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ALICIA'S JOURNEY WITH FA

Welcome to our blog where we try to keep family & friends updated on our daughter/granddaughter, Alicia, who is one of the most adorable five year olds ever! She was born with a very rare & aggressive disease, called Fanconi anemia, which causes bone marrow failure, as well as different cancers . She is currently undergoing a bone marrow transplant to try to cure her bone marrow issues. If you'd like to gain a little more background, please visit our first entry HERE.



Showing posts with label Cincinnati. Show all posts
Showing posts with label Cincinnati. Show all posts

Saturday, May 16, 2009

Going to Cincinnati

Ok, so Alicia is coming back to Cincinnati tomorrow evening. She had an X-ray to check the feeding tube placement and they saw a bunch of air in her stomach. So they did a CT scan and found an obstruction to her bowel. They started her on antibiotics and a bunch of other things. She is doing ok and Dr Davies is watching as carefully as she can from here. They are constantly calling the hospital. She will safely be back in their care soon enough!

There in Wichita they were going to take her to surgery, they told Michelle she would probably come out with a colostomy, she said I am not signing anything until we speak with Dr. Davies. They called her and Dr Davies said no way, she is a no cutting zone. I will let Michelle tell you all more later.

Thanks for checking in.
Krisstina