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ALICIA'S JOURNEY WITH FA

Welcome to our blog where we try to keep family & friends updated on our daughter/granddaughter, Alicia, who is one of the most adorable five year olds ever! She was born with a very rare & aggressive disease, called Fanconi anemia, which causes bone marrow failure, as well as different cancers . She is currently undergoing a bone marrow transplant to try to cure her bone marrow issues. If you'd like to gain a little more background, please visit our first entry HERE.



Tuesday, August 30, 2005

August 2005 Guestbook Entries

Hi Alicia,
I wanted to stop by and tell you
hello and that I love you. Give
grandma a hug for me and I'm
sending hugs to you. Love, Rose

Rose
SC - Tuesday, August 30, 2005 4:50 PM CDT


Michelle,
I am so happy to hear that Alicia enjoyed
camp so much.I love the picture of her she
is such a beautiful little girl..Sending her
a very special angel hug and lots of love and
prayers..

Trish/Angel_Wings
Kingston, TN USA - Sunday, August 28, 2005 4:08 PM CDT


Ailica and Family,
Hi there!! Hope you have a great
weekend!! Thinking and praying
for you!! God Bless!!
Prayers and Hugs,
LeAnn
www.caringbridge.org/ga/annettelee

LeAnn Mooneyham/Angel_Wings/www.caringbridge.org/ga/jcthetractorboy
Baxley, GA United States - Saturday, August 27, 2005 6:48 PM CDT

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Hi Alicia,
I'm thinking of you and hoping you are
having a good day. Love and hugs,
Rose

Rose
SC - Saturday, August 27, 2005 9:56 AM CDT

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Alicia,
I'm so happy to see your new friends here.
I wish I could give you sunshine everyday!
Keeping you all in my prayers. I love you.
Hugs, Rose
http://roseygirl7.tripod.com
prayer_angels

Rose
SC - Wednesday, August 24, 2005 5:21 PM CDT

Hi Michelle, Erica, and Alicia,

We loved meeting two of you at camp!! Alicia you are a doll!! We hope to see you again next year or sooner maybe, whenever we make it to Wichita:-) Hope things are going well with your counts. We'll be checking in often.

Love,
Teresa and Emma

www.caringbridge.com/or/emmarose
Aloha, OR USA - Wednesday, August 24, 2005 5:14 PM CDT

Hey Michelle and Alicia,
I am returning to Australia today....a long flight. We leave soon for the airport. It was SO great to meet you guys.
Alicia, thank you so much for the BIG, HUGE, LONG kisses you gave me while I was on camp. You are so welcoming. Thank you for lending us your shoes while they tried to find Isaac's lost luggage....we will send you shoes back to you eventually!!! HA!! But we really appreciated your hospitality. It was so nice. Well, I will talk to you more when we are back from the USA.
Love Charisse
(FA Adult)
www3.caringbridge.com/oceania/charisse

Charisse Howard-Jones
Adelaide, SA Australia - Wednesday, August 24, 2005 4:41 PM CDT

Keep us posted on the CBC!
You are in my thoughts and prayers!

Kayla - WILL POWER
Charlotte, NC USA - Wednesday, August 24, 2005 9:48 AM CDT

I'm happy that Alicia had so much fun at camp.
She has made many memories. I'm praying for
you all. Love, Rose

Rose
SC - Saturday, August 20, 2005 7:06 AM CDT

It was great meeting you at camp - Alicia is such a littke cutie pie! It made my day when she let me hold her!
I hope guys come back again next year!

Kayla - WILL POWER
- Friday, August 19, 2005 11:34 AM CDT

Hi Alicia,
I hope that you are enjoying yourself.
I'm keeping you in my prayers.
Love, Rose

Rose
SC - Thursday, August 18, 2005 5:00 PM CDT


Hi guys!! Wanted to stop by and let
ya know we are praying for yaw'll!!!
God Bless!!
Prayers and Hugs,
LeAnn

LeAnn Mooneyham/Angel_Wings
Baxley, GA United States - Tuesday, August 16, 2005 8:41 PM CDT

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Thinking of you and hope you are having
a great time at camp. I love you all.
Hugs, Rose

Rose
SC - Friday, August 12, 2005 6:10 PM CDT

Hi Alicia and Michelle,
can't believe I leave tomorrow morning for camp on the plane. I am sure that my son Isaac is going to love playing with you. And I am going to love meeting you all. See you Very, Very soon.
Love Charisse
(FA Adult)
www3.caringbridge.com/oceania/charisse

Charisse Howard-Jones/The Prayer Bears
Adelaide, SA Australia - Wednesday, August 10, 2005 2:51 AM CDT

Hi Michelle, Alicia, and Erika,
I'll take more time and put the
pictures in this weekend that
I know Alicia likes. I just got
home from volleyball practice
and a lot to do. I want you all
to know I'm thinking of you and keeping
you in my prayers. Love and hugs,
Rose

Rose
SC - Tuesday, August 9, 2005 7:21 PM CDT

Hi Alicia
thinking of you and praying for you always

Maria and Sammy Joe

the Liistro Family
Craigieburn ,Melbourne, Vic Australia - Tuesday, August 9, 2005 9:00 AM CDT

Hey Alicia,
Thinking of you as always.
Have a GREAT time at camp.
Hugs
Rose

Rose
SC - Monday, August 8, 2005 8:32 PM CDT

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Have a great weekend. Thinking of you
and keeping you in my prayers.
Hugs,
Rose

Rose
SC - Saturday, August 6, 2005 8:03 AM CDT

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Michelle, It will probably be in the afternoon
when I drop by to sign starting tomorrow. I will
be starting school back tomorrow. I pray that
Alicia is doing okay and having fun. I think
of you all often. Michelle, please pray for
my friend Cody. He is in the hospital and very
sick. He needs prayers and he needs a miracle.
I love you all. Hugs, Rose
http://roseygirl7.tripod.com
prayer_angels

Rose
SC - Wednesday, August 3, 2005 7:12 AM CDT


Hi Michelle and Alicia,
Wanted to top by and check on
you guys!! Hope you have alot
of fun at camp!!! God Bless!!!
Prayers and Hugs,
LeAnn

LeAnn Mooneyham/Angel_Wings
Baxley, GA United States - Tuesday, August 2, 2005 12:31 AM CDT

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The Prayer Bears

Camp is closer than ever before!!!
See you soon!
Blessings and Bear Hugs,

Donna Boggs, Papa Bear’s Site
Coeburn, Va - Tuesday, August 2, 2005 11:32 AM CDT

10 more days till I get to meet you!!! Yeah! I hope you and Wesley have a great time playing together while our brain's get turned to mush at all those conferences. Don't forget to bring a costume for the masquarade party. See you soon.
kristin young
gorham, me usa - Tuesday, August 2, 2005 8:31 AM CDT

Alicia,
I sure hope you are doing ok now, and that your concussion has healed wonderfully. I've saw some posts about you going to camp. I hope you get to go and have a wonderful time. We will be keeping you in our prayers.
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Michelle/Angel_Wings & Bethany
Knoxville, TN - Monday, August 1, 2005 11:38 PM CDT

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Hi Michelle and Alicia,
I know you are busy getting ready for camp.
I want you to know I think of you often and
I'm praying for Alicia. Sending you all hugs.
Love, Rose

Rose
SC - Monday, August 1, 2005 8:06 AM CDT

Friday, August 19, 2005

August 19, 2005

Well we are all settled back home here in Kansas. I wish we could of stayed at Camp Sunshine forever!!!

Alicia had a very good time. It took me two days to finally get her to calm down. She is a hand full!!!

I am so glad I finally got to meet alot of new friends. I hope all is going well with every one now that you are back home.

Alicia gets her cbc count next week so I will keep every one updated.

Your Friend
Michelle