Day +133

Well it is defiantly not as cold here as it has been in the past couple of days!!!!!!!!! I hope it stays this way at least through tomorrow night for all of the little Trick or Treaters, I hope everyone has a safe and fun Halloween and do a little extra trick or treating for Alicia since she will not be able to this year. The only Trick or Treating Alicia will be doing is at the hospital tomorrow and the RMH. Thanks John, Dianne and Michelle for the Halloween package you sent to Alicia she had so much fun with it!!!!! And thank you George and Anita and everyone from the Church there that sent Alicia the Halloween cards!!!!

She is sitting here now just making a mess of her bed and playing, she loves the Light Bright that Wesley and his Family sent, here is her latest picture.....................

Thanks guys she loves the Light Bright!!!!!!!!!!!!!!!!!!!!!!!!!!

Tuesdays Home Health Visit went really well!!! I really like the nurse "Robin" who comes out to our room every Tuesday and gives Alicia her IVIG. She was done and out of here in 3 hours. She was great and Alicia did very well. Just before Robin arrived Alicia's new therapist"Jim" came. He is Awesome as well. Alicia took to him right away. Usually it takes a minute for Alicia to warm up to you and even more now with everything she has been through but when Jim walked through the door Alicia just started chattering away. The really hit it off. He is really working with Alicia with her Fine Motor skills. He will be here every Tuesday morning as well. Alicia also had her 2nd session with Mrs Ellie her tutor here at the RMH Tuesday. Mrs Ellie said Alicia is very smart, she could put her numbers in order all the way to 50 and probably even higher but that is where they stopped at. Alicia even knew everyone of her shapes and letters and could read and sign everything. Alicia is also having class now with Mrs Ellie on Thursday mornings, here is a few pictures of her in Mrs Ellies room.......................

Thursday morning before her Tutoring session she also had to have a quick visit from another Home Nurse. We found out Wednesday in Day Hospital that Alicia's Electrolytes are all out of whack again so the changed the elements in her nightly fluid to raise her Phosphate and Magnesium and gave her more Calcium and Potassium additives. They wanted to draw blood this morning to do tests (Renal) I will find out the results of those tomorrow in Day Hospital.

Wednesdays visit in Day Hospital was a very long one. The first nurse we had knew nothing and I mean NOTHING. I guess it was her first day there, ( i felt so sorry for her) but of course she had to have the most orneriest one ( Alicia) anyway by 11 am Alicia had only had her pre-meds and no infusion yet which didn't start til afternoon because they had waited to long and had to pre-med her again. We got there at 8:30 am and was there til after 5pm. Thank goodness for the Special visitor who came to see Alicia and got to spend all day with her. I give everyone one guess who that was.....................

Yes THEO!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

Alicia was so happy when Amy with Child life came in with Him!!!!!!!!!!!!!!!!!!! And it helped so much seeming how Alicia even had to get a new NG tube put in Wednesday as well. THANKS AMY!!!!!!!!!!!!!!!!!!!!!!!!!

Tomorrow will be a very long day as well in Day Hospital. I for sure have a meeting with Dr Davies as I got a call today to conform that. Alicia also will have to have her IVIG, Ambison and probably Platelets, which she did not have to get Platelets on Wednesday as we all expected. Her Platelet count only went down to 31,000 from 33,000 from Monday. She has went a week today without needing Platelets!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! Her Wbc although went up even more and her HBG went down so she might need Red Blood tomorrow as well so needless to say we will be having a long day tomorrow. hat is OK though because all of us who had a Transplant together " The Fabulous 6" should all be there and the kids will all be dressed up. I think one or two of our 6 will be missing but I know a lot of us will be there.

Well Alicia is done cooking her Play Dough Pizza so it is time for my dinner ( Thanks a lot Sis, I will save the mess for when you get here )

Only 15 days til I get to see my GRANDSONS!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!