In Hospital again

Just a quick update to let everyone know Alicia has been in the hospital since Monday. Her BP is staying very high and they have found issues with her kidneys. The blood is not flowing through an artery in her right kidney. We will have a MRI done in Cincinnati next week.

Please keep some very close friends to me in your prayers, they have lost their child to FA and they need comfort and peace. Anthony Negrin and Sam Mcarthey both lost their fight with FA. They went through transplant the same time as Alicia and are very dear to me!!!!

I will update on Alicia when I find out more info.

Mee-Ma

long waited update

I have had so many calls and text's and letters and now I see e-mails also checking on us, and I am sorry for the time it has taken to update. The truth is I have been avoiding the computer. It seems like every time I turned it on another one of my friends have lost their child and I just didn't want to face that.


Anthony, some one We were very close with, passed away and It has had me very depressed and I am sorry if anyone was left worrying.


Alicia is doing great, as you see from the picture she is sooooo chubby. (she has on her brothers shirt). We will be in Cincinnati on the 26th, 27th and 28th to see Dr Davies and ENT. She is so excited to see everyone.

As for myself I have been in and out of the Hospital Three times since my last update. I built up an infection in the fluid in my abdomen and since have had to have a Picc line put in and give myself my own Anti Biotics. I am still very weak and sometimes scare myself!!!! I have lost 100 pounds since June from being so Ill. I hope to be better soon.


Alicia has spent alot of time with me. The boys have been fighting fevers for two weeks and That is one thing we are hoping to avoid with Alicia. She helps me so much she is getting to be such a big girl.


Well once again thank you for all the prayers and care from everyone.

Michelle