Alicia's Journey with FA: January 2007

ALICIA'S JOURNEY WITH FA

Wednesday, January 31, 2007

January 2007 Guestbook Entries

Just wanted to let you know I am thinking about you as you get Alicia's results and so on!
Love Charisse
(FA Adult)
www3.caringbridge.com/oceania/charisse
Charisse Howard-Jones/The Prayer Bears
Adelaide, SA Australia - Saturday, February 10, 2007 6:19 PM CST

What's up neice, This is your aunt lisa letting you know that I love you very much and prayer's are being sent to you everyday, LOVE YOU SWEETIE,
LISA FISHER
HOUSTON , TX - Tuesday, January 30, 2007 8:44 PM CST

Just wanted to stop in and say hello and let you know we are still thinking of you all and sending prayers your way....
Blessings,
Kelly Bennett & Family

Marshall and Amelia
Covington , Louisiana - Tuesday, January 23, 2007 10:18 PM CST

Hi,Alicia your ant Lisa,uncle Keith and DeAndre are praying for u everyday god is watching over u and is going to continue blessing and anserwing our prairs we love u and allways will
Lisa Fisher
Houston, tx - Tuesday, January 9, 2007 9:52 AM CST

Thank you for passing along the great news!!! You all are still in my prayers!!! Give Alicia a hug from me!
jana cain
- Monday, January 8, 2007 3:26 PM CST

Praise the Lord for no signs of leukemia! You all are still in my prayers. Have a wonderful weekend.
Jennifer from the prayer bears
Texas - Friday, January 5, 2007 7:18 PM CST

Oh Michelle,
I am still just as excited about Alicia's new news as when you first told me. I believe that God performs miracles all the time and when we get to see one and experience one personally in our family and life it is so amazing and you can feel the mercy, graciousness and love of Jesus pouring out. Alicia is so special and I am so happy. It is my pleasure to support in prayer and over email and do anything that I can. Alan and I love you guys. I believe God can heal...I believe He can do so much more than we can every imagine.
Lots of love,
Charisse
(FA Adult)
www3.caringbridge.com/oceania/charisse
Charisse Howard-Jones/The Prayer Bears
Adelaide, SA Australia - Friday, January 5, 2007 6:56 AM CST

our family believesin miracles. i think you have to or you'll never see any.all things are for GODS glory. PRAISE GOD! we have a son on caringbridge www.caringbridge.org/visit/connorbowden
jason bowden
boiling springs, sc us - Friday, January 5, 2007 5:59 AM CST

Hi There,
My name is Sarah and I'm Alicia's Great Aunt(Michelle's Little Sister). I just wanted to say that everyone in our family is so greatful to have found out the news that Alicia is doing fine! Hooray!!! Also, I would like to say a huge "Thank You" to everyone who has been supporting my sister and my niece through these trying times with Alicia. Thanks Again!
Sarah Black-Nunez
Wichita, KS USA - Friday, January 5, 2007 1:51 AM CST

Praise The Lord What great news an what a great way to start the new year.
Keeping your family in my prayers always.
all always.
PAM STURGILL www.freewebs.com/prayerbears
- Thursday, January 4, 2007 4:38 PM CST

Michelle and Alicia,
Thank you for the phone call the other day! My thoughts and prayers are with you and your family! We love and miss Alicia at Rainbows!
Kimberly Becker
Wichita, KS - Thursday, January 4, 2007 12:41 AM CST

I am so happy to hear the good news! Dianne Ploetz
Dianne Ploetz
St. Paul, MN - Thursday, January 4, 2007 10:55 AM CST

PRAISE GOD!!!! I AM THRILLED WITH THIS NEWS!!!!
WHAT A WAY TO START THE DAY!!!!!
((((HUGS)))))
Kayla
Charlotte, NC USA - Thursday, January 4, 2007 9:22 AM CST

My name is Jana. I was Alicia's speech path at Rainbows. My thought and prayers are with you all! Give Alicia my love.
Jana Cain
Wichita, Ks USA - Thursday, January 4, 2007 9:14 AM CST

Hi Michelle,

I worked with Alicia last year at Rainbows and I'm so glad to hear the wonderful news that you received yesterday! Alicia is a very special and beautiful child and we all miss her here at Rainbows! I hope that you continue to get good news because no one deserves it more!
Laura Bonin
Wichita, ks USA - Thursday, January 4, 2007 9:05 AM CST

YEAH!!!! God is good all the time!!!!!!!!!!!

We'll keep praying for precious Alicia -
Love,
The Ross Family
www.caringbridge.com/ca/karlyross
Nancy Ross
- Thursday, January 4, 2007 8:41 AM CST

The Prayer Bears are Praying For You!

Michelle,

Hang in there and know you are being prayed for from all over the world! Keep us posted!
Blessings and lots of bear Hugs,

Donna Boggs, Papa Bear’s Site
Coeburn, VA - Wednesday, January 3, 2007 12:29 AM CST

Michelle--- I was just reading your guestbook and was amazed at how many people have Alicia in their thoughts and hearts. It's a wonderful world when complete strangers will be there for you. Your mom --Barb
Barbara Black
Wichita, Ks - Wednesday, January 3, 2007 10:35 AM CST

Alicia and Michelle..

Our thoughts and prayers are with you!

Love and hugs,
Eva and Rodney~The Prayer Bears~
www.caringbridge.org/mi/rodneyreeves, - Tuesday, January 2, 2007 7:36 PM CST

You are all in my prayers. With love, Dianne Ploetz
Dianne Ploetz
St. Paul, MN - Tuesday, January 2, 2007 3:10 PM CST

Michelle,
You and Alicia are in my thoughts and prayers.
Nanette Foster (Dianna's Mom)
www.caringbridge.org/tx/dianna
Nanette Foster
Lewisville, TX USA - Tuesday, January 2, 2007 10:16 AM CST

Happy New Year Alicia & Michelle! I signed your guest book a while back, and was just checking in on you. I live in Cincinnati, and I am also the mother of another FA child who underwent bone marrow transplant in 2005. Though transplant is a difficult time, it is also the means to make Alicia healthy and strong again, so do not despair! Know that many people will be praying you through this time, and in the end, Alicia will be healthier and stronger than she has ever been. If my family can assist you in any way (we know Cincinnati Children's Hospital inside and out!!), please call us. We have been where you are, and we know this is a scary time. The doctors and nurses at Cincinnati Children's are among the best in the world in treating FA patients, and they will take VERY good care of Alicia. God will take care of the rest. The Ronald McDonald House is right next door to the hospital, and it is a magnificent organization. Perhaps we will meet while you are in Cincinnati, as I am planning on bringing a group of friends to the Ronald McDonald House in the next month or so to provide dinner to the residents! Do not despair - - God will see your family through this. We will pray for a very smooth trip through transplant for Alicia. Best wishes and God bless.

Barb McKee (oh/erinmckee)
Barbara McKee
Bethel, OH USA - Tuesday, January 2, 2007 8:57 AM CST

Monday, January 1, 2007

January 2007 entries

Thursday, January 4, 2007 10:57 PM CST

Today has been a great day!!! I feel like a ton of bricks has been lifted off my shoulders. The last week has been a complete mess and today I haven't felt a bit af stress. I am so thankful for all your prayers, GOD IS SO GREAT!!! I know that alot of people all over the world has been praying for Alicia this past week and all the prayers were answered. Thank you again so much.

I have to admit though that I have been a little mad. I can't believe that a pathologist here in Kansas could make so bad of a mistake as he did. My whole world has been turned upside down because of someone reading her tests wrong, I even gave a notice at my job and started to exit Alicia out of school. I can say that all the calls I made today with the news of Alicia felt way better than the calls i made last week. I'm not mad anymore though, I forgive who ever the pathologist is. All that matters is that Alicia is fine for now and all the rest don't matter.

Dr. Williams did say that he wants to do another biopsy in the middle of Febuary just to make sure that the results are the same as he seen Wensday. I will not loose my hope and faith that they will be fine.

I believe God was sending me a message or maybe a wake up call, I know that no one is promised tomorrow and I should make every day count that I get to spend with Alicia. Who knows when her time will come for transplant and I believe that he was telling me to be prepared next time, and maybe it will be a little easier to accept because this totally freaked me out. BUT MY BABY IS FINE FOR NOW.

I am so glad that I won't be missing my grandsons birth. That was bothering me alot also but I knew I had to focus on Alicia but now I will be here!!!

I want to thank everyone again so much for all your support. I wouldn't of been able to get through that without you, Thanks so much.

I want to give a big thanks to Krisstina, Dianne, Charisse, Teresa, Kelly, Lisa, Robin, Suzanne, The prayer bears, Dr. Williams, Roxanne, Sallie, my mom, Kayla, my whole family and my FA family also. I hope I didn't miss anyone, I am just sooooooooo happt.

Grandma michelle

Wednesday, January 3, 2007 7:09 PM CST

WAIT TIL YOU READ THIS!!!!!!

I AM A TRUE BELIEVER THAT GOD GIVES MIRACLES!!! HE HEARD ALL THE MANY PRAYERS THAT EVERYONE WAS PRAYING FOR ALICIA. GOD IS WONDERFUL!!!!!!

I GOT A CALL FROM DR. WILLIAMS AT 4 PM TODAY AND I COULD HEAR THE SMILE IN HIS VOICE. HE SAID THAT HE GOT THE SLIDES FROM KANSAS AND HIM AND DR. DAVIS BOTH AGREE THAT THE PATHOLIGISTS REPORT IS NOT CORRECT. HE SAID THAT HE DOES NOT SEE ANY SIGNS OF LUKEMIA!!!!!! HE SAID HE WILL DO A FOLLOW UP BIOPSY IN FEBUARY JUST TO MAKE SURE BUT HE SAID ALICIAS TRANSPLANT IS CANCELED!!!!! THIS IS A MIRACLE!!! I AM SOOOOO HAPPY!!!

I WILL UPDATE MORE TOMORROW BUT I JUST WANTED EVERYONE TO KNOW.

THANK YOU SO MUCH FOR ALL YOUR PRAYERS, YOU ARE THE REASON SHE IS NOT GOING TO TRANSPLANT.

MICHELLE

Tuesday, January 2, 2007 7:08 PM CST

Today has been a little better for me. Im taking it one day at a time. I know that Alicia needs me to be strong so I am getting stronger every day.

I didn't celebrate New Years, Alicia and me went to bed early and skipped any celebrations. In 2008 we will have a big celebration and make up for this years.

I caught myself gettin upset this weekend and little alicia went and got her pillow and crawled up in my lap and rubbed my leg and said its ok meema, at that moment I thought to myself who is supposed to comforting who? She needs me more than ever now so I promised to get myself together, this is going to be a hundred times harder for her not me.

Cincinnati called today and said that her blast count was at 7% and she might need Chemo before her transplant to get her Lukemia in remision, so we might have to go sooner than we thought. They also said they found 2 possible matches in the national donor registary so that is a bit of good news.

I will keep everyone updated on any new results. I want to thank everyone for all the support you have given me in the las couple of days. I couldn't do this without friends like you.

Michelle