Alicia's Journey with FA: September 2006

You know I'm still here praying for you!!!!!!
Ps 27:14 Wait on the LORD: be of good courage, and he shall strengthen thine heart: wait, I say, on the LORD.
The Prayer Bears Website
Lynn
Seattle, WA - Monday, September 25, 2006 1:26 AM CDT

Still a privilege to be able to pray for you!!!!!!
Ps 27:1 The LORD is my light and my salvation; whom shall I fear? the LORD is the strength of my life; of whom shall I be afraid?
The Prayer Bears Website
Lynn
Seattle, WA - Friday, September 22, 2006 8:04 PM CDT

LOVE ALWAYS BRENDAMY LOVING DAD'S SITE
EDMONTON ,ALBERTA

, - Thursday, September 21, 2006 11:09 PM CDT

Lifting you up in prayer right now, knowing that the Lord is the ONLY source of help and comfort.
Ps.86:7 In the day of my trouble I will call upon thee: for thou wilt answer me.
The Prayer Bears Website
Lynn
Seattle, WA - Wednesday, September 20, 2006 7:46 PM CDT

Continuing to pray for you. These verses are really special. I pray they give you comfort.
Psalm 61:1-4: "Hear my cry, O God; attend unto my prayer. From the end of the earth will I cry unto thee, when my heart is overwhelmed: lead me to the rock that is higher than I. For thou hast been a shelter for me, and a strong tower from the enemy. I will abide in thy tabernacle for ever: I will trust in the covert of thy wings. Selah."
The Prayer Bears Website
Lynn
Seattle, WA - Monday, September 18, 2006 11:35 PM CDT

Still here and continuing to pray for ALicia.
Jennifer A from the prayer bears and ones who care
Carrolton, Texas - Monday, September 18, 2006 2:01 AM CDT

Stopping by to check and see how you're doing. Know that I'm praying as always!
Ps 40:3 And he hath put a new song in my mouth, even praise unto our God: many shall see it, and fear, and shall trust in the LORD.
The Prayer Bears Website
Lynn
Seattle, WA - Sunday, September 17, 2006 0:55 AM CDT

It's hard finding different ways to say "I'm praying." Know that I AM praying for you right now!
Ps 18:30 As for God, his way is perfect: the word of the LORD is tried: he is a buckler to all those that trust in him.
The Prayer Bears Website
Lynn
Seattle, WA - Thursday, September 14, 2006 10:38 PM CDT

Praying as always for you!!!!!!!!!!
Eph 6:18 Praying always with all prayer and supplication in the Spirit, and watching thereunto with all perseverance and supplication for all saints;
The Prayer Bears Website
Lynn
Seattle, WA - Wednesday, September 13, 2006 0:37 AM CDT

Prayin for ya, Cheryl
A prayerbear in Pa.
cheryl taggart
levittown, pa - Tuesday, September 12, 2006 7:26 PM CDT

Hello!
Just wanted to let you know that Dianna also had adnormal cells, but the last bone marrow they were fine.
Try not to worry, but I know it is easier said than done!
I will keep you and your family in my thoughts and prayers.
Nanette Foster (Dianna's Mommy)
www.caringbridge.org/tx/dianna
Nanette Foster
Lewisville, TX USA - Tuesday, September 12, 2006 12:56 AM CDT

The Prayer Bears are Praying For You!

Hang in there! Always ask if you do not understand! Robin is always good at explaining everything!
We'll keep checking in on you!
Blessings and Bear Hugs,

Donna Boggs, Papa Bear’s Site
Coeburn, Va - Tuesday, September 12, 2006 11:11 AM CDT

Hi Michelle. I'm sorry I'm just now signing your guestbook, but things have been pretty hectic with me and my husband lately. Anyway, I just wanted to lett you know that Alicia is in my prayers and you are as well.
Jennifer A from the prayer bears and ones who care
Carrolton, Texas - Tuesday, September 12, 2006 6:32 AM CDT

Thank you for taking the time to sign Justin's guestbook. We will be praying for healing. God Bless.
Kristi Anderson
Wesson, MS 39191 - Monday, September 11, 2006 8:44 PM CDT

Getting on here late tonight...stopping by quickly to let you know that you're in my thoughts and prayers so much right now!
Rom 8:27 And he that searcheth the hearts knoweth what is the mind of the Spirit, because he maketh intercession for the saints according to the will of God.
The Prayer Bears Website
Lynn
Seattle, WA - Monday, September 11, 2006 1:06 AM CDT

All Always.
Sending love hugs & prayers to you always.
PAM STURGILL www.freewebs.com/prayerbears
- Saturday, September 9, 2006 5:18 PM CDT

Hi Grandma,In times like these, it's not easy to give words of hope, it's not easy to keep the faith, but do it anyway. Don't loose hope. That's the worse thing you can do. Just always be there for her, always by her side. Give her the world and the Lord will be with you and her giving you all the strength needed to continue. Alicia will be okay.
Maria
Juncos, Puerto Rico - Saturday, September 9, 2006 6:11 AM CDT

Know that you're in my thoughts and prayers!
Prov 3:5 Trust in the LORD with all thine heart; and lean not unto thine own understanding.
The Prayer Bears Website
Lynn
Seattle, WA - Friday, September 8, 2006 11:46 PM CDT

Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy (MPS-III) BENNETT CHILDREN'S JOURNAL
PRAYER BEARS WEBSITE, - Friday, September 8, 2006 11:28 PM CDT

Alicia and Michelle,
I just wanted to let you know that you guys will be in our prayers. It can be all so confusing with results and we pray that this chromosome change does vanish. It can be very scary as well. ALways here if you need me.
Love Charisse
(FA Adult)
www3.caringbridge.com/oceania/charisse
Charisse HOward-JOnes/The Prayer Bears
Adelaide, SA Australia - Friday, September 8, 2006 8:39 PM CDT

Alicia - I just wanted to say HI to you and tell you how wonderful your new pictures are. You most certainly are a princess so one of these days you must come to visit me in London and see where the Queen lives in her palace.
I hope you are keeping well sweetheart
Thinking of you lots and lots
from Gail
Gail Richardson
London, England - Friday, September 8, 2006 3:06 PM CDT

Alicia, Congrads on being BCOW, I am so excited for you..You are in my prayers each and everyday..Prayers and Bearhugs Love, marci The Prayer Bears
http://www.freewebs.com/prayerbears

Marci Connell
Valdosta, Ga USa - Tuesday, September 5, 2006 5:00 PM CDT

Alicia
Congratulation on being bear cub of the week sweetheart.
Keeping you very much in my thoughts ^ prayers always.
Sending love hugs & prayers to you always.

PAM STURGILL www.freewebs.com/prayerbears
- Tuesday, September 5, 2006 2:23 PM CDT

Alicia,

You are such a brave little girl. I am so glad that you were right where you were when you needed the doctors and I am glad that they were able to help you right away. That must have been really scary. But I know that God was right there with you and that he will continue to be there for you. You take care of your self. Lots of bear hugs and bear prayers going up for you.
Barbara Robinson (a prayer bear)
Mayfower, AR United States - Tuesday, September 5, 2006 8:24 AM CDT

Wow! What a scary incident! At least you were in the right place when all that happened. I'm glad everyone took such good care of Alicia and I'm glad you at least got to go to the aquarium and zoo. Wesley and I stopped there too our last trip. Hang in there and I hope Alicia's results turn out okay.
Kristin Young
Gorham, me usa - Monday, September 4, 2006 8:03 PM CDT

hugs and prayers
cheryl, a prayerbear in pa.
cheryl taggart
levittown, pa - Monday, September 4, 2006 6:58 PM CDT

Just stopping by to say hi and that you have lots of people praying for you. Congratulations on being the Cub of the Week.

http://www.freewebs.com/prayerbears
Irene
Colstrip, MT - Monday, September 4, 2006 3:46 PM CDT

Congratulations on being Cub of the Week!!!

Alicia, you are such a darling little lady. I hope that while you are in Cincy, you are able to enjoy yourselves some.
We'll be keeping you all in our thoughts and in our prayers.

Love and hugs,
Eva and Rodney ~The Prayer Bears~
www.caringbridge.org/mi/rodneyreeves, - Monday, September 4, 2006 3:28 PM CDT

PrayerBears
Susan Ott
Bearville, - Monday, September 4, 2006 2:16 PM CDT

Just wanted to say hi and I hope all the test results turn out positive...as positive as the pregnancy test! How exciting! I know Alicia will hug that sibling like only she can. I remember what a good hugger she was at camp. Can't wait to get another one next year. Take care. Wesley sends hugs.
Kristin Young
Gorham, me usa - Friday, September 1, 2006 9:11 PM CDT

Friday, September 8, 2006 7:14 PM CDT

Robin called me around 3pm today with some of Alicia's results from her Biopsy last week. I could tell from the sound of her voice that everything wasn't going to be good news.

She said that Alicia would not be eligible for the collectin study I had mentioned in my last update. She said her Aspiration and Biopsy was fine but There is a fish study they also do which they do three different tests which I don't quite understand yet. the first 2 were fine but the third one ( monosomy 77???) detected an abnormality in one of her cells, the one that has to do with forming Lukemia. This all still don't make since to me so if I'm saying it all wrong I'm sorry. Any way the said it was only 4.3% which is low but they want to keep a very close eye on her Bone marrow. They are going to do another biopsy in 3 months to see if there is any changes, hopefully it will go away which robin said it has with a couple of people but if it doesn't or gets worse than they will be considering going to transplant. They are going to do at least 2 more biopsys in the next 6 months so everyone please pray that just goes away!!!!SHE IS TOO YOUNG!!!!!

They are also doing her HLA typing they just need a little more blood to complete the test and then they will put it in the registary to find possible match's for her.

This has been a very bad day for me. Alicia is my very best friend so will everyone please keep her in your prayers.

I hope everyone like the pictures on the front of her page. They are of our trip to Cincinnati last week.

A very worried grandma

Monday, September 4, 2006 7:17 PM CDT

HELLO,

WE FINALLY MADE IT BACK FROM CINCINNATI. AND ALICIA IS CUB OF THE WEEK HOW COOL, THANKS EVERYONE FOR CARING!!!

THAT WAS A VERY LONG TRIP WE JUST HAD. WE ARRIVED IN CINCINNATI ON MONDAY AFTER SPENDING A COUPLE OF DAYS WITH FAMILY IN KANSAS CITY. ALICIA'S APPOINTMENTS DIDN'START TIL WEDNESDAY SO WE MADE SURE SHE HAD A LOT OF FUN MONDAY AND TUESDAY. MONDAY WE TOOK HER TO THE AQUARIUM IN NEWPORT, THAT PLACE WAS AWESOME WE HAD SO MUCH FUN (ALICIA EVEN PETTED A SHARK)I HAVE SOME REALLY COOL PICTURES I WILL POST AS SOON AS I CAN. TUESDAY WE TOOK HER TO THE ZOO, HER FAVORITE WAS THE MONKEY'S. ALICIA LAUGHED SOOOO HARD AT THEM.

HER APPOINTMENTS ON WEDNESDAY WENT FINE. SHE SEEN DR. WILLIAMS AT 830 AND AUDIOLOGY IN THE AFTERNOON. HER BIOPSY WAS AT 630 THURSDAY MORNING, THAT WAS THE FIRST TIME I HAD EVER SEEN HER BE PUT TO SLEEP, I CRIED WHEN HER EYES SHUT BUT MY TWIN SISTER WAS THERE AND TOLD ME IT WAS OK AND BE STRONG SO I GOT THROUGH THAT PART OF IT. SHE WOKE UP ABOUT 730 AND EVERYTHING WENT WELL DR HARRIS SAID. HER PLATELETS ARE ALREADY DOWN TO 30,000 SO HE WAS EXTRA CAREFUL FOR BLEEDING BUT HE SAID IT WENT FINE. AFTER WE TALKED TO DR. HARRIS AND DR. DAVIES WE TOOK ALICIA BACK TO THE HOTEL FOR A NAP BEFORE HER NEXT APPOINTMENT A 1PM WITH THE DENISTIST (WHICH SHE NEVER MADE IT TO)I WOKE HER UP FROM HER NAP AND SHE WAS BURNING UP. WE STARTED FOR THE HOSPITAL SO I DECIDED TO CALL ROBIN THE RN IN THE FA CENTER AND SHE SAID TO BRING HER RIGHT TO THEM. THEY TOOK HER TEMP AND IT WAS ALREADUY UP TO 101.2 AND IT WENT TO 103 WITHIN THE NEXT 30 MIN. THEY STARTED GIVING HER ANTIBIOTICS THE FIRST WAS SOMEHTING THAT STARTED WITH A Z I CAN'T REMEMBER THE NAME SHE WAS STILL BURNING UP SHE WOULDN'T LEAVE MY LAP THE WHOLE TIME. THEN THEY STARTED HER NEXT ANTIBIOTIC WHICH WAS CALLED VANCOMIOCIN ( I WILLNEVER FORGET THAT NAME) ABOUT HALF WAY THROUGH THE MEDICATION ALICIA KEPT SAYING SHE HAD TO GO POTTY ( YES WE ARE OVER THAT HILL!!!!)WHEN I TOOK HER TO THE BATHROOM I SEEN BUMPS ALL OVER HER LITTLE PRIVATE PART, I OPENED THE DOOT TO GET THE DOCTORS AND TURNED BACK AROUN AND BY THEN THE HIVES WERE ALL OVER HER BODY. EVEN IN HER HAIR. HER EYES EVEN WERE SWELLING THAT SCARED THE CRAP OUT OF ME. THEY STARTED PUTTIN BENADRYL IN HER IV (THANK GOODNESS I HAD THEM KEEP HER IV IN AFER HER BIOPSY)THE BENADRYL TOOK THE HIVES AWAY IMMIDIATLY. FROM THERE WE WENT RIGHT TO THE BMT FLOOR IN THE HOSPITAL AND WE WERE THERE FOR TWO NIGHTS.

SHES FINE NOW, I THINK HER LITTLE BODY JUST HAD TO MUCH AND SHE DIDN'T HAVE ENOUGH FLUIDS IN HER. EVERYONE AT THE HOSPITAL WAS SO MUCH HELP. THEY ARE AWESOME PEOPLE, GRETTA WITH GUEST SERVICES WAS SUCH A HELP, THANKS GRETTA. AND BETH AND ROBIN WERE RIGHT ON TOP OF ALICIA WHEN THIS WAS HAPPENING, THEY HELPED ME A WHOLE BUNCH, THANKS BETH AND ROBIN. THANK YOU TO EMILY AND ANDREA ALSO.

HOPEFULLY I WILL GET THE PICTURES ON HERE SOON I WILL LET YOU KNOW WHEN I DO.

ERIKA GOES TO THE DOCTOR FOR THE FIRST TIME THIS WEEK, I'M EXCITED ABOUT THAT ALSO.

THANKS AGIN FOR MAKING ALICIA CUB OF THE WEEK. THAT IS THE COOLEST.

GRANDMA MICHELLE