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ALICIA'S JOURNEY WITH FA

Welcome to our blog where we try to keep family & friends updated on our daughter/granddaughter, Alicia, who is one of the most adorable five year olds ever! She was born with a very rare & aggressive disease, called Fanconi anemia, which causes bone marrow failure, as well as different cancers . She is currently undergoing a bone marrow transplant to try to cure her bone marrow issues. If you'd like to gain a little more background, please visit our first entry HERE.



Saturday, November 18, 2006

November 18, 2006

TODAY IS ALICIA'S BIRTHDAY!!! SHE TURNED 4 TODAY, SHE IS GETTING TO BE SUCH A "BIG" ("LITTLE") GIRL. WE HAVE SUCH A DAY PLANNED.

WE HAD HER BIRTHDAY PARTY LAST SATURDAY, SHE HAD SO MUCH FUN. WE DECIDED TO HAVE IT EARLY FOR THE FACT THAT ERIKA'S STEP DAUGHTER HAD A BIRTHDAY THE WEEK BEFORE AND THEY HAVE THE CHILDREN EVERY OTHER WEEKEND AND WE WANTED TO MAKE SURE THEY COULD BE THERE ALSO SO ALICIA GETS TO HAVE TWO BIRTHDAYS. WE HAD HER PARTY LAST WEEKEND AT PUMP IT UP. THATS A PLACE THAT HAS BLOW UP SLIDES, A BLOW UP BOXING RING AND A COUPLE OF OTHERS. THERE WAS OVER 25 KIDS AND OVER 60 PEOPLE IN ALL THAT CAME, I THINK THE ADULTS HAD JUST AS MUCH FUN AS ALICIA DID. I WAS SO GLAD KRISSTINA AND JACY GOT TO COME. (THANK YOU KRISSTINA SO MUCH)

HER BIOPSY IS SCHEDULED FOR THE FIRST WEEK IN DECEMBER, I PRAY EVERY DAY THAT IT COMES OUT DIFFERENT THAN HER LAST ONE. I WILL LET EVERYONE KNOW HOW IT TURNS OUT.

WE HAD A LITTLE SCARE A COUPLE OF WEEKS AGO, ALICIA WOKE UP ON SUNDAY MORNING WITH A TERRIBLE TEMPETURE, WE TOOK HER TO THE EMERGENCY ROOM AND HER TEMP WAS ALREADY AT 102.5 THEY STARTED IV'S AND DID CBC'S AND TOLD ME SHE WAS GOING TO BE ADMITTED. SHE WAS SO SICK!!! THEN AMAZINGLY AFTER WE WERE IN THE EMERGENCY ROOM A COUPLE OF HOURS AND THEY WERE GETTING READY TO MOVE HER TO A ROOM SHE SNAPPED OUT OF IT AND WAS FEELING AND ACTING LIKE HER LITTLE NORMAL SELF. SO THEY GAVE HER SOME ANTIBIOTICS AND LET US GO HOME AND SHE HAS BEEN FINE EVERY SINCE.

WE ALSO GOT SOME GREAT NEWS!!! ERIKA IS HAVING A BOY!!!! SHE AND ANSHON WANTED A BOY SO BAD AND THEY GOT THEIR WISH SO NOW I'M GOING TO HAVE A GRANDSON. THEY DID A SONOGRAM AND COUNTED FIVE FINGERS ON EACH HAND!!!! ANSHON IS STILL BEING TESTED TO MAKE SURE HE DON'T CARRY THE GENE BUT I FEEL HE IS GOING TO BE JUST FINE. I TRUELY BELIEVE THE LORD IS WATCHING OVER ALICIA, AND MAYBE JUST MAYBE LITTLE ANSHON (THATS WHAT HIS NAME IS GOING TO BE)MIGHT BE A MATCH FOR ALICIA, I PRAY THAT HE IS.

I WILL UPDATE WHEN WE GET ALICIAS BIOPSY RESULTS.


GRANDMA MICHELLE (X'S 2)

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