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ALICIA'S JOURNEY WITH FA

Welcome to our blog where we try to keep family & friends updated on our daughter/granddaughter, Alicia, who is one of the most adorable five year olds ever! She was born with a very rare & aggressive disease, called Fanconi anemia, which causes bone marrow failure, as well as different cancers . She is currently undergoing a bone marrow transplant to try to cure her bone marrow issues. If you'd like to gain a little more background, please visit our first entry HERE.



Thursday, January 24, 2008

January 24, 2008

Sorry it been almost two months since I have Updated on how Alicia is doing. The Holidays have been very hectic around here.

We go back to Cincinnati the first of March for another Biopsy, and again every three months until transplant. Dr. Davies wants all of the Biopsy's done there and not in Kansas no more. She also has to have Cbc's every month now, she had one done last week and all of her counts stayed about the same, her Wbc and Rbc dropped slightly but not enough to worry Dr. Davies. Her Platelet count is what is worrying everyone, it was at 19,000 last week down from 21,000 the last time.

She is very tired alot lately, anyone that has met Alicia knows how very very very hyper and active she is, now she is laying down alot without even being told to. That has me very concerned.

Alicia's baby brother is getting so big, I put an updated picture in her album for everyone to see. Alicia is very protected of him. She always tells everyone "no touching, he's my baby Anshon" they are so cute together. I wonder how she will react with her new baby brother. YES ITS A BOY. We found out last week that Erika is having another boy, this is the last one, she is getting her tubes tied after this on (thank go), I already told Erika not to even try to bring me all of them at once. Boy is she going to have her hands full!!!

I will update again sooner than two months,I promise. I finally got a computer at home so I have no excuse now.

Mee-ma Michelle

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