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ALICIA'S JOURNEY WITH FA

Welcome to our blog where we try to keep family & friends updated on our daughter/granddaughter, Alicia, who is one of the most adorable five year olds ever! She was born with a very rare & aggressive disease, called Fanconi anemia, which causes bone marrow failure, as well as different cancers . She is currently undergoing a bone marrow transplant to try to cure her bone marrow issues. If you'd like to gain a little more background, please visit our first entry HERE.



Tuesday, August 11, 2009

Finally home!!!!!!!!

We got home yesterdayaroumd 1 pm and michelle is in Via Cristi St Francis room 4035 phone number is 316-291-4435. I am taking a very needed break today and staying at home. Tomorrow I am going to be there bright and early to talk to dr so ill try to update tomorrow with news. Since she has been here they have alredy ran numerous tests so i should have lits of info from dr. Alicia is also home and loving it. She is doing relly good and drove her mama crazy with the "are we almost there yet?" question during the 12 hour drive home. I want to thank every one so so much for all the prayers because I honestly believe they are the reason we are where we are today------------------------- denise

8 comments:

Dianne Ploetz said...

Thanks for the update Denise. YEAH you are all back in Kansas!!!
As always, you are all in my thoughts and prayers. Love, Dianne

Unknown said...

Fantastic. Now we pray that Michelle's recovery is steady.
Love,
Holly

Charisse said...

Wonderful news! Continuing to pray for Michelle's recovery. God is good. Prayer is good. It is also wonderful that Alicia is doig so well :-)
Love Charisse

Anonymous said...

Thrilled that you're in KS! Now to get Michelle BETTER!!!!!!!!!!!!!!!!!!!!!!!
Lifting up prayers right now!
1 John 1:1-4 That which was from the beginning, which we have heard, which we have seen with our eyes, which we have looked upon, and our hands have handled, of the Word of life; (For the life was manifested, and we have seen it, and bear witness, and shew unto you that eternal life, which was with the Father, and was manifested unto us;) That which we have seen and heard declare we unto you, that ye also may have fellowship with us: and truly our fellowship is with the Father, and with his Son Jesus Christ. And these things write we unto you, that your joy may be full.
Prayer Bears
My email address

Dianne Ploetz said...

Michelle,

Thinking of you...and praying for you. Love, Dianne

Anonymous said...

Hope everything went well today!
Praying in Seattle!
Proverbs 3:5-6 Trust in the LORD with all thine heart; and lean not unto thine own understanding. In all thy ways acknowledge him, and he shall direct thy paths.
Prayer Bears
My email address

Anonymous said...

Get well, my dear friend!
No matter what needs to be faced in life, our thoughts should always be on the Lord. True help comes from Him alone! Praying!
John 5:39 Search the scriptures; for in them ye think ye have eternal life: and they are they which testify of me.
Luke 24:27 And beginning at Moses and all the prophets, he expounded unto them in all the scriptures the things concerning himself.
Prayer Bears
My email address

Anonymous said...

Hope you are all having a good day. Thinking of you! Love, Dianne