Not much has changed since my last update. I was right about the Platelets yesterday, Alicia did end up having a nose bleed last night so she was given platelets at 1am.
In rounds the morning the doctor said they Infection Disease Control team has been called in due to Alica having so many uncommon Bacteria growing and they were so surprised. They said Alicia broke a record and they have not seen one child have so many RARE forms of bacteria grow from one Culture. Leave it to Alicia to break a record.
The soonest time they have available to put the Port in will be a week from tomorrow so it looks like we will be here for at least another week to two. Dr Davies came in this morning and said she don't for see this prolonging us from going home to much longer than it was planned for which made me feel a little better.
I will update more later.
ALICIA'S JOURNEY WITH FA
Welcome to our blog where we try to keep family & friends updated on our daughter/granddaughter, Alicia, who is one of the most adorable five year olds ever! She was born with a very rare & aggressive disease, called Fanconi anemia, which causes bone marrow failure, as well as different cancers . She is currently undergoing a bone marrow transplant to try to cure her bone marrow issues. If you'd like to gain a little more background, please visit our first entry HERE.
Tuesday, February 10, 2009
Day +236
Posted by Michelle at 8:47 AM
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2 comments:
Praying for that bacteria to go away!!! Love, Dianne
Well we pray for this bacteria to go in Jesus' Name! Hehe...Alicia knows how to break special records!
Thanks for praying for us, Michelle. Alan, Isaac and I are in a different State to the one that has had the devastating fires. With our temperatures it could happen here but right now it is interstate so we are safe. Thank you for praying though. There have been many lives lost and lots of devastation.
Love Charisse
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