I FINALLY GOT THE INTERNET TO WORK HERE IN ICU. THANKS TINA FOR COMING TO MY RESCUE ONCE AGAIN.
I CAN NOT BELIEVE ALL OF THE BAD LUCK WE ARE HAVING LATELY!!!!!!!!!!!!!! I AM ALMOST SCARED TO WAKE UP JUST FOR THE FEAR OF NOT KNOWING WHAT WILL HAPPEN NEXT!!!!!!!!!!!
ALICIA IS DOING A LOT BETTER. WE ARE STILL BATTLING HER BLOOD PRESSURE BUT HOPEFULLY WE WILL BE MOVED TO THE BMT FLOOR TOMORROW.
WELL THE DAY STARTED FOO CRAZY FOR US AGAIN. I WENT TO THE RMH TO TAKE A SHOWER AND JUST AS I WAS ABOUT TO GET IN I BENT OVER AND ALL I FELT WAS MY WHOLE STOMACH RIP COMPLETELY OPEN. YES I AM FOR REAL!!!!!!!!!!!!!!!!!!! BLOOD WENT EVERY WHERE AND OFF THE EMERGENCY ROOM I WENT. MY WHOLE ENTIRE INCISION WAS RIPPED OPEN. THEY HAD TO CALL THE SURGEON WHO DID MY SURGERY TO COME LOOK AT IT AND SHE SAID THEY COULD NOT CLOSE IT DUE TO THE RISK OF INFECTION. THEY HAD TO PACK IT WITH GAUZE AND I HAVE TO GO TO THE CLINIC IN THE MORNING FOR THEM TO RE-PACK IT. SO NEEDLESS TO SAY I AM COMPLETELY OPEN AND IN A LOT OF PAIN AGAIN.
TOMORROW IS ALICIA'S ONE YEAR MARK SO I AM PRAYING IT WILL BE A BETTER DAY. WHO WOULD OF THOUGHT THAT ONE YEAR LATER WE WOULD BE SITTING IN ICU. I AM THANKFUL THOUGH THAT WE ARE TOGETHER AND ALL WE CAN DO IS TAKE IT ONE DAY AT A TIME!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
PLEASE KEEP US IN YOUR PRAYERS, IT HAS TO GET BETTER!!!!!!!!!!!!!!!!!
ALICIA MEE MA LOVES YOU AND I AM SO PROUD OF YOU!!!!!!!!!!!!! HAPPY SPECIAL DAY BABY!!!!!!!!!!!!!!!!!!!!!!!!!
ALICIA'S JOURNEY WITH FA
Welcome to our blog where we try to keep family & friends updated on our daughter/granddaughter, Alicia, who is one of the most adorable five year olds ever! She was born with a very rare & aggressive disease, called Fanconi anemia, which causes bone marrow failure, as well as different cancers . She is currently undergoing a bone marrow transplant to try to cure her bone marrow issues. If you'd like to gain a little more background, please visit our first entry HERE.
Thursday, June 18, 2009
GIVE ME A BREAK!!!!!!!!!!!!!!!!!!!!!!
Posted by Michelle at 8:09 PM
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6 comments:
Michelle, wow I have read Alicia's journal for a while and I can't believe all you have been through. Thank GOD for Krisstina for being able to be there for you both. She is an angel that will certainly be blessed. It is often said that GOD will not give you more than you can handle, but times like these make one ponder. I will continue to pray for Alicia and you and will stand on his word that both of you will pull through this healthy and peaceful! Please hug your sweet Alicia for me and know that your are both in my prayers.
www.caringbridge.org/visit/justinbarbier
FA/Louisiana
Am I allowed to swear on your blog?? I'll try really really hard not to. This is just outrageous!! You have been through so much I can't believe more keeps happening. I'm so sorry. Certainly thankful that you're in Cincy and yes, that you have Krisstina!! Hang in there. Sending lots of love,
rachel
Enough is enough...I can't believe what happened to you...Oh, Michelle, I am praying so hard for you and Alicia that you both will be fully well and healthy soon.
Have they set a date for your surgery?
When is Erika coming?
I hope that little Alicia will soon be moved to the BMT unit and that your troubles will all go away.
It is so good that Tina is such a good friend...she's really stepped in and give 1000%.
Love you and am continuing to pray,
Mary Ann
Michelle!!!! Oh MY!!!! I understand your title, "Give me a break!!!!".
My love, I know you need to be with Alicia, but I hope you are doing your best to lie down or sit on a chair and not do much activity. You insides need to be able to heal and someone who has had surgery like you would usually be resting at home. I know how important it is to be with Alicia, but do try and rest heaps. Put your feet up more than you usually would. It is hard when there is a child to look after *sigh* I know to well. Trying to cope with different procedures for FA and having my 6 1/2 year old. What you and Alicia have gone through in the last year has been intense! I admire you my love. What an incredible lady you are.
Alicia, congrats on it being 1 year my sweet! You deserve it. You have put up with so much as a little girl and we are proud of you.
We continue to pray for you and your mee-ma and are looking forward to hearing about you running around outside and not having the worry of recovering from transplant anymore.
Lots of love,
Charisse
Oh wow. I can't imagine the feeling that was when your incision opened. Praying for good things to begin to happen for you guys. You truely deserve it.
www.caringbridge.org/viist/margaretreed1
I've been thinking so much about you guys. I hope you're doing better and that you incision is being well taken care of. I can't believe it tore open!!
You and Alicia are in our prayers. This whole transplant journey has definitely been quite the ride for you guys. Hopefully things will calm down SOON and you'll both be on your way to full recoveries.
We love you guys.
Love, Teresa & Emma
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