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ALICIA'S JOURNEY WITH FA

Welcome to our blog where we try to keep family & friends updated on our daughter/granddaughter, Alicia, who is one of the most adorable five year olds ever! She was born with a very rare & aggressive disease, called Fanconi anemia, which causes bone marrow failure, as well as different cancers . She is currently undergoing a bone marrow transplant to try to cure her bone marrow issues. If you'd like to gain a little more background, please visit our first entry HERE.



Friday, November 30, 2007

November 2007 Guestbook Entries

Hello Michelle and Alicia,
how did the biopsy go....been thinking about you. Love you heaps,
Charisse

Charisse Howard-Jones/The Prayer bears
Adelaide, SA Australia - Wednesday, November 21, 2007 6:48 AM CST


Alicia, I hope your trip is short and nothing to worry about. Haylee, Jesse and I are also leaving for Cincinnati on the 28th, but we will be staying for a long time. I hope you are feeling well.
Happy Birthday Pretty Girl!!!
Love You,
Candace

Candace Milroy
Liberty, Kentucky USA - Sunday, November 18, 2007 3:38 PM CST

Stopping by to wish Alicia a happy birthday and let you know the family is in my prayers about the bone marrow testing.
Jennifer, a Texas prayer bear
Bridgeport, Texas - Friday, November 16, 2007 7:44 PM CST

Happy Birthday, Alicia!!!! We wish we could've gone to your party! Emma misses you. You two are so cute together! Hope your biopsy goes well. Give your grandma a hug for me:-)

Love,
The Clifton's

http://cliftonclan.blogspot.com
TX USA - Friday, November 16, 2007 7:32 PM CST

!

HAPPY BIRTHDAY
Happy Birthday!!

"If Children have the ability to ignore odds and percentages, then maybe we can all learn from them. When you think about it, what other chance is there but to hope? We have two options, medically and emotionally: give up, or fight like hell".
-Lance Armstrong


I will praise the name of God with song; I will magnify him with thanksgiving. Psalm 69:30
Praying for a Blessed Thanksgiving for you & yours,
Barb, John, Shawn,
Shannon, & Colleen
www.caringbridge.org/page/shannon
Life is fragile. . .
Handle with prayer.

The Prayer Bears

Barb
- Friday, November 16, 2007 3:04 PM CST

Alicia,
Good luck in Cincy! I know it's no fun getting poked all the time but you are such a trooper. Take care and try to mix some fun in with the medical stuff.

Take care,

John Hanna
Fort Gibson, OK USA - Friday, November 16, 2007 2:49 PM CST

Hello Alica . Found your page from another caringbridge page. How neat that we share the same last name .

www.caringbridge.org/visit/margaretreed1

Tracy
Corry, PA - Saturday, November 10, 2007 6:01 PM CST

Alicia,
Haylee and I wanted to send you a quick note to let you know that we are thinking of you. We hope your next biopsy shows even more good news than the last. We are heading to transplant, but we will try to keep up with you. Haylee sends you great big hugs and kisses.
Love Ya Cutie,
Candace Milroy

Candace Milroy
Liberty, KY USA - Friday, November 9, 2007 9:17 PM CST

Friday, November 16, 2007

November 16, 2007

WOW IT IS SO HARD TO BELIEVE THAT ALICIA WILL BE 5 IN TWO DAYS!!!!!!! SHE IS GETTING SO BIG (NOT REALLY).

WE HAD A BIRTHDAY PARTY FOR HER LAST WEEKEND AND SHE HAD SO MUCH FUN. I NEVER KNEW HOW MUCH DORA THINGS ONE PERSON COULD HAVE, BUT I THINK ALICIA HAS EVERY DORA ITEM AVAILABLE.

WE LEAVE FOR CINCINNATI ON THE 28TH. ALICIA IS GOING TO HAVE ANOTHE BIOPSY, AND THIS ONE WORRIES ME (SO DID ALL THE REST) BUT AS WE KNOW THE LAST ONE SHE HAD DONE IN CINCINNATI WAAS THE ONE WHICH SHOWED THE ABNORMAL CHROMOZONE, WISH US LUCK ON THE RESULTS.

HER LAST CBC WHICH WAS DONE TWO WEEKS AGO SHOWED HER PLATELETS HAD DROPPED TO 18,000 SO THAT HAS ME WORRIED ALSO.

WE HAVE A PROGRAM HERE IN KANSAS WHICH IS CALLED SHARE THE SEASON, THEY DO AN ARTICAL ON A FAMILY EVERY SUNDAY IN THE PAPER AND LOCAL NEWS, AND ALICIA WAS CHOSEN TO DO THE LEAD STORY TO START OFF THE SEASON. I THINK THAT WOULD BE REAL NEAT.

HOPE EVERY ONE IS WELL AND CANDACE YOU, HALLEY AND JESSE ARE IN MY PRAYERS, WE WILL SEE YOU SOON.

JO AND JACY... I CAN'T WAIT TO SEE YOU WE WILL BE THERE SOON.

MICHELLE

Wednesday, October 31, 2007

October 2007 Guestbook Entries




Love and hugs,

Eva and Rodney
www.caringbridge.org/mi/rodneyreeves, - Wednesday, October 31, 2007 6:03 AM CDT


That is great about her results! Tell Alicia that Emma misses her and that we hope to see her somewhat soon! We have no plans to visit my grandma in Wichita, but if we do, we'll be giving you a call! You guys take care;-)
http://cliftonclan.blogspot.com
Anna, TX USA - Tuesday, October 9, 2007 0:17 AM CDT

Praying that the next bone marrow biopsy is good like the previous one so that you can go to every six months.
Jennifer, a Texas prayer bear
Bridgeport, Texas - Monday, September 17, 2007 5:40 PM CDT

Wednesday, September 5, 2007

September 5, 2007

We finally heard from Cincinnati with Alicia's results and there is no change. (THAT IS GOOD NEWS!!!!!)

Her blast count was at 1%, which it went down from 3% at her last biopsy.

Her Platelet count is still low, it was at 26,000, but he rest of her counts looked good.

I am sooooo relieved. They still want to do another biopsy in 3 months, hopefully that one is good like this one so we can go to every 6 months, little Alicia is getting upset even more every time we have to have one.

Anshon is doing well, he is getting so big, he is saying dada now, Erika keeps trying to get him to say mama but he hasn't said it so far. He giggles every time Alicia is around him, it is so much fun watching them two together.

Thank you all so much for keeping Alicia in your prayers, it means the world to us.

Michelle

Thursday, August 30, 2007

August 2007 Guestbook Entries

Just checking to see if you have any results yet. Hope all is well.
Kristin Young
Gorham, me usa - Friday, August 31, 2007 5:56 PM CDT


Just wanted to let you know that we are praying for good results from the biopsy. Haylee will be getting hers done next Friday. Pray for a good outcome from hers too. Alicia is such a beautiful and loving little girl. We were so glad to get to see her at camp. She and Emma are all that Haylee has talked about. They were so cute. All the same size and running and dancing. Truely a Kodak moment. Keep your chin up Mee-maw. You are doing a fine job. Praying for a good report.
Candace and Haylee Milroy

Candace Milroy
Liberty, Ky USA - Friday, August 24, 2007 10:04 AM CDT

Just wanted to let you know that we are praying for good results from the biopsy. Haylee will be getting hers done next Friday. Pray for a good outcome from hers too. Alicia is such a beautiful and loving little girl. We were so glad to get to see her at camp. She and Emma are all that Haylee has talked about. They were so cute. All the same size and running and dancing. Truely a Kodak moment. Keep your chin up Mee-maw. You are doing a fine job. Praying for a good report.
Candace and Haylee Milroy

Candace Milroy
Liberty, Ky USA - Friday, August 24, 2007 10:03 AM CDT


Heavenly Father, Physician of our souls and. bodies, who have sent Your only begotten Son and our Lord Jesus Christ to heal every sickness and infirmity, visit and heal us. Lord, please put Your Healing Hands on this body and heal. Lord, You have taught us Your word to pray for Each other that we may be healed. Please grant the gift of complete health. Please be with Doctors and guide them so that they can find the problem and pray that it be a very minor problem and quickly cured. Amen.
Praying for you,
Barb, John, Shawn,
Shannon, & Colleen
www.caringbridge.org/page/shannon
Life is fragile. . .
Handle with prayer.

The Prayer Bears


Barb
- Thursday, August 23, 2007 12:33 AM CDT

My thoughts and prayers are with you. God Bless you and your whole family.
Sincerely
Traci

Traci S
- Thursday, August 23, 2007 4:17 AM CDT

Tell my little dance partner that I miss her. That girl can shake it! I'll be thinking about her during her biopsy. Hugs.
Kristin Young
gorham, me usa - Monday, August 20, 2007 10:06 AM CDT

Alicia,
Thanks so much for dancing with me at camp. I can not wait to see you again. I hope your biopsy results are fine and that you are doing great. Tell Mee-Ma that my mommy says hello and best of luck. Talk to you again soon.
Haylee Ann Milroy, Your FA friend...

Candace Milroy
Liberty, Ky USA - Sunday, August 19, 2007 7:22 PM CDT

hey there..
i just wanted so say i hope all is well and that i cant wait to see you ladys at camp..
we only have like 2 weeks left,im soo excited..
im off to bed,night ladys love you both!
-Jo
FA(child)

Jo
cincinnati, ohio - Thursday, August 2, 2007 0:39 AM CDT