I have had so many calls and text's and letters and now I see e-mails also checking on us, and I am sorry for the time it has taken to update. The truth is I have been avoiding the computer. It seems like every time I turned it on another one of my friends have lost their child and I just didn't want to face that.
Anthony, some one We were very close with, passed away and It has had me very depressed and I am sorry if anyone was left worrying.
Alicia is doing great, as you see from the picture she is sooooo chubby. (she has on her brothers shirt). We will be in Cincinnati on the 26th, 27th and 28th to see Dr Davies and ENT. She is so excited to see everyone.
As for myself I have been in and out of the Hospital Three times since my last update. I built up an infection in the fluid in my abdomen and since have had to have a Picc line put in and give myself my own Anti Biotics. I am still very weak and sometimes scare myself!!!! I have lost 100 pounds since June from being so Ill. I hope to be better soon.
Alicia has spent alot of time with me. The boys have been fighting fevers for two weeks and That is one thing we are hoping to avoid with Alicia. She helps me so much she is getting to be such a big girl.
Well once again thank you for all the prayers and care from everyone.
Michelle
ALICIA'S JOURNEY WITH FA
Welcome to our blog where we try to keep family & friends updated on our daughter/granddaughter, Alicia, who is one of the most adorable five year olds ever! She was born with a very rare & aggressive disease, called Fanconi anemia, which causes bone marrow failure, as well as different cancers . She is currently undergoing a bone marrow transplant to try to cure her bone marrow issues. If you'd like to gain a little more background, please visit our first entry HERE.
Saturday, October 10, 2009
long waited update
Posted by Michelle at 6:27 PM
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9 comments:
Oh, I understand now why you've avoided the computer! From all the emails and messages, you must know how many people care so deeply about you and Alicia...I hope that brings you comfort.
It is good to see "chubby Alicia"...her hair is so cute. I hope all goes well when you go to Cleveland. Are you up for the trip healthwise? I hope that someone can go with you.
100 lbs. lost!! I'm so sorry to hear that you've been hospitalized and now have a pic line to fight infection. Have you begun your chemo yet? I think of you so often and am praying for healing for you.
You are amazing for all you've done for Alicia and for dealing with all you have with your own illness.
Please, please take care of yourself and be good to yourself so that you will get better.
Thank you so much for posting.
Love,
Mary Ann
THANKS FOR THE UPDATE!!!!!!!!!!!!!!!! I do get so very concerned when there's no news!
I always come back to these verses. It never ceases to amaze me that the Holy Ghost Himself prays for us! He's praying for you! There's no greater comfort than that!
Romans 8:26-27 Likewise the Spirit also helpeth our infirmities: for we know not what we should pray for as we ought: but the Spirit itself maketh intercession for us with groanings which cannot be uttered. And he that searcheth the hearts knoweth what is the mind of the Spirit, because he maketh intercession for the saints according to the will of God.
Prayer Bears
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Thanks for the update Michelle. I have been thinking about you all the time. Take care...praying for you. Love, Dianne
No matter what happens, know that the Lord IS working. Praying!
Romans 8:28 And we know that all things work together for good to them that love God, to them who are the called according to his purpose.
Prayer Bears
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The Lord will always be there with you! And I'm here praying!
Romans 8:31-32 What shall we then say to these things? If God be for us, who can be against us? He that spared not his own Son, but delivered him up for us all, how shall he not with him also freely give us all things?
Prayer Bears
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Dear Michelle and ALicia,
Hope you are having a good day. Please update again soon. Dianne
Know that I'm here praying!
Romans 8:33-34 Who shall lay any thing to the charge of God's elect? It is God that justifieth. Who is he that condemneth? It is Christ that died, yea rather, that is risen again, who is even at the right hand of God, who also maketh intercession for us.
Prayer Bears
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You have been on my mind so much lately! I am so glad you posted a new picture of Ms. Thang! She is sooooooo precious! She looks GREAT!! I am worried about you my dear.....please know that you have so much support! We all love you and miss you dearly!
Call when you feel like chatting! Anytime!!!
Continuing to pray in Seattle!
Romans 8:35, 37 Who shall separate us from the love of Christ? shall tribulation, or distress, or persecution, or famine, or nakedness, or peril, or sword? ...Nay, in all these things we are more than conquerors through him that loved us.
Prayer Bears
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