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ALICIA'S JOURNEY WITH FA

Welcome to our blog where we try to keep family & friends updated on our daughter/granddaughter, Alicia, who is one of the most adorable five year olds ever! She was born with a very rare & aggressive disease, called Fanconi anemia, which causes bone marrow failure, as well as different cancers . She is currently undergoing a bone marrow transplant to try to cure her bone marrow issues. If you'd like to gain a little more background, please visit our first entry HERE.



Thursday, August 30, 2007

August 2007 Guestbook Entries

Just checking to see if you have any results yet. Hope all is well.
Kristin Young
Gorham, me usa - Friday, August 31, 2007 5:56 PM CDT

Just wanted to let you know that we are praying for good results from the biopsy. Haylee will be getting hers done next Friday. Pray for a good outcome from hers too. Alicia is such a beautiful and loving little girl. We were so glad to get to see her at camp. She and Emma are all that Haylee has talked about. They were so cute. All the same size and running and dancing. Truely a Kodak moment. Keep your chin up Mee-maw. You are doing a fine job. Praying for a good report.
Candace and Haylee Milroy

Candace Milroy
Liberty, Ky USA - Friday, August 24, 2007 10:04 AM CDT
Just wanted to let you know that we are praying for good results from the biopsy. Haylee will be getting hers done next Friday. Pray for a good outcome from hers too. Alicia is such a beautiful and loving little girl. We were so glad to get to see her at camp. She and Emma are all that Haylee has talked about. They were so cute. All the same size and running and dancing. Truely a Kodak moment. Keep your chin up Mee-maw. You are doing a fine job. Praying for a good report.
Candace and Haylee Milroy

Candace Milroy
Liberty, Ky USA - Friday, August 24, 2007 10:03 AM CDT

Heavenly Father, Physician of our souls and. bodies, who have sent Your only begotten Son and our Lord Jesus Christ to heal every sickness and infirmity, visit and heal us. Lord, please put Your Healing Hands on this body and heal. Lord, You have taught us Your word to pray for Each other that we may be healed. Please grant the gift of complete health. Please be with Doctors and guide them so that they can find the problem and pray that it be a very minor problem and quickly cured. Amen.
Praying for you,
Barb, John, Shawn,
Shannon, & Colleen
www.caringbridge.org/page/shannon
Life is fragile. . .
Handle with prayer.

The Prayer Bears


Barb
- Thursday, August 23, 2007 12:33 AM CDT
My thoughts and prayers are with you. God Bless you and your whole family.
Sincerely
Traci
Traci S
- Thursday, August 23, 2007 4:17 AM CDT
Tell my little dance partner that I miss her. That girl can shake it! I'll be thinking about her during her biopsy. Hugs.
Kristin Young
gorham, me usa - Monday, August 20, 2007 10:06 AM CDT
Alicia,
Thanks so much for dancing with me at camp. I can not wait to see you again. I hope your biopsy results are fine and that you are doing great. Tell Mee-Ma that my mommy says hello and best of luck. Talk to you again soon.
Haylee Ann Milroy, Your FA friend...

Candace Milroy
Liberty, Ky USA - Sunday, August 19, 2007 7:22 PM CDT
hey there..
i just wanted so say i hope all is well and that i cant wait to see you ladys at camp..
we only have like 2 weeks left,im soo excited..
im off to bed,night ladys love you both!
-Jo
FA(child)
Jo
cincinnati, ohio - Thursday, August 2, 2007 0:39 AM CDT

Posted by Teresa at 10:56 PM 0 comments  

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Wednesday, August 1, 2007

August 2007 entries

Friday, August 24, 2007 7:19 AM CDT

EVERY THING WENT WELL WITH ALICIA'S BIOPSY YESTERDAY. SHE WAS SUCH A BIG GIRL WHEN THEY PUT IN HER IV, SHE DIDN'T EVEN CRY THIS TIME.

NOW IS THE HARD PART.....THE WAITING......THE WEEK THAT IT TAKES TO FIND OUT ANY RESULTS SEEMS LIKE A MONTH. I JUST PRAY THAT THE RESULTS COME BACK OK!!!!!! I DID FIND OUT THAT HER PLATELET COUNT WAS DOWN TO 28,000 AND THAT HAS ME VERY WORRIED.

ALICIA IS DOING FINE AS OF NOW, WE DID HAVE TO MAKE A TRIP TO THE EMERGENCY ROOM THIS WEEK END, ALICIA WAS OUT SIDE RUNNING AND SHE STUBBED HER TOE WHICH TOOK OFF THE TOP OF ONE TOE AND HER TOE NAIL, OF COURSE I FREAKED... WITH HER PLATELETS SO LOW IT WAS HARD FOR ME TO GET IT TO STOP BLEEDING, I HAD THE HARDEST TIME WITH JUST A STUBBED TOE, SO I DON'T KNOW HOW I AM GOING TO GO THROUGH A TRANSPLANT WHICH WILL BE A 100 TIMES HARDER THAN A STUBBED TOE.

ANSHON IS GETTING SO BIG, ALICIA AND HIM ARE SO CUTE WHEN THEY PLAY TOGETHER, ALICIA CAN GET HIM TO GIGGLE SO HARD, I LOVE WATCHING THEM TOGETHER.

DEPENDING ON THE RESULTS FROM YESTERDAY'S BIOPSY HER NEXT ONE WILL BE DONE IN CINCINNATI AT THE END OF NOVEMBER. I WILL KEEP YOU UPDATED WHEN I FIND OUT ANY RESULTS.

MEE-MA

Tuesday, August 14, 2007 4:07 PM CDT

Hello,

Sorry it has been so long since I have updated on Alicia. We are getting ready to leave Camp SunShine right now. The hardest part about camp is the good-bye's.

Alicia had such a fun time. I know she drove every one crazy. She went up to every one at least ten times each and gave them a hug. She danced so much at the custume ball that I was tired from just watching. Alicia is such a happy litlle girl she never slows down. ( I promise every one I did not teach her how she was dancing). We are going to miss every one so much. I am already looking forward to next year.

I found out today that Alicia's next Biopsy is going to be Thurday, August 23rd, Dr. Williams said he wanted her next one done in Cincinnati in November depending if it is not sooner from the results of this one coming up next week. I have this felling we are getting very close to transplant. But I have hope now, Camp has helped me alot!!!!!!

I will keep every one updated on her Biopsy results just as soon as I get them.

Mee-Ma Michelle

Posted by Teresa at 10:06 PM 0 comments  

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