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ALICIA'S JOURNEY WITH FA

Welcome to our blog where we try to keep family & friends updated on our daughter/granddaughter, Alicia, who is one of the most adorable five year olds ever! She was born with a very rare & aggressive disease, called Fanconi anemia, which causes bone marrow failure, as well as different cancers . She is currently undergoing a bone marrow transplant to try to cure her bone marrow issues. If you'd like to gain a little more background, please visit our first entry HERE.



Sunday, December 31, 2006

December 2006 Guestbook Entries

Dear Michelle, Alicia, Erika and New Baby,
I know this is a difficult time for you all. I have been thinking about you all so much, knowing your struggles right now. However, I still wanted to say "Happy New Year" because you have beautiful people around you to spend time with. Just know that I am thinking and praying for you. Jesus is with you in the New Year.
Love Charisse
(FA Adult)
www3.caringbridge.com/oceania/charisse

Charisse Howard-Jones/The Prayer Bears
Adelaide, SA Australia - Sunday, December 31, 2006 7:03 PM CST


Here is a prayer Michelle look at this when you get the "prognosis, diagnosis and the outcomes...
God's Angel
by Paul Dammann
God sent to me an angel,
it had a broken wing.
I bent my head and wondered
"How could God do such a thing?"
When I asked the Father
why he sent this child to me,
the answer was forthcoming,
He said " Listen and you'll see."
"My children are all precious,
and none is like the rest.
Each one to me is special
and the least is as the best.
I send each one from Heaven
and I place it in the care
of those who know my mercy,
those with love to spare.
Sometimes I take them back again.
Sometimes I let them stay.
I am never far away.
So if you find an angel
and you don't know what to do,
remember, I am with you,
love is all I ask of you"
Michelle Alicia and Erika you are in my prayers every minute BE STRONG and always know GOD is never far away

Roxanne Hall
- Saturday, December 30, 2006 6:24 PM CST

Dear Michelle,
I know how deeply you are struggling. I know how deeply scary and upsetting this type of situation is. I know how urgent it feels and I know how you don't want to do it. These are all feelings I have struggled with since my rise in blast count and the feelings that run through my head. I am, truly very sorry that this has happened with Alicia and with the baby being born....even that it has happened. It doesn't feel right and it feels unbelievable. I know that sometimes people want to hit people who say that Jesus is in control. Even with my blast count I have had no one to lean on but God. Even then sometimes I feel very cross and tell Him so. Jesus is Great and Mighty and He does understand our pain and He doesn't like to see us in pain. So I am going to pray that His peace and comfort will come to you amazingly through the confusion and fear. Alan and Isaac and I love you guys. We love your whole family! We will be here for you my love. We know how hard this is and we feel very sorry about it. But, Jesus does reign....and He is in control even though we feel so confused and that is what I find comforting even though I don't have a clue why things happen. Will check on you soon.
Love Charisse
(FA Adult)
www3.caringbridge.com/oceania/charisse

Charisse Howard-Jones/The Prayer Bears
Adelaide, SA Australia - Saturday, December 30, 2006 5:54 PM CST

Keeping your family very much in my thoughts & prayers.
Sending love hugs & prayers to you all.

PAM STURGILL www.freewebs.com/prayerbears
- Saturday, December 30, 2006 3:06 PM CST

Hello. I heard about your beautiful little girl from the prayer bears. My son is 8 years old and had a bone marrow transplant on Oct 13th of 2006. Our prayers are with you. May God put his healing hand upon your sweet little one. If you ever have a question from a parent that has been there, my e-mail is mrsbuckii@aol.com.
Our prayers are with you.
Jessica Weekley
carepage:brandenweekley

Jessica Weekley
New Milton, wv usa - Saturday, December 30, 2006 3:03 PM CST

Praying for your family right now.
Jennifer from the prayer bears
Texas - Saturday, December 30, 2006 8:48 AM CST

We are so sorry to hear that Alicias results are not good. We willkeep you all in our thoughts and prayers daily.
Lisa Nash
Englewood, Co USA - Friday, December 29, 2006 12:02 AM CST

I'm so sorry to hear about Alicia's results. I can't imagine how you all must be feeling. We'll keep your family in our prayers.

Love,
The Clifton's

Teresa - http://cliftonclan.blogspot.com
Anna, TX USA - Friday, December 29, 2006 10:17 AM CST

Michelle -

So sorry you got bad news this week! But take heart - the Lord is still with you and He is still in charge! We'll be praying that either Alicia has better results next month or they find a perfect match in the cord blood bank. I know how much you love your precious granddaughter...we'll pray for all of you. Please take heart that transplants these days are much more successful. Wishing you the best in the New Year!

Love,
Nancy

Nancy Ross
- Friday, December 29, 2006 8:07 AM CST

Alicia, Erika and Michelle
I'm sending many prayers to you all. I am going to pass Alicia's name around a couple of friends of mine who will pray too and we will all be sending lots of healing light to you all. God Bless love Gail xx

Gail Richardson
London, England - Friday, December 29, 2006 4:36 AM CST

I will be praying for you daily. I know this is hard, as I have been dealing with John's transplant for a year now, and it can be hard.
Praying for you all,
Judy

Judy Smith
Hohenwald, TN USA - Thursday, December 28, 2006 9:40 PM CST

Praying you all have a happy holiday season filled with laughter, love and an abundance of blessings.
Jennifer from the prayer bears
Texas - Saturday, December 23, 2006 4:04 PM CST

Photobucket - Video and Image Hosting
The Prayer Bears

Hope your Holidays are blessed beyond measure!
Blessings and Bear Hugs,

Donna Boggs, Papa Bear’s Site
Coeburn, VA - Tuesday, December 19, 2006 1:03 PM CST

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