Day +109

Sorry about my update yesterday. As you can probably tell I was very frustrated. But today is a much better day.

WE HAVE A PLAN!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

yesterday after my updated during what was probably my most frustrating moment I e-mailed Dr Davies. She of course called me back and we chatted for a while. She is actually in Eugene OR at a FARF meeting. ( thanks Dr Davies ) I told her how I felt that there was no plan or at least I did not know of it if there was one for as far as us being able to change what needed to be done in working toward us moving to the next part of our Journey. I told her that it was very hard to hear Alicia cry to go home and to see her doing well and have no hope or plan in getting out of here. I told her even if the plan was five months from now that I would be OK with that just as long as I knew that there was a plan and everyone was on the same page. I felt alot better after I talked to her.

Well this morning when I woke up I thought to myself here we go again. I knew that it would be a new doctor on rounds and with the past it felt like we were starting over. So I went to rounds with my guns loaded ready for a fight. As soon as I walked out of the door the first thing that was said by the Doctor was "I heard you are ready to go home " she had a smile one her face as did everyone else that was in rounds. So I put my guns back up and i felt hope for the first ime in a long time again.

The plan is to start switching some IV meds to oral the next few days, to window her TPN and feeds and also to raise the feeds as to how much Alicia can tolerate. She will still be on three IV meds when we leave as well as four infusions a week which will have to be done in the Day Hospital, but our plan is to get out on MONDAY!!!!!!!!!!!!!!!!!!!! Yes that is one week from today and I feel like this time it might be for real!!!!!!!!!!!!!!!!!!! So this week will be quite busy learning the new meds I will have to give her. I know we are both ready this time. Wish us luck!!!!!!!