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ALICIA'S JOURNEY WITH FA

Welcome to our blog where we try to keep family & friends updated on our daughter/granddaughter, Alicia, who is one of the most adorable five year olds ever! She was born with a very rare & aggressive disease, called Fanconi anemia, which causes bone marrow failure, as well as different cancers . She is currently undergoing a bone marrow transplant to try to cure her bone marrow issues. If you'd like to gain a little more background, please visit our first entry HERE.



Wednesday, July 26, 2006

July 26, 2006

SORRY IT HAS BEEN SO LONG SINCE I UPDATED EVERYONE ON ALICIA.

SHE IS STILL DOING ABOUT THE SAME. WE FINALLY GOT OVER THE PROBLEMS WITH POTTY TRAINING. I AM SOOOO HAPPY!!!!! SHE IS DOING SUCH A GOOD JOB, SHE STILL HAS A COUPLE OF ACCIDENTS HERE AND THERE BUT OVER ALL SHE IS DOING GREAT.

WE ARE GETTING READY FOR OUR TRIP TO CINCINNATTI CHILDRENS. WE ARE LEAVING ON AUGUST 25TH. I AM SO REGRETTING GOING, I HATE TO SEE ALICIA GO THROUGH ALL OF THIS. I WILL KEEP STRONG THOUGH FOR HER, SOMETIMES IT GETS SO STRESSFUL, I BREAK DOWN AND CRY WHEN NO ONE IS AROUND. BUT I KEEP MY FAITH IN GOD AND I KNOW HE WILL GET ME THROUGH IT. IT JUST HURTS SO MUCH TO SEE LITTLE ALICIA GOING THROUGH ALL THE PAIN.

WE DO HAVE SOME GOOD NEWS THOUGH... IM GOING TO BE A GRANDMA AGAIN. ERIKA IS ABOUT 2 MONTHS PREGNANT. WE JUST FOUND OUT LAST WEEK. IM HOPING FOR A BOY, I NEED A GRANDSON ALSO.

WE ARE PRAYING THAT HER BABY WILL BE HEALTHY. ALICIA HAS A DIFFERENT FATHER THAN THIS BABY HAS, ERIKA IS ENGAGED TO A WONDERFUL GUY, I KNOW HE WILL BE AN AWESOME DADDY. WE HAVE SENT SWABS TO NEW YORK TO SEE IF HE CARRIES THE FA GENE, BUT THE ODDS ARE REAL HIGH THAT HE WON'T. SO PLEASE EVERYONE KEEP HER IN YOUR PRAYERS.

I SO HATE THAT I HAD TO MISS CAMP THIS YEAR. I HOPE EVERYONE HAD FUN!! I WILL BE THERE NEXT YEAR THOUGH, I CAN'T WAIT TO SEE EVERYONE AGAIN.

OH YEAH WE HAD ANOTHER DOWN FALL, ALICIAS PEDIATRICIAN SHE HAS HAD SINCE BIRTH HAS DECUDED TO STAY AT HOME AND BE A FULL TIME MOMMY SO WE ARE WITH OUT A DOCTOR FOR ALICIA AT THIS TIME. I AM LOOKING INTO SOME OPTIONS I HAVE BUT IT IS SO HARD FOR ME TO TRUST JUST ANY DOCTOR WITH ALICIA. HOPEFULLY I WILL FIND ONE I TRUST.

I GUESS THATS ALL FOR NOW. I WILL UPDATE LATER

GRANDMA MICHELLE

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