Day +171

I know one thing for sure!!!!!!!!!!!!!!!!!!!! When you are excited about something, or you are waiting for a time to come, the days go by slower than ever!!!!!!!!!!!!!!!!!!!!!!!!!! It seems like it is taking forever for just one day to go by!!!!!!!!!!!!!!!!!!!!!!!!!!! Alicia is soooooo excited!!!!!!!!!!!!!! we made a chart and she is marking off the days til she gets to go home. After she marks off the day she calls her Mommy an Daddy and Ne Ne and she tells them how many days are left. Actually she calls them about five times a day and tells them, but like I said she is very excited. We still do not have all of the details yet as to when we will be leaving, but I am sure that will come when it gets closer to the time. Did I mention there are only 16 days left on Alicia's chart!!!!!!!!!!!!!!

Fridays hospital visit went very good. The Docs are so impressed by how good Alicia is doing. She is shocking everyone I believe. I just tell them that anything that could of happened to her has already happened so it is all on the good side now. That is what my VERY good group of friends used to tell me when I was having a hard time when we were still inpatient. (You all were right!!!!!) They did have to take her labs twice though. The first one came back that her Hemoglobin was only at four but when they repeated it that was not the case. Her HBG was actually at 9 which was up from the last time. Her Platelets also came up, they were at 79,000. I am so happy that all of her counts are rising by their selves. She has not had to have any transfusions in such a while!!!!!!!!!!!!!!!!!!!! Her Wbc and ANC are still very elevated though. her ANC was at 22.89 and her WBC was at 28.6, they still show no worry to me about these numbers. Her liver numbers are slowly coming down also which is a lot of relief. We are scheduled to be at the hospital on Tuesday for her every other week Imfleximab infusion. Then back on Friday for her Ambison.

I was looking through my pictures and I found one that Alicia had taken with Clifford the Big Red Dog just a year ago, and I was comparing it with the one she took last week here at the RMH and I can not believe how much she has grown. I keep thinking that maybe this one was two year ago. I am sure Denise or Erika will correct me if I am wrong. I thought I would share them with you. The video is still on Cincinnati.com if any one has not seen it.

Thank you again everyone for follow the progress of Alicia and for the many many prayers!!!!!!!!!