CLICK HERE FOR THOUSANDS OF FREE BLOGGER TEMPLATES »

ALICIA'S JOURNEY WITH FA

Welcome to our blog where we try to keep family & friends updated on our daughter/granddaughter, Alicia, who is one of the most adorable five year olds ever! She was born with a very rare & aggressive disease, called Fanconi anemia, which causes bone marrow failure, as well as different cancers . She is currently undergoing a bone marrow transplant to try to cure her bone marrow issues. If you'd like to gain a little more background, please visit our first entry HERE.



Saturday, March 31, 2007

March 2007 Guestbook Entries

Hi Alicia and Family,
My name is Jenna and I came across Alicia's site. Alicia is an inspiration and a fighter. Alicia is in my thoughts and prayers.
www.caringbridge.org/canada/jenna

Jenna
Kamloops, BC Canada - Thursday, March 29, 2007 0:10 AM CDT


christian glitter graphics myspace code christian images
Christian Glitter by www.christianglitter.com


Awwwwwwwwwww! Congrats!
Blessings and Bear Hugs,

Donna Boggs, Papa Bear’s Site
Coeburn, Va - Monday, March 19, 2007 12:33 AM CDT

CONGRATULATIONS!
May God grant you always
A sunbeam to warm you,
A moonbeam to charm you,
A sheltering angel
So nothing can harm you.
Old Irish Blessing
The Prayer Bears


Praying for you,
Barb, John, Shawn,
Shannon, & Colleen
www.caringbridge.org/page/shannon

Prayer Bear Barb
- Friday, March 16, 2007 10:10 AM CDT

Photo Sharing and Video Hosting at Photobucket

Congratulations on your new baby boy!!!

Jan C. ~A Prayer Bear ~ www.freewebs.com/prayerbear
- Friday, March 16, 2007 10:06 AM CDT

myspace layouts, myspace codes, glitter graphics
myspace layouts, myspace codes, glitter graphics

Wishing you all the best!!

Alicia...you are now the big sister!! How cool is that!! Big sisters are a lot of fun! Your new baby brother is going to grow up, looking up to you...coming to you for advice and probably being a little pain in the backside, but you will love him, no matter what!!
Always remember...
myspace layouts, myspace codes, glitter graphics

Love and bearhugs to you all...

Eva and Rodney~The Prayer Bears~
www.caringbridge.org/mi/rodneyreeves, - Friday, March 16, 2007 5:06 AM CDT

May God grant you always
A sunbeam to warm you,
A moonbeam to charm you,
A sheltering angel
So nothing can harm you.
Old Irish Blessing

Praying for you,
Barb, John, Shawn,
Shannon, & Colleen
www.caringbridge.org/page/shannon
The Prayer Bears

Prayer Bear Barb
- Thursday, March 15, 2007 4:59 PM CDT

Hey Alicia,
I am so happy about your results. Praise the Lord for the decrease in blast count to 2%. Praise Him for the vanishing of monosomy 7. God is good. You keep being stong sweetie.
Love Charisse
(FA Adult)
www3.caringbridge.com/oceania/charisse

Charisse Howard-Jones/The Prayer Bears
Adelaide, SA Australia - Saturday, March 10, 2007 7:14 AM CST

HEY SWEETIE THIS IS YOUR MOTHER I JUST WANTED YOU TO KNOW I LOVE YOU ALOT.I KNOW EVERYTHING IS GOING GOOD WITH YOU RIGHT KNOW AND YOUR A VERY STRONG BABY. I LOVE YOU.
YOUR MOTHER
WICHITA, KS - Tuesday, March 6, 2007 10:38 PM CST

Thursday, March 1, 2007

Marcy 2007 entries

Thursday, March 22, 2007 11:24 AM CDT

Hello everyone,

Lil Anshon is one week old today. He is doing so well. Erika is taking him to the doctor this afternoon for his one week check up. He is such a good little baby, Im at Erikas now watching him while she goes to the doctor to get her staples removed.

I was right about Alicia being jelous. She has been staying with me since Lil Anshon was born, Erika is still moving very slow and Alicia is such a little busy body. We were over Erika's Sunday and the very first time I picked up lil Anshon Alicia wasn't having it. She jumped up right in my lap and wouldn't get down so I had to put the baby down. We are going to have to work on sharing Mee-ma. She also tried to jump off the porch and Erika had to catch her, Erika said that felt like she was ripping open inside. Hopefully by next week Erika will be feeling better so Alicia can go home. She starts back to school Monday, so I think we will spend Sunday again so Alicia can get used to being around the baby and being careful with Erika.

We finally found a Pediatician here that we like, she has a lot of special need children as patients and she is very eager to learn all she can about FA. That made me feel at ease finally.

I will update later, the baby is stirring so I think he might need a dry diaper, ( its so weird having a little boy)

I hope all is well with everyone.

Michelle


Thursday, March 15, 2007 6:43 PM CDT

HELLO EVERYONE,

I BECAME ANOTHER MEE-MA TODAY. ALICIAS LITTLE BROTHER WAS BORN THIS MORNING AT 8:30 AM. ERIKA DID JUST FINE DURING HER C-SECTION. "LIL ANSHON" IS SOOOOOO CUTE. HE WEIGHED 7 LBS 15 OZ.

OF COURSE THE FIRST THING I DID WAS COUNT HIS FINGERS AND THEY WERE ALL THERE. HE DOESN'T SHOW ANY SIGNS OF FA THAT I COULD SEE, ALTHOUGH IM NOT GETTING ANY HIGH HOPES UNTIL HIS RESULTS COME BACK.

THE TEST IS THIS EVENING. MY SISTER IS TAKING ALICIA TO THE HOSPITAL TO SEE HIM. I KNOW SHE IS GOING TO BE SO JELOUS.

MY FRIEND IS GOING TO PUT PICTURES OF HIM ON ALICIAS SIGHT THIS EVENING SO HOPEFULLY EVERYONE CAN SEE HOW CUTE HE IS. ( YES IM A PROUD GRANDMA)


MICHELLE


Sunday, March 11, 2007 6:26 PM CDT

Hello.

well we are in the waiting stages again. alicia is going to have another biopsy done in 2 months, hopefully they stay the same as last which said her monosomy 7 had dropped low enough for it to be counted and her blast count was down to 2%. i know that the monosomy can come right back so im not going to get my hopes up about it staying away because i have not had very good luck lately on having high hopes.


alicia and me did a live interview for childrens miracle network yesterday. i was kinda scared but alicia was herself and took everyones attention. i wish i had all her energy.


the count down is on... im going to be another mee-ma in 4 days. i am sooo excited. the first thing im doing is counting for 5 fingers. i just know he is going to be so cute. erika is having a c-section at 8:30 on thursday the 15th.


ill put pictures on alicias site just as soon as i get them.

michelle