Day +69

Alicia got up very early this morning complaining about her tummy hurting. Dr Davie's says it is because they have raised the amount of tube feeds she is getting per hour but she is still saying it is hurting so we will see if her tummy can get used to it.

Well we got the "D" word again yesterday. I was sitting in the parent lounge and in walked Sally with a smile one her face. Sally is the Home Health Nurse who teaches us how to give our children the Iv meds they are sent home on. It has been a big joke with Sally and I when it comes to discharge. She is the one who had taught me everything the last time, over 45 days ago, when we were to leave. Everything thing she taught me way back when Alicia is not even on any more. One was the Cyclosporin which caused Alicia's Press and Seizures. Well needless to say Alicia's name is on the list again. I seen it with my own eye's. It does not say an exact date, it just says sometime next week. Dr Davies says either Wednesday or Thursday, I am sooooooo nervous. Dr Davie's also wants us to do a couple of trial runs before discharge so we a re getting our first pass this Saturday. Alicia nd I are going to the RMH from 2pm to 6pm. She is not allowed to go any where else which is toally fine with me. Denise and Kelli will be here this weekend also so I am so sure this will make Alicia very happy. I am nervous about having her around alot of people but Dr Davies said as long as it is just them and we stay in the room that it should be ok. I am still nervous though.

Denise is going to stay with Alicia Saturday noght so I can get some much needed "My Time" I will hang out with Kelli and the girls at the hotel and Sunday we are taling them to the zoo.

Alicia is asleep now so I better get in a nap while I can. Cross your fingers that this weekend goes well and this is our first step towards home.