DAY +50

WE HAD A PRETTY GOOD DAY YESTERDAY. AROUND EARLY AFTERNOON ALICIA STARTED ACTING MORE LIKE HER SELF. SHE ATE NOODLES WHICH SEEMS TO BE NOW ALL SHE WANTS. SHE EVEN GOT OUT OF BED FOR THE THERAPIST AND HELPED WASH HER BABY DOLLS HAIR. YESTERDAY WAS A DAY SHE HAS NOT HAD IN A LONG TIME. WE PLAYED AND PLAYED AND PLAYED SOME MORE. WE WERE ABOUT TO HAVE OUR PRINCESS BALL WHICH WE TALK ABOUT EVERYDAY SINCE HER MOMMY AND HER WERE NOT ABLE TO HAVE ONE SINCE SHE HAS NOT FEALT WELL ENOUGH IN SO LONG BUT ONCE AGIAN SHE STARTED HAVING TUMMY PAINS SO WE HAD TO PUT OFF OUR BALL FOR ANOTHER DAY AGAIN. SHE WANTS TO DRESS UO VERY BAD IN THE PRINCESS OUTFIT THAT MY MOMS FRIENDS AT TALL GRASS SENT HER, WE TAKE IT OUT OF THE BOX EVERYDAY AND WEAR THE TIERRA AND JEWLERY BUT WE ARE LONGING FOR THE DAY WE CAN HAVE OUR PRINCESS BALL!!!!!!!!!!!!

ALSO YESTERDAY ALICIA RECIEVED A BOX FROM SOME VERY SPECIAL KIDS. A VERY SPECIAL LADY NAMED BONNIE ( YOU ARE OUR ANGEL SENT FROM GOD I TOLD ALICIA ) WHICH WE HAVE NEVER MET BEFORE EVER. INSIDE WERE SOME VERY AWESOME CARDS MADE FROM THE CHILDREN IN HER NEIGHBORHOOD AND HER DAUGHTERS FRIENDS. THESE CARDS WERE SOOOOOO AWESOME. YOU CAN TELL THESE CHILDREN TOOK ALOT OF TIME FOR ALICIA AND MADE THEM !!!PERFECT!!!!! THEY WERE FROM CHILDREN AS YOUNG AS THREE AND AS OLD AS 15 ( I HOPE I HAVE THAT RIGHT. THEIR WAS EVEN A LITTLE BOY WHO IS THE SAME AGE AS ALICIA. I CRIED BIG TEARS AS I READ THESE CARDS. THESE CHILDREN HAVE NEVER MET ALICIA, AND FOR THEM TO TAKE TIME TO DO THIS JUST MADE OUR WHOLE DAY. I THINK I LOST IT WHEN I SEEN THAT THEIR DOGS EVEN MADE CARDS, THAT IS WHEN I COULD NOT STOP THE TEARS. I FINALLY FELT LIKE I WAS NOT ALONE AT THAT MOMENT. ALICIA LOVED EVERYTHING IN THE BOX. THANK YOU SO MUCH BONNIE FOR MAKING OUR DAY YESTERDAY. HERE ARE SOME PICTURES OF ALICIA GOING THROUGH THE BOX...

AND TO MAKE THE DAY BETTER SHE ALSO GOT ANOTHER SPECIAL VISIT FROM THEO. SHE WAS SO HAPPY YESTERDAY AND I WAS SO GLAD TO SEE HER FINALLY HAVING A GOOD DAY. HERE ARE HER AND THEO JUST HANGING OUT ...................BUT IT WAS JUST MY LUCK THAT THE END TO A GOOD DAY COULD NOT END IN HARMONY... ALICIA STARTED HAVING BAD TUMMY ACHES AGAIN AND AROUND ONE AM THE FEVER CAME BACK. I KEPT COOL RAGS ON HER HEAD ALL NIGHT BUT SHE STILL HAS IT THIS MORNING. THEY HAVE CALLED IN THE PAIN MANAGEMENT TEAM TO SEE IF THEY CAN CONTROL THE PAIN A LITLE BETTER. THEY ARE PUTTING HER ON METHADONE NOW THROUGH HER NG TUBE. I SURE HOPE THIS MAKES HER COMFORTABLY UNTIL THEY CAN GET THIS NASTY GVH UNDER CONTROL. I AM GETTING VERY TIRED OF SEEING THE LOOK OF PAIN ON HER FACE. SHE IS UP WATCHING SPONGE BOB NOW, BUT THEY JUST GAVE HER SOME MORPHINE SO SHE IS NOT FEELING MUCH PAIN NOW.

CAMP SUNSHINE STARTS TOMORROW. I SO HATE THAGT WE ARE NOT THERE. ALICIA LOVES CAMO SUNSHINE. IT IS ONE PLACE SHE CAN RUN AND BE ONERY WITHOUT GETTING IN TROUBLE. SHE IS VERY WELL KNOWN FOR HER HUGE HUGS SHE GIVES TO EVERYONE ALTHOUGH NOW I DO NOT KNOW IF SHE WILL GIVE ANY. SHE HASN'T BEEN IN A HUGGABE MOOD LATELY. I HOPE ALL OF OUR FRIENDS GET THERE SAFE AND HAVE ALOT OF FUN. I CAN NOT WAIT TO SEE ALL OF THE PICTURES.