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ALICIA'S JOURNEY WITH FA

Welcome to our blog where we try to keep family & friends updated on our daughter/granddaughter, Alicia, who is one of the most adorable five year olds ever! She was born with a very rare & aggressive disease, called Fanconi anemia, which causes bone marrow failure, as well as different cancers . She is currently undergoing a bone marrow transplant to try to cure her bone marrow issues. If you'd like to gain a little more background, please visit our first entry HERE.



Tuesday, May 1, 2007

May 2007 entries

Monday, May 28, 2007 1:13 PM CDT

Sorry I just ot to a computer to update everyone on Alicia's results.

GOOD NEWS!!!!!!!!! They didn't show any increase in her Blast Counts. And still no show of the Monosomy Seven showing back up. I am so happy. Robin from Cincinnatti said they would be calling me next week and letting me know if Dr. Williams wants the Biopsy repeated in 3 months or if we get to wait 6 months this time. Thank you so much for every ones support I couldn't get through this with out you.

Michelle


Tuesday, May 8, 2007 3:44 PM CDT

Hello Everyone,

Sorry i haven't updated on Alicia in a while, we have been so busy with the new baby. He is getting soooo big, I will put more recent pictures soon.

Alicia is doing fine at the moment, she has another biopsy coming up on the 16th of this month, hopefully everything will come out fine like the last one and move her transplant to a much later time. I will let every one know the results just as soon as I get them.

Grandma michelle

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