YESTERDAY ALICIA WAS YELLING FOR HER MAMA AND ERIKA RAN TO HER ROOM AND SHE TOLD HER MAMA COULDNT BREATH.SO ERIKA TOOK HER TEMP AND IT WAS 102* SHE THEN TOOK HER TO THE ER. HER FEVER WENT DOWN AND SHE IS FEELING BETTER NOW. MICELLE IS HAVING ANOTHER TUBE PUT IN SINCE THE NURSE PULLED THE FIRST ONE OUT. FIRST THEY WILL DO A CT TO SEE HOW MUCH FLUID IS LEFT. WELL I AM SO VERY EXHAUSTED FROM SCHOOL KIDS AND GOING FROM MICHELLE AT ST JOE HOSPITAL TO ALICIA AT WESLEY......IT DRAINS A PERSON..............DENISE
ALICIA'S JOURNEY WITH FA
Welcome to our blog where we try to keep family & friends updated on our daughter/granddaughter, Alicia, who is one of the most adorable five year olds ever! She was born with a very rare & aggressive disease, called Fanconi anemia, which causes bone marrow failure, as well as different cancers . She is currently undergoing a bone marrow transplant to try to cure her bone marrow issues. If you'd like to gain a little more background, please visit our first entry HERE.
Sunday, August 23, 2009
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4 comments:
Thanks so much for the update, Denise! Praying for the whole family!!!!!!!!!!!!!
My hope is built on nothing less
Than Jesus' blood and righteousness;
I dare not trust the sweetest frame,
But wholly lean on Jesus' name.
On Christ, the solid Rock, I stand;
All other ground is sinking sand.
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Bless you, Denise. It is exhausting! I am praying for both Alicia and Michelle. Thanks for keeping us updated.
Love Charisse
You are doing a great job Denise! Hang in there. I can't even imagine how hard it must be for ALL of you. You are all in my thoughts and prayers. Love, Dianne
Thanks for the update about Michelle and Alicia. Am praying that both will be fine very soon and that you have the courage and strength to carry on.
Mary Ann
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