for her not me.

Cincinnati called today and said that her blast count was at 7% and she might need Chemo before her transplant to get her Lukemia in remision, so we might have to go sooner than we thought. They also said they found 2 possible matches in the national donor registary so that is a bit of good news.

I will keep everyone updated on any new results. I want to thank everyone for all the support you have given me in the las couple of days. I couldn't do this without friends like you.

Michelle

Posted by Teresa at 10:04 PM  

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