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ALICIA'S JOURNEY WITH FA

Welcome to our blog where we try to keep family & friends updated on our daughter/granddaughter, Alicia, who is one of the most adorable five year olds ever! She was born with a very rare & aggressive disease, called Fanconi anemia, which causes bone marrow failure, as well as different cancers . She is currently undergoing a bone marrow transplant to try to cure her bone marrow issues. If you'd like to gain a little more background, please visit our first entry HERE.



Monday, December 31, 2007

December 2007 Guestbook Entries




Love and prayers,
Eva and Rodney
www.caringbridge.org/mi/rodneyreeves, - Sunday, December 23, 2007 7:40 AM CST
Hello Michelle,
I was wondering whether you have the results of the chromosome study from Alicia's last biopsy? I have been thinking about you lots!
Love Charisse
(FA Adult)
http://charissejournal.blogspot.com

Charisse Howard-Jones/The Prayer Bears
Adelaide, SA Australia - Saturday, December 15, 2007 7:35 PM CST

Posted by Teresa at 10:59 PM 0 comments  

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Monday, December 3, 2007

December 3, 2007

WE MADE IT BACK TO CINCINNATI ON SATURDAY. EVERYTHING WENT WELL.

HER PLATELET COUNT CAME UP FROM 19,000 TO 21,000. DR DAVIES SAID HER MARROW LOOKED OK BUT WE ARE STILL WAITING IN THE RESULTS FROM THE FISH STUDY.

DR DAVIES WANTS HER TO HAVE BIOPSY'S STILL EVERY THREE MONTHS BUT SHE WANTS THEM DONE IN CINCINNATI AND NO MORE IN KANSAS.

SHE ALSO WANTS CBC'S EVERY MONTH NOW INSTEAD OF EVERY THREE MONTHS, SHE ALSO TOLD ME THAT TRANSPLANT LOOKS TO BE SOON.

SHE WAS SUCH A LITLLE TERRIOR THERE, (THANKS TINA AND KEITH FOR PUTTING UP WITH US) ALICIA HAS SO MUCH ENERGY, SHE WORE JO AND JACY OUT!!!!!!

I WILL UPDATE MORE AFTER WE GET THE REST OF THE RESULTS. THANK YOU SO MUCH FOR CHECKING ON HER.

MICHELLE

Posted by Teresa at 10:08 PM 0 comments  

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