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ALICIA'S JOURNEY WITH FA

Welcome to our blog where we try to keep family & friends updated on our daughter/granddaughter, Alicia, who is one of the most adorable five year olds ever! She was born with a very rare & aggressive disease, called Fanconi anemia, which causes bone marrow failure, as well as different cancers . She is currently undergoing a bone marrow transplant to try to cure her bone marrow issues. If you'd like to gain a little more background, please visit our first entry HERE.



Wednesday, August 30, 2006

August 2006 Guestbook Entries

Congrads on another grandbaby coming...I will be keeping you in my thoughts and prayers ..Praying you find the perfect dctr for ALicia..Prayers and Bearhugs Love, Marci The Prayer Bears
http://www.freewebs.com/prayerbears
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Marci Connell
Valdosta, GA USA - Wednesday, August 9, 2006 6:32 PM CDT

Happy New Grandma! Umm....congratulations about another grandchild on the way!
I will be praying that your trip to Cinny will go well and that Alicia will not be overly distressed.
I love you guys,
Love Charisse
(FA Adult)
www3.caringbridge.com/oceania/charisse
Charisse Howard-Jones/The Prayer Bears
Adelaide, SA Australia - Tuesday, August 8, 2006 8:08 AM CDT
Hi Alicia,
This is Nicole Fauver!!!I am happy that you are doing good!!!Have a great time!!!!!!
Love ya,
Nicole
Nicole Fauver
Arlington, WA USA - Monday, August 7, 2006 3:58 PM CDT
just stopping in to say Hi and hope that everything goes well with your trip to Ohio. We missed camp this year too...But we will be there next year too!!! (that is if everything with Amelia continues to go good)We are going to Minneapolis this week for her to have a bone marrow biopsy and see Dr. Wagner. I pray that she does fine!!! Well give Alicia a big hug from us and tell her that Amelia said HELLO!!!!
Blessings,
Kelly Bennett
~Marshall and Amelia~
Covington, Louisiana - Sunday, August 6, 2006 8:15 PM CDT

Posted by Teresa at 10:49 PM 0 comments  

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Tuesday, August 22, 2006

August 22, 2006

Hello,

Well we are getting ready for our trip to Cincinnati. We leave this Friday the 25th. I'm not looking forward to everything Alicia is getting ready to go through but I know the Lord has Alicia in his palm and will take good care of her.

She is having her Biopsy done on Thursday so keep her in your prayers that day. I will let everyone know how it turn out when we return.

I still haven't had any luck with deciding on a new Pediatrician for Alicia. I plan on making that my top priority when we get back.

Poor Erika is throwing up at least 3 times a day. Hopefully she will get through this part of her pregnacy soon. We are so hoping that she has a boy. I know little Alicia is going to be sooo jealous no matter what it is. I know she will be a wonderful big sister.

If anyone knows of any fun places to take Alicia in Cincinnati while we are there let me know. Thanks Krisstina for you ideas, we have already talked to guest services at Cincinnati Childrens to get passes to a couple of places.

I am so sad to hear that another child has lost her battle with this ugly disease. That is the scariest thing in the world.

Good luck to Michelle P this next week also she is going through surgery, everyone keep her in your prayers also.

Thanks again to everyone for all the support you have given me and my family. We couldn't do it without you.


Grandma Michelle

Posted by Teresa at 10:01 PM 0 comments  

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