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ALICIA'S JOURNEY WITH FA

Welcome to our blog where we try to keep family & friends updated on our daughter/granddaughter, Alicia, who is one of the most adorable five year olds ever! She was born with a very rare & aggressive disease, called Fanconi anemia, which causes bone marrow failure, as well as different cancers . She is currently undergoing a bone marrow transplant to try to cure her bone marrow issues. If you'd like to gain a little more background, please visit our first entry HERE.



Monday, July 31, 2006

July 2006 Guestbook Entries

hey guys....its auntie sue....just want to add my lil comments...u know how special you guys are to me and how much i love our baby girl....it is so great to see her everyday and see how much she is learning and growing up to be such a big girl.....you know that i am always here for you guys whatever i can do.....hey guys....its auntie sue....just want to add my lil comments...u know how special you guys are to me and how much i love our baby girl....it is so great to see her everyday and see how much she is learning and growing up to be such a big girl.....you know that i am always here for you guys whatever i can do.....
sue hardyway
wichita, ks us - Thursday, July 27, 2006 10:12 PM CDT

It's good to hear how things are going. Glad that things are going about the same with Alicia. I can totally relate to how you feel about little Alicia and trying to stay strong for them but feel like you are about to break inside. It's so hard to watch them go through everything...and to know we're still only at the beginning of it all. They are such special little children (and adults). We hope that the new baby on the way is a bone marrow match for Alicia. What a blessing that would be! Take care and hope all is well with you and your family.


Teresa - www.caringbridge.com/visit/emmarose
Anna, TX USA - Thursday, July 27, 2006 9:44 PM CDT
Hello Michelle and Alicia,
Good luck in Cincinnati, you will be in good hands there. Say hello to Dr. Harris for Johanna and me. Take care....

www.caringbridge.org/fl/joanbender
Joan
Kissimmee, fl usa - Thursday, July 27, 2006 4:16 PM CDT
Photobucket - Video and Image Hosting Always.

PAM STURGILL www.freewebs.com/prayerbears
- Wednesday, July 26, 2006 5:33 PM CDT
Hi Alicia,
My name is Nicole and i got diagnoised with Aplastic Anemia recently!I am almost 18 years old on August 20th!I had health problems since i was 8 years old!I read your journal and it seems like you are doing well!I am here for new friends and support!My platelets are 61,000 and they go up to 75,000 and thats the higher it goes!I am having problems with my red blood cells dropping!I will talk to you later!I wanna stop by to tell you and your family that you are in my thoughts and prayers!Hangon in there and you will get through it!
Take care,
Nicole Fauver
Arlington, WA USA - Friday, July 21, 2006 2:35 PM CDT
Photobucket - Video and Image Hosting
The Prayer Bears


Belle
Columbus, OH - Saturday, July 15, 2006 9:27 PM CDT
Thinking of you Michelle and Alicia...we love you.
Love Charisse and Alan
(FA Adult)
www3.caringbridge.com/oceania/charisse
Charisse Howard-Jones/The Prayer Bears
Adelaide, SA Australia - Wednesday, July 12, 2006 8:30 AM CDT
Photobucket - Video and Image HostingAlicia, Thinking about you today and I wanted you to know you are in my thoughts and prayers,,.Prayers and Bearhugs Love, Marci The Prayer Bears
Marci Connell
Valdosta, GA USA - Monday, July 10, 2006 3:35 PM CDT

Posted by Teresa at 10:48 PM 0 comments  

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Wednesday, July 26, 2006

July 26, 2006

SORRY IT HAS BEEN SO LONG SINCE I UPDATED EVERYONE ON ALICIA.

SHE IS STILL DOING ABOUT THE SAME. WE FINALLY GOT OVER THE PROBLEMS WITH POTTY TRAINING. I AM SOOOO HAPPY!!!!! SHE IS DOING SUCH A GOOD JOB, SHE STILL HAS A COUPLE OF ACCIDENTS HERE AND THERE BUT OVER ALL SHE IS DOING GREAT.

WE ARE GETTING READY FOR OUR TRIP TO CINCINNATTI CHILDRENS. WE ARE LEAVING ON AUGUST 25TH. I AM SO REGRETTING GOING, I HATE TO SEE ALICIA GO THROUGH ALL OF THIS. I WILL KEEP STRONG THOUGH FOR HER, SOMETIMES IT GETS SO STRESSFUL, I BREAK DOWN AND CRY WHEN NO ONE IS AROUND. BUT I KEEP MY FAITH IN GOD AND I KNOW HE WILL GET ME THROUGH IT. IT JUST HURTS SO MUCH TO SEE LITTLE ALICIA GOING THROUGH ALL THE PAIN.

WE DO HAVE SOME GOOD NEWS THOUGH... IM GOING TO BE A GRANDMA AGAIN. ERIKA IS ABOUT 2 MONTHS PREGNANT. WE JUST FOUND OUT LAST WEEK. IM HOPING FOR A BOY, I NEED A GRANDSON ALSO.

WE ARE PRAYING THAT HER BABY WILL BE HEALTHY. ALICIA HAS A DIFFERENT FATHER THAN THIS BABY HAS, ERIKA IS ENGAGED TO A WONDERFUL GUY, I KNOW HE WILL BE AN AWESOME DADDY. WE HAVE SENT SWABS TO NEW YORK TO SEE IF HE CARRIES THE FA GENE, BUT THE ODDS ARE REAL HIGH THAT HE WON'T. SO PLEASE EVERYONE KEEP HER IN YOUR PRAYERS.

I SO HATE THAT I HAD TO MISS CAMP THIS YEAR. I HOPE EVERYONE HAD FUN!! I WILL BE THERE NEXT YEAR THOUGH, I CAN'T WAIT TO SEE EVERYONE AGAIN.

OH YEAH WE HAD ANOTHER DOWN FALL, ALICIAS PEDIATRICIAN SHE HAS HAD SINCE BIRTH HAS DECUDED TO STAY AT HOME AND BE A FULL TIME MOMMY SO WE ARE WITH OUT A DOCTOR FOR ALICIA AT THIS TIME. I AM LOOKING INTO SOME OPTIONS I HAVE BUT IT IS SO HARD FOR ME TO TRUST JUST ANY DOCTOR WITH ALICIA. HOPEFULLY I WILL FIND ONE I TRUST.

I GUESS THATS ALL FOR NOW. I WILL UPDATE LATER

GRANDMA MICHELLE

Posted by Teresa at 10:00 PM 0 comments  

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