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ALICIA'S JOURNEY WITH FA

Welcome to our blog where we try to keep family & friends updated on our daughter/granddaughter, Alicia, who is one of the most adorable five year olds ever! She was born with a very rare & aggressive disease, called Fanconi anemia, which causes bone marrow failure, as well as different cancers . She is currently undergoing a bone marrow transplant to try to cure her bone marrow issues. If you'd like to gain a little more background, please visit our first entry HERE.



Thursday, June 30, 2005

June 2005 Guestbook Entries


Love the new pictures... and happy to finally put a face with your name :) Glad Alicia is doing so well. Hope you have a blast at Camp Sunshine.
Karen (www.caringbridge.org/fl/ty)
Melbourne, FL US - Thursday, June 30, 2005 7:52 AM CDT

Great Picture Michelle,

it is so cute of you and Alicia...that is wonderful that she is learning new sign language every day!! Praying for you both heaps and heaps....and Erika as well.

Love Charisse

Charisse Howard-Jones
Adelaide, SA Australia - Wednesday, June 29, 2005 8:30 AM CDT

Love the new pictures!
See you at camp.
Bret & Nanette Foster and Family
Ryan, Nicolaus, Courtney, Kaelynn and Dianna
www.caringbridge.org/tx/dianna

Nanette Foster
Lewisville, TX USA - Wednesday, June 29, 2005 8:16 AM CDT

hi Alicia, Michelle and Erica, I found your site on Angel Brandons site, My son was in the same hospital with Brandon and Marshall. He did not have FA but sure had his own set of problems. He to was waiting for a bone marrow transplant he had aplastic anemia. He also new sign language, cause he had a speech problem. He still was the love of my life. He passed away 1 month after Brandon, he did not get his bone marrow transplant, he did have a liver transplant though.

Alicia is such a beautiful girl

www.caringbridge.org/mn/dustin

Kris, Angel Dustins Mom
- Saturday, June 25, 2005 3:22 PM CDT

Hello all,
It has been a while since I signed in, but do keep tabs on every one, Glad to hear that you got accepted for camp. It will be a lot of fun, look forward to meeting you all in person. Hope you are having a great week. Take care and will stop again soon.

Hugs and Blessings,
Kelly Bennett
Marshall 12(21 months post BMT) Amelia 5 FA-G, & Nathan 2 Non-FA

~Marshall and Amelia~
Covington, Louisiana - Saturday, June 25, 2005 9:45 AM CDT

Hello Michelle and Alicia,
what a cute photo!! I can't wait until August either for camp! Just thought I would check on how you are all doing. Praying for you.
Love Charisse/ The Prayer Bears

Charisse Howard-Jones
Adelaide, SA Australia - Sunday, June 19, 2005 6:14 AM CDT

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Hello Alicia, Erika and Michelle, It's me again, Rosey. Michelle, I'm a little worried about my last mailing. Has Alicia received her package? One was returned to me that I sent to another child as being unclaimed. But, others have received theirs. I hope Alicia is doing fine and enjoying herself. You are always in my prayers. Love and hugs, Rose
http://roseygirl7.tripod.com

Rose
SC - Tuesday, June 14, 2005 10:46 AM CDT

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Hello Alicia, I hope that you are having a nice day. You are in my prayers and always in my thoughts. Love, Rose

Rose
SC - Monday, June 13, 2005 12:34 AM CDT

I love the new photo. What a cutie!!

Dianne Ploetz

Dianne Ploetz
St. Paul, MN - Monday, June 13, 2005 11:30 AM CDT

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Hello Alicia, Erika, and Michelle, Wow, it sounds like camp is going to be a lot of fun. I'm thinking of you all and you are all in my prayers. Love and hugs, Rosey
http://roseygirl7.tripod.com

Rose
SC - Sunday, June 12, 2005 12:57 AM CDT

I didn't see these pictures last time I looked! They are so cute:-) I didn't know that Alicia had surgery on her hands to make thumbs. That is really neat. It looks really good. I think I signed your guestbook a little while back and said we weren't going to be able to make it. Well, a couple of the other mothers have pestered me (a good pester) and now we are going. We will make it work. It's just too important to go!! I think that would be so cute if Wesley, Alicia, and Emma signed to each other like Kristin wrote. Emma signs to her little friends and cousins, but they dont' always know what she is saying (often it's "stop" and "no" haha!). Can't wait to meet you!!

Take care,
Teresa

www.caringbridge.com/or/emmarose
Aloha, OR USA - Saturday, June 11, 2005 2:30 PM CDT

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Hello Alicia, I like the new picture on your page. You are a pretty little girl. Thinking of you and praying for you.
Hugs, Rose
http://roseygirl7.tripod.com

Rose
SC - Saturday, June 11, 2005 8:40 AM CDT

YEAH! Camp is almost here. How fun! Wesley is excited to meet Alicia. I wonder if Wesley, Alicia, and Emma (if she can make it) will all be trying to sign to eachother. That would be so cute. Hope all is well!
kristin young
gorham, me usa - Saturday, June 11, 2005 6:59 AM CDT

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Hello Alicia, Michelle, and Erika, I'm thinking of you. Michelle, I hope you have so much fun at camp. Alicia will make so many memories. I love you all. You are in my prayers. Love, Rose
http://roseygirl7.tripod.com
SOEW

Rose
SC - Friday, June 10, 2005 8:20 AM CDT

Hello Alicia, I have always wanted to learn sign language.
I'm vry proud of you. You are a special little girl. I love you. hugs, Rose
SOEW
HUGS AND HOPE

Rose
SC - Thursday, June 9, 2005 8:31 AM CDT

Image hosted by Photobucket.comThe Prayer Bears

Praying those counts will go up and stay up! Hopefully, we will get to camp this year too! See ya then!
Bear Hugs,

Donna Boggs, Papa Bear’s Site
Coeburn, Va - Thursday, June 9, 2005 8:19 AM CDT

That's a bit frustrating that her counts haven't gone up yet - hopefully with more time they will. I know that often they do. How exciting that she is learning more sign!! Emma is as well. It's fun to see how quickly they can learn. Hoping and praying that things are going well. Oh...and just so you know, it looks like we might not be able to go to camp. We are moving to Texas a little sooner and we will be needing to pack during camp. Hopefully we'll be able to meet when we are in Wichita to visit my grandparents/other family.

Take care!
Love,
Teresa

www.caringbridge.com/or/emmarose
Aloha, OR USA - Thursday, June 9, 2005 2:10 AM CDT

Good Morning Alicia, I'm thinking about you. Michelle let me know if Alicia is doing okay if you have time. Alicia, I love you. Hugs, Rose

Rose
SC - Wednesday, June 8, 2005 9:20 AM CDT

Just checking in. Can not wait to see you guys at Camp! Big hugs!
Krisstina, Jo, & Jacy

caringbridge.org/ks/jojacybox
Cincy, OH USA - Wednesday, June 8, 2005 1:34 AM CDT

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Hello Alicia, Dropping by to say good morning to you. Remember I love you. Have a nice day. Give your mom and grandma a big hug for me. Hugs to you, Rose
http://roseygirl7.tripod.com
dabbles and doodles
hugs and hope

Rose
SC - Tuesday, June 7, 2005 9:17 AM CDT

Hello Alicia, I hope you had a nice weekend. My weekend was very busy. I'm thinking about you, Erika, and Michelle. I love you Alicia. Let me know when you receive your little package I sent you.
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sunshine on eagles wings
http://roseygirl7.tripod.com

Rose
SC - Monday, June 6, 2005 11:34 AM CDT

Good Morning Alicia, Erika, and Michelle, Sorry to hear about your computer. I've had computer problems before so I know what that is like. I hope you all have a nice weekend and Alicia feels well. Thank you for your nice comments. I have Alicia a small package ready to be mailed. Just something I made for her. If you will email me your address or an address where I can mail it. I love all of you. Love and hugs, Rose

Rose
SC - Saturday, June 4, 2005 10:37 AM CDT

Just checking in to see how things are going:-) Can't wiat to meet you guys someday!! Hope all is going well.

Take care,
Teresa

www.caringbridge.com/or/emmarose
Aloha, OR USA - Saturday, June 4, 2005 4:30 AM CDT

Hello Alicia, Erika, and Michelle, Good morning to you all. I hope Alicia is having a good day. Michelle, will you let me know how Alicia is doing this week. I'm thinking of you all and praying for you. Love and hugs, Rose
http://roseygirl7.tripod.com
Sunshine on Eagles Wings
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Rose
SC USA - Friday, June 3, 2005 10:51 AM CDT

Hello Alicia, Michelle, and Erika, This is Rose and I just wanted to leave a rose for Alicia from Rose. Hope you all have a nice day. Alicia is in my prayers. Ilove you all. Hugs, Rosey

Rose
SC USA - Thursday, June 2, 2005 8:12 AM CDT

Hello Alicia, Erika, and Michelle, This is Rose back to say hi to you all. Let you know I'm thinking of you. Alicia I hope you are having a good day. I'll be back later to check on you. I love you bunches!!
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http://roseygirl7.tripod.com
Sunshine on Eagles Wings Sending sunshine with love

Rose
SC USA - Wednesday, June 1, 2005 10:55 AM CDT

Wednesday, June 8, 2005

June 8, 2005

Sorry it has been so long since I've given an update on Alicia. She is doing just fine. We are still checking her counts every week but there hasn't been sny changes, her platelets are still low, but we are watching them closely.

Alicia is still learning more sign language every day. She comes home every day and teaches me a new word, I am so proud of her.

We are getting very excited about camp in august, I think I'm the most excited.

I will try to keep you updated more frequently.

Your friend

Michelle