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ALICIA'S JOURNEY WITH FA

Welcome to our blog where we try to keep family & friends updated on our daughter/granddaughter, Alicia, who is one of the most adorable five year olds ever! She was born with a very rare & aggressive disease, called Fanconi anemia, which causes bone marrow failure, as well as different cancers . She is currently undergoing a bone marrow transplant to try to cure her bone marrow issues. If you'd like to gain a little more background, please visit our first entry HERE.



Tuesday, January 12, 2010

Very determined FA Mee-Ma

This has been a day I am glad is over. I have decided that FA does have some benefits, it got us out of a speeding ticket today. Although I would rather pay a million tickets than Alicia have FA.

It started this morning, I am sure since I update so often that everyone knows our trip to Cincinnati got canceled at the last minute last week and was reset for Today. LOL surely I updated. Anyway Alicia and I woke up late to start our day of traveling off, my dad arrived 30 minutes early also to take us to the airport so that even made us rush around a lot this morning.

We got to the airport with plenty of time to spare, but the thick fog outside had me worried that the flight would be cancelled again. We got to the airport and the receptionist was checking the progress of the plane and it showed they had landed 120 miles east of our home town due to ice pellets in the fog at the altitude they needed to fly. To make matters worse they could not see the runway to land due to the fog. The pilot said he would wait an hour and let the fog diminish and try to land in Wichita again. Well he tried again only to circle in the air right above me but had to return to the airport because he still couldn't land. So my dad, Alicia and I loaded the car back up and we headed east for a two hour road trip to get to the plane. DETERMINATION!!!!!!!!!!!!!! After we were on the road for about an hour I heard sirens and turned around and a highway patrolman was pulling my dad over. He told my dad he was doing 81 in a 65. Once again the Determination came out of me. I started talking my dads way out of a ticket and let him know I was trying to get my granddaughter to a medical flight in Parsons Ks. Alicia's charm came out and he told my dad to slow down and he let us leave. Finally in the air we landed in St Louis as always to refuel and then more of my bad luck came. We were told we would have to stay in St Louis over night and we couldn't fly to Cincinnati til in the morning GREAT!!!!!! They loaned me a truck and off to the comfort inn we went. So we are stuck in St Louis til the morning. I just want to go to bed and wake up tomorrow!!!!!!!!!!!!! I will update about the trip if we ever make it there.


Mee-Ma

5 comments:

Anonymous said...

You'll get there tomorrow! I know you'll make it!
Christ went through all this for us, that we might have hope! Praying!
Isaiah 53:7-10: He was oppressed, and he was afflicted, yet he opened not his mouth: he is brought as a lamb to the slaughter, and as a sheep before her shearers is dumb, so he openeth not his mouth. He was taken from prison and from judgment: and who shall declare his generation? for he was cut off out of the land of the living: for the transgression of my people was he stricken. And he made his grave with the wicked, and with the rich in his death; because he had done no violence, neither was any deceit in his mouth. Yet it pleased the LORD to bruise him; he hath put him to grief: when thou shalt make his soul an offering for sin, he shall see his seed, he shall prolong his days, and the pleasure of the LORD shall prosper in his hand.
Prayer Bears
My email address

Mary Ann Gormley said...

You, Michelle, are one determined Mee-Ma! I couldn't have imagined if I tried, all things that could happen to stall your journey to Cinci! If I read it in a book, I would've thought that the author was exaggerating!
But I also couldn't help but smile as you described how you changed directions and went to where the plane was waiting for you; how you handled things with the policeman that stopped your dad (I'm surprised he didn't give you an escort with sirens blaring); how you managed to get a truck to get you to a place that you could stay the night; and all the things in-between! You are like a Lioness protecting her cub (young Alicia). But that shouldn't surprise anyone who reads your posting because you've always been a determined and nothing-will-stop-me Grandma!
I hope that you all get the rest you need and will arrive in Cinci tomorrow.
Will be praying for a safe journey and very good test results when you get there.
Oh, by the way, the pilot of your plane also was super trying so hard to get to you all.
Take care, rest, and know that you are loved and admired very much,
Mary Ann

Anonymous said...

WELL?!!!!!!!!!!!!!!!! Did you make it?

Anonymous said...

Stopping by to let you know I'm still praying!
Psalms 39:12-13 Hear my prayer, O LORD, and give ear unto my cry; hold not thy peace at my tears: for I am a stranger with thee, and a sojourner, as all my fathers were. O spare me, that I may recover strength, before I go hence, and be no more.
Prayer Bears
My email address

Anonymous said...

Praying right now!
Psalm 40:1-4a: I waited patiently for the LORD; and he inclined unto me, and heard my cry. He brought me up also out of an horrible pit, out of the miry clay, and set my feet upon a rock, and established my goings. And he hath put a new song in my mouth, even praise unto our God: many shall see it, and fear, and shall trust in the LORD. Blessed is that man that maketh the LORD his trust,
Prayer Bears
My email address