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ALICIA'S JOURNEY WITH FA

Welcome to our blog where we try to keep family & friends updated on our daughter/granddaughter, Alicia, who is one of the most adorable five year olds ever! She was born with a very rare & aggressive disease, called Fanconi anemia, which causes bone marrow failure, as well as different cancers . She is currently undergoing a bone marrow transplant to try to cure her bone marrow issues. If you'd like to gain a little more background, please visit our first entry HERE.



Friday, August 19, 2005

August 19, 2005

Well we are all settled back home here in Kansas. I wish we could of stayed at Camp Sunshine forever!!!

Alicia had a very good time. It took me two days to finally get her to calm down. She is a hand full!!!

I am so glad I finally got to meet alot of new friends. I hope all is going well with every one now that you are back home.

Alicia gets her cbc count next week so I will keep every one updated.

Your Friend
Michelle

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