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ALICIA'S JOURNEY WITH FA

Welcome to our blog where we try to keep family & friends updated on our daughter/granddaughter, Alicia, who is one of the most adorable five year olds ever! She was born with a very rare & aggressive disease, called Fanconi anemia, which causes bone marrow failure, as well as different cancers . She is currently undergoing a bone marrow transplant to try to cure her bone marrow issues. If you'd like to gain a little more background, please visit our first entry HERE.



Tuesday, June 27, 2006

June 2006 Guestbook Entries

Hi Alicia,
I hope you are well. Love Nicole xxx
www.c-h-o-c.org.uk

Nicole
Kent, England - Monday, June 19, 2006 11:21 AM CDT

Tuesday, May 30, 2006

May 2006 Guestbook Entries


Photobucket - Video and Image HostingPraying for you today and always. Prayers and Bearhugs Love, Marci The Prayer Bears
http://www.freewebs.com/prayerbears

Marci Connell
Valdosta, GA USA - Sunday, June 11, 2006 8:51 PM CDT

Photobucket - Video and Image Hosting Keeping you in my Prayers Alicia
PAM STURGILL www.freewebs.com/prayerbears
- Wednesday, May 17, 2006 11:40 AM CDT

Photobucket - Video and Image HostingKeeping you always in my prayers Alicia..Prayers and bearhugs Love, MarcI The Prayer Bears
www.freewebs.com/prayerbears

Marci Connell
Valdosta, GA USA - Tuesday, May 16, 2006 7:54 AM CDT

Photobucket - Video and Image Hosting Stopping by to say Hello and to let you know that I am thinking of you...Bearhugs...
The Prayer Bears Website

Mary Mabe.....
Coeburn, va usa - Monday, May 15, 2006 1:34 PM CDT

Photobucket – Happy Mother Bear’s Day! Have a Beary Blessed Grand and Mother’s Day!
The Prayer Bears Website

Blessings and Bear Hugs,

Donna Boggs, Papa Bear’s Site
Coeburn , Va - Friday, May 12, 2006 9:48 AM CDT

Photobucket - Video and Image Hosting Stopping by to say Hello and to let you know that I am thinking of you...Bearhugs...
The Prayer Bears Website

Mary Mabe
Coeburn, va usa - Wednesday, May 3, 2006 7:42 PM CDT

Sunday, April 30, 2006

April 2006 Guestbook Entries

I'm so sad to know that I won't be gettin' those Alicia hugs this year at camp :0( You're right though, it is important to take care of her health first. We will miss you in Cincy though, we're going in May. Please give hugs from us to you and Alicia. We'll miss you at camp.
kristin young
gorham, me usa - Monday, April 24, 2006 9:04 PM CDT


Image hosting by Photobucket Alicia..Stopping by to say Hello and to let you know we are thinking of you..Sorry to hear that you fell down those steps..but glad to know the band aids help..they alwasy do the trick.....Bearhugs..

The Prayer Bears Website


Mary Mabe.....
Coeburn, va usa - Monday, April 24, 2006 9:00 PM CDT

Happy to read that Alicia is doing so well. Sorry to read about all the boo-boos, though :( We love bandaids in our house, too... they're great for fixing almost everything on the little ones :) Hope y'all had a happy Easter. Best wishes in Cincy.
Karen (www.caringbridge.org/fl/ty)
Melbourne, FL US - Friday, April 21, 2006 4:12 PM CDT

Just hoppin' by to wish you all a...
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Hope you all have a great day and hope all is well..
Blessings,
Kelly Bennett

~Marshall and Amelia~
Covington, LA - Saturday, April 15, 2006 10:12 PM CDT

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The Prayer Bears Website

Blessings and Bear Hugs for a wonderful Easter.

Donna Boggs, Papa Bear’s Site
Coeburn , Va - Friday, April 14, 2006 11:22 AM CDT

Hope all news is good news. Best to you and your family.
Joan
kissimmee, fl usa - Friday, April 7, 2006 10:50 PM CDT

Image hosting by Photobucket Dropping by to say Hello and to let you know that I am thinking of you..Bearhugs..

The Prayer Bears Website

Mary Mabe.....
Coeburn, va usa - Monday, April 3, 2006 7:55 PM CDT

Friday, April 21, 2006

April 21, 2006

Hello everyone,

Sorry again for taking so long to update on Alicia. All is well here. Alicia is doing fine, her platelets are still dropping, they around the 50,000 mark.Her red count is slightly low also but the rest are fine.

Alicia is gettin to be such a big little girl. She is talking and signing alot better, I can almost understand all that she is saying. She loves to talk on the phone. She has such an awesome personality.

We have to watch her so close. She is getting to the age where she loves to run and play alot. This means alot of scrapes and boo-boo's. Last week she tried to run out of Erika's front door when she seen me pull up and fell right on her face going down the porch stairs, she scraped up her whole nose. She still looks like Rudolph the red nose reindeer. I have went through almost a shole box of band-aids in a month, she wants a band-aid on every little tiny scratch she gets. ( they always make her feel better.)

The most difficult journey now is potty training. I am having the most difficult time trying to get her to tell me when she has to use it. As long as I remind her she does fine. If anyone has any suggestions please e-mail me, all the advice is very much appriciated.

We are making our plans now to take Alicia to Cinncinnatti in August. I really hate having to miss camp this year. I had such a good time last year and so did Alicia, I can only take a week off work and I feel it is important to take alicia to Cinncinnatti.

I hope all is going well with everyone. Thank you so much for checking in on Alicia.


Grandma Michelle

Friday, March 31, 2006

March 2006 Guestbook Entries

Alicia-
Just checking in to see how you are doing!
You remain in our thoughts and prayes.
Nanette Foster
(Dianna's Mommy)
www.caringbridge.org/tx/dianna

Nanette Foster
Lewisville, TX USA - Friday, March 31, 2006 11:19 AM CST


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The Prayer Bears Website

NO ALICIA HUGS???? I know a lot of people who will be disappointed! OH no!
Maybe one of these days, huh?
Blessings and Bear Hugs,

Donna Boggs, Papa Bear’s Sitec
Coeburn , Va - Monday, March 27, 2006 11:35 AM CST

Hey Michelle and Alicia! How are things going? I hope all is well. I can relate to the heart check-up. Emma had one in February and it was not much fun at all for her. Alicia, you are so cute and sweet! We loved meeting you at camp! Your grandma is such a sweet person:-) Hope all is well!

Take care,
Teresa and Emma

www.caringbridge.com/visit/emmarose
Anna, TX USA - Sunday, March 26, 2006 10:36 PM CST

WHAT!!! I'm not gonna get my big Alicia hugs this year!!?? That makes me and Wesley sooo sad :0( I understand why though. But it still doesn't make it better. We will miss you.
kristin young
gorham, me usa - Wednesday, March 22, 2006 6:26 PM CST

Image hosting by Photobucket Thinking of you.....

The Prayer Bears Website

mary mabe
Coeburn, va usa - Tuesday, March 21, 2006 6:23 PM CST

Hi Alicia. Wesley wanted me to say hi to you. Your grandma doesn't update enough :0) You tell her we are all wishing you the best and hope you are doing okay. I hope we get to see you again at camp this year because I miss those BIG hugs you give! Take care and keep smiling.
kristin young
gorham, me usa - Saturday, March 18, 2006 4:18 PM CST

Image hosting by Photobucket Irish Blessings from the Prayer Bears!
The Prayer Bears Website

Praying all is well,
Blessings and Bear Hugs,

Donna Boggs, Papa Bear’s Site
Coeburn , Va - Thursday, March 16, 2006 12:08 AM CST



PRAYER BEARS

Alicia, John, Ciara, Hunter & ^^Angel^^ Tommy - PRAYER BEARS BENNETT CHILDREN'S JOURNAL
- Monday, March 13, 2006 11:44 AM CST

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Thinking of you!
Shay & Chayce
Prayer Bears, SOEW, Giving Hope

Chayce's Mission
Davison, MI - Friday, March 10, 2006 7:23 AM CST

Image hosting by Photobucket Thinking of you today and always...Bearhugs...

The Prayer Bears Website


Mary Mabe
Coeburn, va Usa - Friday, March 3, 2006 5:55 PM CST

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The Prayer Bears
Hailee


sending lots of prayers

melissa
caveCreek, az u - Wednesday, March 1, 2006 7:58 PM CST