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ALICIA'S JOURNEY WITH FA

Welcome to our blog where we try to keep family & friends updated on our daughter/granddaughter, Alicia, who is one of the most adorable five year olds ever! She was born with a very rare & aggressive disease, called Fanconi anemia, which causes bone marrow failure, as well as different cancers . She is currently undergoing a bone marrow transplant to try to cure her bone marrow issues. If you'd like to gain a little more background, please visit our first entry HERE.



Wednesday, May 30, 2007

May 2007 Guestbook Entries

Hello Michelle,
Been thinking about you!
Love Charisse
(FA Adult)
www3.caringbridge.com/oceania/charisse

Charisse Howard-Jones/The Prayer Bears
Adelaide, SA Australia - Monday, May 21, 2007 6:39 AM CDT


Keeping you in my prayers sweet girl.....

Hugs~
Jan aka Mimi to Makayla (in Heaven) & Hailey
A Virginia Prayer Bear (www.freewebs.com/prayerbears)

www.caringbridge.org/visit/haileychavers and www.caringbridge.org/visit/makaylachavers
- Tuesday, May 15, 2007 6:45 PM CDT

~*~ HAPPY MOTHER'S DAY ~*~

“Love...It bears all things, believes all things,
hopes all things, endures all things.”
(1 Corinthians 13:7)


A Mother's love is something
that no one can explain,
It is made of deep devotion
and of sacrifice and pain,
It is endless and unselfish
and enduring come what may
For nothing can destroy it
or take that love away . . .
It is patient and forgiving
when all others are forsaking,
And it never fails or falters
even though the heart is breaking . . .
It believes beyond believing
when the world around condemns,
And it glows with all the beauty
of the rarest, brightest gems . . .
It is far beyond defining,
it defies all explanation,
And it still remains a secret
like the mysteries of creation . . .
A many splendoured miracle
man cannot understand
And another wondrous evidence
of God's tender guiding hand.

~Helen Steiner Rice~

Have a blessed Mother's Day!


Praying for you,
Barb, John, Shawn,
Shannon, & Colleen
www.caringbridge.org/page/shannon
The Prayer Bears

Prayer Bear Barb
- Monday, May 14, 2007 3:00 PM CDT

Grandma Michelle and Miss Alicia's mommy...(Im so sorry, my mind drew a complete blank with names)
myspace layouts, myspace codes, glitter graphics

Love and prayers,

Eva and Rodney
www.caringbridge.org/mi/rodneyreeves, - Saturday, May 12, 2007 8:33 PM CDT

alicia & michelle, i had a great time with you guys,when you came down to visit,hope we can do that again.i miss you both & hope to see you guys at camp sunhine.love ya!
Jo Box
ohio - Wednesday, May 2, 2007 10:35 PM CDT

Tuesday, May 1, 2007

May 2007 entries

Monday, May 28, 2007 1:13 PM CDT

Sorry I just ot to a computer to update everyone on Alicia's results.

GOOD NEWS!!!!!!!!! They didn't show any increase in her Blast Counts. And still no show of the Monosomy Seven showing back up. I am so happy. Robin from Cincinnatti said they would be calling me next week and letting me know if Dr. Williams wants the Biopsy repeated in 3 months or if we get to wait 6 months this time. Thank you so much for every ones support I couldn't get through this with out you.

Michelle


Tuesday, May 8, 2007 3:44 PM CDT

Hello Everyone,

Sorry i haven't updated on Alicia in a while, we have been so busy with the new baby. He is getting soooo big, I will put more recent pictures soon.

Alicia is doing fine at the moment, she has another biopsy coming up on the 16th of this month, hopefully everything will come out fine like the last one and move her transplant to a much later time. I will let every one know the results just as soon as I get them.

Grandma michelle