Results from Cincinnati

Mommy Daddy, Dominic ( Anshons oldest son ) and Alicia

Alicia and Dazzsha ( anshons youngest daughter )

There really is not much change. Alicia's GVHD in her mouth is still horrible. I am very concerned, it has been there several months now and I have not seen much improvement. She is still on the same amount of Steroids, Dr Davies said it will be a while before she starts any weins. She also got a Bolus of Steroids while we were there but it didn't seem to help either. Dr Davies said as long as she is eating and drinking then it will take a while to get her mouth back to normal. The eating issue is no problem though, Alicia eats non stop all day it seems. I did have a meeting with a Dietitian, Amy, and she let me know the best way to keep Alicia away from sugar and carbs because of her high Glucose.

One question I did ask was how long would it be until we didn't have to come every month and the answer to that was we would have to come every month for at least the next six months, she also said that Alicia would not be starting school this fall but she did say we will be able to go to Camp Sunshine!!!!!!!!!!!!!!!!!!!!!!!!!!!! I was so happy to hear that. She said everyone there is a lot more cautious. We are sooooo excited. Denise and her daughter Cassie are going with us. Denise has always been such a huge support for us and her and Alicia are very close so I am glad she will be coming with us!!!!!!!!!!!!!!!!!

Our trip home was way more smoother than the way there. The fog was pretty bad but we made it sage