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ALICIA'S JOURNEY WITH FA

Welcome to our blog where we try to keep family & friends updated on our daughter/granddaughter, Alicia, who is one of the most adorable five year olds ever! She was born with a very rare & aggressive disease, called Fanconi anemia, which causes bone marrow failure, as well as different cancers . She is currently undergoing a bone marrow transplant to try to cure her bone marrow issues. If you'd like to gain a little more background, please visit our first entry HERE.



Thursday, February 1, 2007

February 2007 entries

Thursday, February 22, 2007 10:38 AM CST

Hello,


Sorry I haven't updated on Alicia in a while. I still have troubles finding a computer to use.

We made it to Cincinnati safe. Our first flight went just as planned, we had a layover in Minnesota, and got to see Dianne and Michelle. That was soooo cool. Dianne fixed us an awesome Breakfeast. Thanks so much Dianne. Alicia was (and still is) very excited and wired. She knows she isn't at home and is testing mee-ma alot. I guess she's just beibg a tipacal 4 yr old.

We got great news, Alicia's biopsy results came back and they were awesome. Her blast count was confirmed at 2% and the abnormal Monosomy seven went away for now. This is all very hard to believe. Just within the past 2 months I went from being told my baby was going to transplant to finding out her counts are fine for now, I truely believe that it was a wake up call. Hopefully I will be able to handle it a little better when the time comes for transplant.

We have a couple of appointments in the morning before the family meeting on Saturday and Sunday. I will let everyone know how they turn out.


Thank you everyone so much for all the prayers you have said for Alicia.


O yea I almost forgot. Erika is having the baby on the 15th of March at 8:30 am. I am so excited to finally get to hold my grandson.


Grandma (X's 2 almost) Michelle


Wednesday, February 7, 2007 2:13 PM CST

Hello everyone,

Sorry I haven't been updating on Alicia but I have had problems getting accsess to a computer.

She is having her follow up Biopsy in the morning. Thursday the 8th. This is the one that determines if she goes to transplant or not, This is going to be a very long weekend.

We are going to Cincinnati at the end of the month for the meeting and they are going to do alot of tests on Alicia, I will keep everyone posted.

Erika is getting huge!!! only one month left til im a grandma again. I am so excited.

Michelle

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