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ALICIA'S JOURNEY WITH FA

Welcome to our blog where we try to keep family & friends updated on our daughter/granddaughter, Alicia, who is one of the most adorable five year olds ever! She was born with a very rare & aggressive disease, called Fanconi anemia, which causes bone marrow failure, as well as different cancers . She is currently undergoing a bone marrow transplant to try to cure her bone marrow issues. If you'd like to gain a little more background, please visit our first entry HERE.



Sunday, May 11, 2008

Mother's Day

HAPPY MOTHERS DAY TO ALL FA MOTHERS, GRANDMOTHERS, AND EVERY OTHER MOTHER OUT THERE.

TODAY WAS A BAD DAY BUT IN A VERY GOOD WAY. BUT IT IS A DAY THAT I WILL ALWAYS REMEMBER EVERY MOTHERS DAY THAT THE LORD GIVES US TOGETHER FROM NOW ON.

WE HAD A REALLY GOOD TIME, EVERYONE FINALLY GOT TO THE PARK AROUND THREE, ( WAITING ON ERIKA, I THINK SHE WILL BE LATE TO HER OWN WEDDING.) I THINK WE HAD THE BIGGEST PARTY OUT THERE. MY WHOLE FAMILY WAS THERE, MY MOM GRANDMA, ALL MY SISTERS, (EXCEPT ONE BUT THAT IS A LONG STORY) ALL OF THEIR KIDS AND THIER KIDS, ALOT OF SOME OF MY VERY GOOD FRIENDS SURPRISED ME AND THIER FAMILY'S. I HAD A VERY HARD TIME PUTTING UP THE FRONT THAT I WAS HAPPY AND HAVING A GOOD TIME, I HAD MANY TEARS FALL BUT I HAD ON MY SUNGLASSES SO NOBODY EVEN KNEW. I JUST KEPT LOOKING AROUND AT EVERYONE'S FAMILY AND ALL THE KIDS PLAYING AND KEPT THINKING ABOUT SO MUCH THAT WE WILL MISS THIS SUMMER. BUT I KEPT PUTTING ALL THE HAPPY THOUGHTS IN MY HEAD OF ALL THE TIMES TO COME THAT WE WILL BE WITH OUR FAMILY AS SOON AS ALICIA GETS HER NEW CHANCE AT LIFE!!!

I CRIED EVERY TIME I WATCHED ERIKA SWING ALICIA OR WHEN ALICIA WAS CHASING ERIKA'S NINE MINTH PREGNANT HUGE SELF. AND I PLAYED WITH LITTLE ANSHON AND THOUGHT OF EVERYTHING I WAS GOING TO MISS HIM DO FOR THE FIRST TIME AND FOR ALL OF THE TIME I WILL NOT BE ABLE TO GET BACK THAT I AM GOING TO MISS OF BOTH OF MY GRANDSONS LIFE.

BUT I SMILED AND WAS HAPPY WHEN I THOUGHT ABOUT ALL OF THE TIMES TAHT ARE STILL TO COME THAT I WILL NOT MISS, SOON I WILL BE ABLE TO JUST ENJOY AND SPEND TIME WITH ALL THREE OF MY GRANDCHILDREN WITHOUT THE EVERY DAY THOUGHT OF WHAT ALICIA FACES. IT WILL SOON BE BEHIND US AND CAN NOT WAIT TIL NEXT MOTHERS DAY!!!

ERIKA BOUGHT ME A BOTTLE OF MY FAVORITE PERFUME "COOL WATER" AND ALICIA NEVER ACTED UP ONE TIME TODAY. I DID NOT ONE TIME HAVE TO GET ON TO HER ( AND EVERYONE THAT KNOWS HER UNDERSTANDS WHAT I MEAN :)

I HOPE EVERY MOTHER HAD A GOOD MOTHERS DAY JUST LIKE I DID. LORD KNOWS IT TAKES A STRONG MOTHER (AND MEE-MA) TO GET THROUGH EACH DAY WITH DEALING WITH FA.

MEE-MA MICHELLE

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