Alicia's Journey with FA: December 2006

Dear Michelle, Alicia, Erika and New Baby,
I know this is a difficult time for you all. I have been thinking about you all so much, knowing your struggles right now. However, I still wanted to say "Happy New Year" because you have beautiful people around you to spend time with. Just know that I am thinking and praying for you. Jesus is with you in the New Year.
Love Charisse
(FA Adult)
www3.caringbridge.com/oceania/charisse
Charisse Howard-Jones/The Prayer Bears
Adelaide, SA Australia - Sunday, December 31, 2006 7:03 PM CST

Here is a prayer Michelle look at this when you get the "prognosis, diagnosis and the outcomes...
God's Angel
by Paul Dammann
God sent to me an angel,
it had a broken wing.
I bent my head and wondered
"How could God do such a thing?"
When I asked the Father
why he sent this child to me,
the answer was forthcoming,
He said " Listen and you'll see."
"My children are all precious,
and none is like the rest.
Each one to me is special
and the least is as the best.
I send each one from Heaven
and I place it in the care
of those who know my mercy,
those with love to spare.
Sometimes I take them back again.
Sometimes I let them stay.
I am never far away.
So if you find an angel
and you don't know what to do,
remember, I am with you,
love is all I ask of you"
Michelle Alicia and Erika you are in my prayers every minute BE STRONG and always know GOD is never far away
Roxanne Hall
- Saturday, December 30, 2006 6:24 PM CST

Dear Michelle,
I know how deeply you are struggling. I know how deeply scary and upsetting this type of situation is. I know how urgent it feels and I know how you don't want to do it. These are all feelings I have struggled with since my rise in blast count and the feelings that run through my head. I am, truly very sorry that this has happened with Alicia and with the baby being born....even that it has happened. It doesn't feel right and it feels unbelievable. I know that sometimes people want to hit people who say that Jesus is in control. Even with my blast count I have had no one to lean on but God. Even then sometimes I feel very cross and tell Him so. Jesus is Great and Mighty and He does understand our pain and He doesn't like to see us in pain. So I am going to pray that His peace and comfort will come to you amazingly through the confusion and fear. Alan and Isaac and I love you guys. We love your whole family! We will be here for you my love. We know how hard this is and we feel very sorry about it. But, Jesus does reign....and He is in control even though we feel so confused and that is what I find comforting even though I don't have a clue why things happen. Will check on you soon.
Love Charisse
(FA Adult)
www3.caringbridge.com/oceania/charisse
Charisse Howard-Jones/The Prayer Bears
Adelaide, SA Australia - Saturday, December 30, 2006 5:54 PM CST

Keeping your family very much in my thoughts & prayers.
Sending love hugs & prayers to you all.
PAM STURGILL www.freewebs.com/prayerbears
- Saturday, December 30, 2006 3:06 PM CST

Hello. I heard about your beautiful little girl from the prayer bears. My son is 8 years old and had a bone marrow transplant on Oct 13th of 2006. Our prayers are with you. May God put his healing hand upon your sweet little one. If you ever have a question from a parent that has been there, my e-mail is mrsbuckii@aol.com.
Our prayers are with you.
Jessica Weekley
carepage:brandenweekley
Jessica Weekley
New Milton, wv usa - Saturday, December 30, 2006 3:03 PM CST

Praying for your family right now.
Jennifer from the prayer bears
Texas - Saturday, December 30, 2006 8:48 AM CST

We are so sorry to hear that Alicias results are not good. We willkeep you all in our thoughts and prayers daily.
Lisa Nash
Englewood, Co USA - Friday, December 29, 2006 12:02 AM CST

I'm so sorry to hear about Alicia's results. I can't imagine how you all must be feeling. We'll keep your family in our prayers.

Love,
The Clifton's
Teresa - http://cliftonclan.blogspot.com
Anna, TX USA - Friday, December 29, 2006 10:17 AM CST

Michelle -

So sorry you got bad news this week! But take heart - the Lord is still with you and He is still in charge! We'll be praying that either Alicia has better results next month or they find a perfect match in the cord blood bank. I know how much you love your precious granddaughter...we'll pray for all of you. Please take heart that transplants these days are much more successful. Wishing you the best in the New Year!

Love,
Nancy
Nancy Ross
- Friday, December 29, 2006 8:07 AM CST

Alicia, Erika and Michelle
I'm sending many prayers to you all. I am going to pass Alicia's name around a couple of friends of mine who will pray too and we will all be sending lots of healing light to you all. God Bless love Gail xx
Gail Richardson
London, England - Friday, December 29, 2006 4:36 AM CST

I will be praying for you daily. I know this is hard, as I have been dealing with John's transplant for a year now, and it can be hard.
Praying for you all,
Judy
Judy Smith
Hohenwald, TN USA - Thursday, December 28, 2006 9:40 PM CST

Praying you all have a happy holiday season filled with laughter, love and an abundance of blessings.
Jennifer from the prayer bears
Texas - Saturday, December 23, 2006 4:04 PM CST

The Prayer Bears

Hope your Holidays are blessed beyond measure!
Blessings and Bear Hugs,

Donna Boggs, Papa Bear’s Site
Coeburn, VA - Tuesday, December 19, 2006 1:03 PM CST

Friday, December 29, 2006 6:42 PM CST

TODAY HAS BEEN THE WORST DAY OF MY ENTIRE LIFE. EVEN WORSE THAN YESTERDAY WHEN DR. WILLIAMS CALLED. MY MIND HAS BEEN GOING A HUNDRED MILE AN HOUR, I KEEP THINKING OF EVERYTHING MY FAMILY IS ABOUT TO GO THROUGH. I AM SO SCARED. IF I CAN JUST MAKE IT THROUGH TODAY I KNOW I CAN PULL MY SELF TOGETHER. I KNOW I HAVE TO BE STRONG FOR ALICIA, I KNOW I AM HER CRUTCH AND IF I CRUMBLE SHE WILL HAVE NO ONE TO LEAN ON. THIS IS JUST ALL SO HARD FOR ME TO TAKE IN, I DIDN'T EXPECT THIS SO SOON.

ERIKA IS HAVING A HARD TIME DEALING WITH THIS ALSO. SHE FEELS SHE HAS TO CHOOSE BETWEEN BOTH OF HER CHILDREN. HER BABY IS DUE ABOUT THE SAME TIME ALICIA WILL BE GOING TO TRANSPLANT PROBABLY AND THEY TOLD ME TODAY THAT THE BABY WOULD NOT BE ALLOWED ON THE TRANSPLANT FLOOR. THEY SAID THEY ARE UNDER LOCK DOWN DURING THE WINTER BECAUSE OF VIRUSES. WE TALK ALOT LAST NIGHT ABOUT IT AND WE BOTH DECIDED IT WOULD BE BEST IF ERIKA SIGNED GUARDIAN SHIP OF ALICIA TO ME DURING THE TRANSPLANT SO I WOULD HAVE THE AUTHORITY TO MAKE ANY DECISIONS ON HER BEHALF. ERIKA IS GOING TO COME EVERY OTHER WEEK AND THE BABY CAN STAY HERE WITH MY SISTER DENISE. HOPEFULLY WE WILL FIND SOME WAY TO AFFORD TO FLY ERIKA SO MUCH.

THANK YOU SO MUCH EVERYONE FOR ALL THE SUPPORT IM GETTING. ( AND A EXTRA THANKS TO KRISSTINA, YOU ARE HELPING ME SO MUCH I TRUELLY APPRICIATE IT)

GRANDMA MICHELLE

Thursday, December 28, 2006 8:45 PM CST

Sorry I haven't updated in so long. We got Alicia's results today from the biopsy she had on December 20th and they weren't good.

I knew when I answered the phone and it was Dr. Williams that it had to be bad. He said they still detected abnormal monosomy seven and that he also got a report from a Pathologist here in Kansas that said her Blast cell count was high and he was having the slides sent to him to confirm it and do another biopsy in a month and if it was the same then she had to go to transplant.

I am so scared. She is my very best friend. I had such high hopes that her results would come back better but they didn't. Dr. Williams said they were going to start right away to search for a donor for Alicia. He did say that they found three possible matches in the blood cord bank.

This is very upsetting to me so I will update after I find out more.

If Alicia has to go to transplant after her biopsy next month that is when her mom Erika is due to have her little brother. This is all so hard.

Grandma Michelle