Day +288

So sorry again that is has been a while since my update. I haven't even checked my e-mail in almost five days!!!!!!!!!!! Being home just consumes so much of my time. I know how many of you care and worry about Alicia and once again I am so sorry.


Everything is still going well at home. We had a couple of close calls with Temps, one last night was 99.9 but it went down so I did not worry. She has finally slowed down on asking to leave so much and realizes we are still isolated from the real world but at least we are close to home and family which makes it so much easier. Ne Ne and Mommy and Daddy make daily visits so that makes Alicia Happy.


We are Leaving on Monday the 20th for Cincinnati, I have told Alicia and she said "No Way" i laughed so hard when she said that. She said "No Mcdonald House Mee Ma" so I promised her we would only go to visit and not stay and she said OK. I told her she would see Theo and she was all for that.


Now to some not so good news............ I woke up Yesterday morning and our bed was soaking wet. y first thought was Alicia did not wake me up and had Pottied more than once and I was laying in urine up to my shoulders. YUCK!!!!!!! I woke her up (not so nicely) and told her to get up cause she had pee pee'd all over us and when she sat up she was holding her Picc line in her hand. i freaked of course and clamped her line immediately. I checked to see what had happened and you could tell her line broke and all that was left in her arm was the very thin tubing. Off to the ER we went. The reason the line broke was due to the Nurse I have been complaining about had not changed the dressing right. She did not use any securement device or any tape or strips to hold in down. The extension line was way to heavy and the weight broke it in the middle of the night. I was relieved to know I was not laying in urine but upset that I had voiced my concerns about this nurse before, needless to say she will not be coming out to our house any more and the new nurse assigned is much more educated with picc lines.


The new line being put in was a lot differently done here than it is in Cincinnati. They were going to put Alicia to sleep to do the procedure but I said No because she had already had two others with no sedation so why would she need it now. Alicia did very well, if only they would of blocked her view it would of been alot better. The sight of the needle was the reason why she freaked so I immediately blocked her view and it was fine after that.


Alicia is calling me so I will update more later. Thank you so much for your support and I will get b etter about the updates.