HELLO EVERYONE AND I AM SO SORRY ABOUT NOT UPDATING SOONER. ALICIA AND I ARE FINALLY DOING A LITTLE BETTER. I AM STILL HAVE TERRIBLE PAINS IN MY SIDE BUT THE DRAIN LINE THAT WAS INSERTED IN MY SIDE TO DRAIN ANY FLUID BUILD UP WAS REMOVED LAST THURSDAY. I AM HOPING I AM NOT BUILDING UP FLUID AGAIN AND WE WOULD HAVE TO START ALL OVER, I HAVE A CT SCAN ON MONDAY TO CONFIRM THAT. I ALSO SEEN THE CANCER DOCTOR HERE I KANSAS AND I LIKE HIM A LOT. HE IS COMMUNICATING WELL WITH DR RICHARDS IN CINCINNATI. I HAVE ANTHER APPT WITH HIM AFTER THE CT. THEN ITS ON TO THE LIVER AND KIDNEY SPECIALIST FROM THERE.
ALICIA HAS A HORRIBLE COUGH RIGHT NOW. SHE SEEN HER DOC HERE YESTERDAY AND THEY TESTED HER FOR THE SWINE FLU AND OTHER THINGS BUT ALL TESTS WERE NEGATIVE!!!!!!!!!!!!!! WE HAVE BEEN SPENDING A LOT MORE TIME TOGETHER NOW THAT I AM FEELING A LITTLE BETTER. SHE IS RIGHT HERE WITH ME NOW, BOY I MISSED HER SO MUCH WHEN ALL OF THIS WAS HAPPENING!!!!!!!!!!!!
WE ALSO MOVED IN THE TIME I HAVE NOT UPDATED. MY LEASE WAS UP IN THE APARTMENT AND I FOUND SOMETHING A LITTLE CHEAPER AND WITH ME NOT WORKING I WILL TAKE ANYTHING CHEAPER.
ONCE AGAIN I AM SO SORRY FOR NOT UPDATING. I REALIZE THERE ARE MANY PEOPLE WHO CARE AND WORRY ABOUT US AND I AM SORRY. I WANT TO SAY A SPECIAL THANKS TO DIANE FOR THE CARD YOU SENT.... IT MADE MY DAY!!!!!!!!!!!!
MICHELLE
ALICIA'S JOURNEY WITH FA
Welcome to our blog where we try to keep family & friends updated on our daughter/granddaughter, Alicia, who is one of the most adorable five year olds ever! She was born with a very rare & aggressive disease, called Fanconi anemia, which causes bone marrow failure, as well as different cancers . She is currently undergoing a bone marrow transplant to try to cure her bone marrow issues. If you'd like to gain a little more background, please visit our first entry HERE.
Wednesday, September 16, 2009
SORRY!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
Posted by Michelle at 1:25 PM
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20 comments:
Glad to hear you and Alicia are hanging in there! Wish you were both much better tho' :( We're still praying for you both and miss you a lot!! Tell Alicia her friend Karly says HI!! Hugs to you both...
Nancy Ross
www.caringbridge.com/ca/karlyross
Glad to read the update. We have been worried about you and Alicia. Shannon is still getting over a cough and they tested her for swine as well. I hope Alicia feels better soon/
Jennifer and Shannon (FA-A) Gough
Hello Michelle,
it is wonderful to hear from you. We have continued to pray for you and Alicia at each prayer meeting on Thursday nights. I am so glad you are both doing better. Love you lots and praying that things will continue to improve.
Love Charisse
THANKS FOR THE UPDATE!!!!!!!!!!!!!!!!!! Been going nuts here not knowing what was going on! Praying as always!
Psalms 116:1-5 I love the LORD, because he hath heard my voice and my supplications. Because he hath inclined his ear unto me, therefore will I call upon him as long as I live. The sorrows of death compassed me, and the pains of hell gat hold upon me: I found trouble and sorrow. Then called I upon the name of the LORD; O LORD, I beseech thee, deliver my soul. Gracious is the LORD, and righteous; yea, our God is merciful.
Prayer Bears
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Praying hard right now!
Psalms 116:6-9 The LORD preserveth the simple: I was brought low, and he helped me. Return unto thy rest, O my soul; for the LORD hath dealt bountifully with thee. For thou hast delivered my soul from death, mine eyes from tears, and my feet from falling. I will walk before the LORD in the land of the living.
Prayer Bears
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Hope you are having a good day!! Love, Dianne
Only the Lord can give the strength needed for whatever lies ahead. Praying!
2 Corinthians 12:9-10 And he said unto me, My grace is sufficient for thee: for my strength is made perfect in weakness. Most gladly therefore will I rather glory in my infirmities, that the power of Christ may rest upon me. Therefore I take pleasure in infirmities, in reproaches, in necessities, in persecutions, in distresses for Christ's sake: for when I am weak, then am I strong.
Prayer Bears
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Continuing to pray as always!
Psalms 86:1-3 Bow down thine ear, O LORD, hear me: for I am poor and needy. Preserve my soul; for I am holy: O thou my God, save thy servant that trusteth in thee. Be merciful unto me, O Lord: for I cry unto thee daily.
Prayer Bears
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Stopping by to let you know I'm still here praying!
Psalms 16:7-8 I will bless the LORD, who hath given me counsel: my reins also instruct me in the night seasons. I have set the LORD always before me: because he is at my right hand, I shall not be moved.
Prayer Bears
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Praying!
Psalms 50:15 And call upon me in the day of trouble: I will deliver thee, and thou shalt glorify me.
Prayer Bears
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I don't think there's any greater comfort than knowing that the Lord Himself is holding your family up! Always praying!
Psalms 18:35 Thou hast also given me the shield of thy salvation: and thy right hand hath holden me up, and thy gentleness hath made me great.
Prayer Bears
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Praying right now!
Psalms 37:23-24 The steps of a good man are ordered by the LORD: and he delighteth in his way. Though he fall, he shall not be utterly cast down: for the LORD upholdeth him with his hand.
Prayer Bears
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Continuing to pray!
Psalms 37:39-40 But the salvation of the righteous is of the LORD: he is their strength in the time of trouble. And the LORD shall help them, and deliver them: he shall deliver them from the wicked, and save them, because they trust in him.
Prayer Bears
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This was my Daily Bible Verse today. Still here praying!
Jesus said unto her, I am the resurrection, and the life: he that believeth in me, though he were dead, yet shall he live: And whosoever liveth and believeth in me shall never die. Believest thou this?
Prayer Bears
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Continuing to lift up prayers!
Psalms 94:17-19 Unless the LORD had been my help, my soul had almost dwelt in silence. When I said, My foot slippeth; thy mercy, O LORD, held me up. In the multitude of my thoughts within me thy comforts delight my soul.
Prayer Bears
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Know that I'm still here praying!
Psalms 40:1-4 I waited patiently for the LORD; and he inclined unto me, and heard my cry. He brought me up also out of an horrible pit, out of the miry clay, and set my feet upon a rock, and established my goings. And he hath put a new song in my mouth, even praise unto our God: many shall see it, and fear, and shall trust in the LORD. Blessed is that man that maketh the LORD his trust, and respecteth not the proud, nor such as turn aside to lies.
Prayer Bears
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Stopping by to let you know I'm still praying!
Psalms 55:16-18 As for me, I will call upon God; and the LORD shall save me. Evening, and morning, and at noon, will I pray, and cry aloud: and he shall hear my voice. He hath delivered my soul in peace from the battle that was against me: for there were many with me.
Prayer Bears
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It's a privilege to be able to pray for you!
Revelation 1:5-6 And from Jesus Christ, who is the faithful witness, and the first begotten of the dead, and the prince of the kings of the earth. Unto him that loved us, and washed us from our sins in his own blood, And hath made us kings and priests unto God and his Father; to him be glory and dominion for ever and ever. Amen.
Prayer Bears
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These are such comforting words that paint such an amazing picture. Praying!
Isaiah 40:11 He shall feed his flock like a shepherd: he shall gather the lambs with his arm, and carry them in his bosom, and shall gently lead those that are with young.
Prayer Bears
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This is such a wonderful promise. If Jesus wasn't who He said He was, He would have told us. But He IS and His promises are true! Praying right now!
John 14:1-3 Let not your heart be troubled: ye believe in God, believe also in me. In my Father's house are many mansions: if it were not so, I would have told you. I go to prepare a place for you. And if I go and prepare a place for you, I will come again, and receive you unto myself; that where I am, there ye may be also.
Prayer Bears
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