Hospital

Alica is out of ICU for now. Her potassium level is barely above critical. Please pray it stays up!!!
She got magnesium this morning also. She is still using the restroom alot and that may cause her to drop again. Prayers! Prayers! Prayers!
Krisstina

Hopefully there will be more to update soon!

Alicia Hospitalized

******UPDATE******
Alicia is still doing the same. Her potassium will go up a little and then back down. She is still having diarrhea and she vomited tonight. Her magnesium and phosphorus are also very low. Please pray for all these Iv doses of potassium to take hold, as her levels are considered very critical!
Thanks again!
Krisstina



I spoke with Michelle a couple of times today and Alicia is in ICU. She has critically low potassium and they as of a few minutes ago she had been given 8 bolus's and 3 oral doses. It still will not come up. Her magnesium is low and she is getting that also. She is also trying to get another fever. They have said she will be in ICU for a little while. Please pray for her levels to come back up.
I will update as soon as I get more information.
Krisstina updating for Michelle!



This is Krisstina updating for Michelle, as Alicia was admitted to a hospital in Wichita this afternoon. She was admitted for critically low potassium, a very high white blood cell count, and is on the verge of a fever (100.3). She has been started on fluids. I am sure that Michelle will update as soon as she can.
Please say prayers for her!
Thank you for checking in on her.
Krisstina

Day +326

Yesterday was just horrible. Alicia went #2 19 times and this is not exaggerating. Her stools are just like water and it has me very worried. I have called Cincinnati this morning an I am patiently waiting for a call back. Hopefully Dr Davies will know whats going on. I will let everyone know as soon as I find out. I wouldn't even care if we had to go to Cincinnati a little early, I just want to know that she is OK.

Day +325

Ok Ok Sorry!!!!!!!!!!!!!! I have gotten a few e mails that were not to nice so I need to appologize for the lack ofupdates.


Alicia is still without a tube. I am not sure how long though. Dr Davies said she need to maintain her weight or she will be getting another tube, she is not eating well so It ill probably be sooner than later. She looks like she is getting so little to me. She also has dark circles around her eyes which has me worried also.


One good thing is she is taking her meds pretty good without the tube. I have to hold her nose and count to three and she takes them real fast. She is very terrified of the tube so that has a lot of leverage.


We should be going back to Cincinnati in a couple of weeks for a follow up, and actually i am very glad and can not wait for Dr Davies to have a look at Alicia to ease my mind. She has not been seen here except her hospital stay which the Hematologist here never even came to check on her. She is only seen by a Home Nurse and that has me worried.


Thanks for checking on us.

Day +317

O my where to begin??? First let me start by saying I am sorry that I do not update like I used to. It seems like I can never find time now that we are home. I keep telling myself that I need to at least twice a week but time slips past me.


Well we just experienced our first fever at home. I must say that the hospital here was not as bad as I thought it would be. Of course I could not get the internet to wor so that is why I did not let everyone know. It started Wenesday night, just as soon as I gave Alicia her meds and she laid down in the bed she started throwing up. She had not been eating for three days prior to that so I was already on guard. She still has very very loose stools but they have been like that for a while now. It seemed like she was never going to stop. She even threw up her Ng tube also. That really upset her because she totally hates getting them put in. She kept trying to put it back in herself but I assured her it was ok and I finally got her settled edown and back in bed. The next morning on thursday Alicia did not have much energy and didn't want to get out of bed. I was already worried about the 13 meds she takes in the morning and with no tube that meant she would have to do them all by mouth. She actually did very well. She chased each med with juice and it only took her around 30 minutes to do them all. I was so relieved about that but I was still worried about the eating issue and no tube to give her feeds. After about an hour and she still didn't get up I went and checked her temp and sure enough it was 103.1. I contacted Cincinnati and Erika came and got us and took us to the Hospital. We didn't have to wait and the directly admitted her which was good. They started her on Antibiotics and drew blood for cultures which are still not back. She has not had a fever for two days so we got to come home. My fingers are crossed that something doesn't grow and we will hae to go back.


She still is not eating and I keep telling her she is going to have to get a tube if she doesn't. She has pinky promised that she will eat so we came home without a tube.

Thank you so much for all of your prayers and cross your fingers that this was just a tummy virus.