Yesterday was just horrible. Alicia went #2 19 times and this is not exaggerating. Her stools are just like water and it has me very worried. I have called Cincinnati this morning an I am patiently waiting for a call back. Hopefully Dr Davies will know whats going on. I will let everyone know as soon as I find out. I wouldn't even care if we had to go to Cincinnati a little early, I just want to know that she is OK.
ALICIA'S JOURNEY WITH FA
Welcome to our blog where we try to keep family & friends updated on our daughter/granddaughter, Alicia, who is one of the most adorable five year olds ever! She was born with a very rare & aggressive disease, called Fanconi anemia, which causes bone marrow failure, as well as different cancers . She is currently undergoing a bone marrow transplant to try to cure her bone marrow issues. If you'd like to gain a little more background, please visit our first entry HERE.
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