RESULTS

FINALLY I GOT SOME ANSWERS!!!!!!!!!!!!!!!!!!! I HOPE THIS MAKES SINCE HOW I EXPLAIN IT BECAUSE THIS IS HOW I UNDERSTOOD WHAT WAS TOLD TO ME. I COULD HAVE A LITTLE WRONG BUT I HAVE ALOT GOING THROUGH MY MIND AND I AM SURE I WILL HAVE A MILLION QUESTIONS TOMMORROW BUT ALL I KNOW IS THAT MY BABY DOES NOT HAVE AN INFECTION IN HER BRAIN OR ANY TYPE OF BLEEDING OR GVH PROBLEMS IN HER BRAIN.

DR. DAVIES CAME IN A LITTLE WHILE AGO WITH WHAT I CONSIDER GOOD NEWS. THE MRI SHOWED THAT WHAT WAS HAPPENING WITH ALICIA HAD TO DO WITH A MEDICATION SHE IS ON CALLED CYCLOSPORIN, IT IS USED TO SUPRESS THE IMMUNE SYSTEM AND ALSO HELPS FIGHT THE GVH. THE MRI SHOWED WHAT DR DAVIS CALLED A "PRESS" IN THE BACK OF HER BRAIN. HOW SHE EXPLAINED IT TO ME WAS ALICIA'S LEVELS OF THIS DRUG WAS HIGHLY ELEVATED WHICH CAUSED THE PRESS WHICH CAUSED THE SIEZURES.

THEY STOPPED THE CYCLOSPORIN YESTERDAY AND SAID THAT AS SOON AS THE LEVEL GETS BELOW 200 THAT SHE WILL PUT HER ON WHAT SHE SAID IS A COUSIN OF CYCLSPORIN CALLED FK506 WHICH IS ALSO AN IMUNE SUPRESSMENT.

SHE SAID THE PRESS ON HER BRAIN SHOULD GO AWAY WITH SINCE THE CYCLOSPORIN IS REMOVED. SHE SAID SHE WILL HAVE ALICIA ON THE DILANTEN (SEIZURE MEDICINE) FOR AS LONG AS SHE IS ON FK506 OR RETURNS TO CYCLOSPORIN. SHE SAID THE PRESS IS VERY MUCH REVERSABLE AND TREATABLE.

I WAS SO RELIEVED. I KNOW I WILL ACTUALLY GET SOME REST TONIGHT. ALICIA IS ACTING A LITTLE LIKE HERSELF AGAIN. SHE ASKED AGAIN FOR CHICKEN NUGGETS, AND I MET A FRIEND HERE NAMED REID AND SHE TOOK ME TO GET HER SOME. RIGHT NOW I WOULD GIVE ALICIA THE WORLD IF SHE ASKED FOR IT. I WOULD EVEN CATCH THE CHICKEN, PLUCK IT, AND MAKE IT INTO NUGGETS IF SHE WANTED ME TO.

THANK YOU TO EVERYONE FOR SO MANY PRAYERS THAT WERE SAID FOR HER IN THE PAST THREE DAYS. THE LORD HEARD THEM ALL AND HE TOUCHED ALICIA IN VERY MANY WAYS. MY BABY IS GOING TO BE OK!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!