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ALICIA'S JOURNEY WITH FA

Welcome to our blog where we try to keep family & friends updated on our daughter/granddaughter, Alicia, who is one of the most adorable five year olds ever! She was born with a very rare & aggressive disease, called Fanconi anemia, which causes bone marrow failure, as well as different cancers . She is currently undergoing a bone marrow transplant to try to cure her bone marrow issues. If you'd like to gain a little more background, please visit our first entry HERE.



Monday, October 31, 2005

October 2005 Guestbook Entires

Image hosted by Photobucket.comThe Prayer Bearshave a safe and happy halloween
hailee
you are such a little cutie.. thanks for visiting hailee, we love making new friends..
melissa
cavecreek, az usa - Monday, October 31, 2005 4:47 PM CST
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Michelle and Alicia,
Praying and hoping that yaw'll have been able
to move and found a place. Keeping all in prayers
and thoughts. God Bless..
Prayers and Hugs,
LeAnn
ga/annettelee
LeAnn Mooneyham/Angel_Wings/www.caringbridge.org/ga/jcthetractorboy
Baxley, GA United States - Wednesday, October 26, 2005 9:20 AM CDT
Hi Michelle and Alicia....Johanna had her BMT in Cincinnati and just yesterday, at her doctor's appointment here in Fl, she said she missed Cincinnati. The nurses and doctors were very supportive and always indulging her. We were very pleased. I spent 3-1/2 months there and might have some insight into the area...if you need it.
Caringbridge.org/fl/joanbender
Bless you, Joan and Johanna
kissimmee, fl USA - Friday, October 14, 2005 9:38 PM CDT
Checking in on you-
Just wanted you to know that you are in our thougths and prayers.
Bret & Nanette Foster and Family
(Ryan, Nicolaus, Courtney, Kaelynn and Dianna)
www.caringbridge.org/tx/dianna
Nanette Foster
Lewisville, TX USA - Tuesday, October 11, 2005 10:51 AM CDT
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The Prayer Bears
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Donna Boggs, Papa Bear’s Site
Coeburn, Va - Thursday, October 6, 2005 2:05 PM CDT
Hi Michelle and Alicia and Erika,
Glad to hear from you. I hope you
do get moved sounds like it would be
a good thing to do. You are all
in my prayers. Love, Rose
Rose
SC - Wednesday, October 5, 2005 6:24 PM CDT
I just wanted to post a note to your website. My daughter, Erin, is an FA patient that is recovering from a bone marrow transplant she had this past May in Minneapolis, MN. She is 8 years old, and was diagnosed with Fanconi Anemia in September of 2003. We live in the Greater Cincinnati area, and if we can help your family as you navigate the BMT "waters" here -- we would be happy to do so (oh/erinmckee). Best of luck to you, and we will be praying for your family, and your upcoming move to Cincinnati.

-the McKee family
Barbara McKee
Bethel, OH USA` - Monday, October 3, 2005 1:44 PM CDT

Posted by Teresa at 10:41 PM 0 comments  

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Sunday, October 2, 2005

October 2, 2005

Hello to everyone,


Sorry its been so long since I updated everyone on Alicia. Everything is going well with us. Alicia counts are staying the same, we got her CBC counts back last week, her platelets are at 71,000. She's just getting over a cold but besides that she's doing really well.

We are trying to make arrangements to move to Cinncinnatti, Ohio. I want her to be able to get the best medical treatment possible. The Doctors here are wonderful, Dr Reddy, her Pediatrician is a Awesome Doctor, but The team of specialist in Cinncinnatti know so much more about FA. So right now I am trying to figure out a way to afford to make such a big move, I'm a single mother like my daughter Erika and our finances are kinda tight, but my goal right now is to have Alicia close to the Doctors in Cinncinnatti. I know the lord is on our side and everything will work out.

I am sorry again for such the long period between updates, and I will try harder to make them more frequent.

Your friend
Michelle

Posted by Teresa at 9:56 PM 0 comments  

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