Day +89

GOOD NEWS!!!!!!!! The ultra sound came back and everything looked normal, her liver numbers are coming down and the rest of her organs look to be fine. I was so happy to heat that and that leads me back to where I keep saying it is the GVH.

She got an extra dose of the med for GVH last night. It is an infusion that takes about four hours and they have to monitor her vitals very closely, every 15 to 30 minutes and the infusion start at 12:45 am so it was a very long night. I did not mind though because hopefully this will make Alicia start feeling better.

Her skin is looking a lot worse to me though. She is peeling so bad that her shirt is sticking to her skin and coming off when I take her shirt off. She is such a strong little girl she doesn't even cry. I bathed her with just warm water this morning because I didn't want to irritate her skin anymore than it is, but just my luck I must of washed her little legs to hard because she got petichai spots all over them. I swear I was very gentle.

She is asleep now due to the benadryl she just received before they give her platelets. Today her platelets were down to 25. They usually let her go a little lower than that but she had a little blood in her stool last night so she will get platelets today instead of tomorrow. The rest of her counts look very good. Her HBG is 11.7 and her WBC is 8.1 and her ANC is 7.09.

Denise is recovering very well. This morning she was texting me and not making much since but her husband told me they have her on some very good pain med so I am sure she is a little loopy.

4 (3 1/2 ) days til Mommy and Daddy. Erika called this morning and she is very excited. Hopefully Alicia will be feeling a little better so we can take her to the RMH for a couple of hours.

Please keep Anthony Negrin in your prayers tonight and tomorrow. He will be getting his 3rd transplant. He has FA also and me and his mom have became close. Also keep all of the other BMT patients here in your prayers with or without FA. Hannah, Nas, Blake, Issabelle, Kendra, Ryan, Albert, Tana, Stacy, Brandon, Tana and all of the rest. And we can not forget my girl ABBY!!!! even though she is not inpatient she still needs our prayers.