DaY +181

Everything here is still about the same with Alicia. I am very very tired, I have not been sleeping well the past nights with Alicia being sick. Last night was very bad. She coughed most of the night, so between the coughing, between coughing, blowing her nose and taking her temp I had decided when we woke up I was taking her to get checked out by Doctor Davies. Dr Davies listened to her and agreed that her lungs are clear but she ordered a lot of tests which one was just horrible. She wanted a nasal wash and swab and Alicia did not like that idea at all. It was even worse than having the tube put in her nose. It took five nurses to hold her down and all I could hear was Alicia yelling that she could not see her Mee-Ma. I lost it. I told them to just leave her alone, she has had enough but luckily they had got enough fluid back for the test. I just picked her up and held her sooo tight. I feel so sorry for everything she is going through. I just wish it was me and not her.


After the nasal wash and swab and cultures they sent us down for a chest x-ray. So far everything is coming back good. The x-ray showed her chest and lungs clear, the only bad thing was the x-ray showed that her Ng tube was barely in her stomach so I had to push it in another three inches which I did myself.


So it looks like we are still clear for leaving Tuesday for home. Only 5 days left on Alicia's chart. I am keeping her confined to the room til we leave except for Friday and Monday which she will have to be in Day Hospital for infusions. Hopefully this all will clear by then!!!!!!!!!!!!!!!


Please keep Alicia in your prayers for this nasty cold to pass before we leave!!!!! Thank you all so very much, without your support I would not be able to endure any more.