Day +79 ( 1 hour til Day +80!!!!)

I want to start by saying I am sorry for not keeping up on the updates on Alicia. The further along we get the harder it is getting for me. I am still very strong but I am wearing down fast. I miss home more than ever and I am trying to keep what strength I have left to focus on Alicia. I know that there are so many people that care and are praying for Alicia so I am truly sorry for slacking on keeping everyone up to date on how she is doing.

Alicia just got another fever about an hour ago. They gave her Tylenol and took cultures but the cultures from the last fever are still all negative so I don't have much hope that there will be a reason for this one. She has had a couple of pretty good days. Her tummy seems to be settling down a bit since they took her off of NG feeds and TPN which they did four days ago but today she has not ate anything at all. I mean NOTHING!!!!!!!!!! I have a feeling tomorrow Dr Davies will start her back on feeds so I pray this does not start her tummy to hurting again. She is still having a very hard time walking. Her little legs have became so thin. I still make her walk at least once a day and I bought her a little big wheel for the RMH to work on gaining her strength back in her legs so I hope that helps.

We are set to be discharged again on Wednesday the 10th. ( Nicholas's Birthday!!!!!!!!!) I decided this time not to tell Alicia just encase we don't which is what has happened the last two times.

Good News..... A wonderful friend referred Alicia to be featured in one of the news letters for "A Caddy For a Cure" and I was contacted yesterday by Russ Holden and he did a little story on Alicia and she is being featured in the nest news letter. I cried when I read what he had wrote, I am not for sure when it will come out but it should be soon. Caddy for a Cure does a Huge fund raiser and donates alot of the money to help research with FARF. It was such an Honor for Alicia to be featured.

Please pray that this fever does not hang around like the rest. And I will update tomorrow as soon as I talk with Dr Davies.