Hurry up and wait..............

Still no answers on what is causing all of this......... Echolia has showed up in her urine but not in cultures yet.... Kansas has not identified what organisms are growing and the cultures here are still neg. What ever it is or was the antibiotics must be doing their job. She is still not eating or drinking and she is sleeping alot. Stools are still pure water, yesterday she didn't make it to the bathroom and pooped on the floor like a puppy. My nails have encountered so much poop in the last 5 days,,,  I don't do well with poop and Alicia thinks it is so funny.

its so hard to believe she will be 8 years old in 4 days. time is going so fast i wish it would slow down so we can be together longer.

mommy and daddy Alicia misses you so much. please kiss my boys for me and tell them every day that mee-ma loves them.

Michelle

quick update

Looks like we will be in Cincinnati but not how it was planned. About 3 am this morning Alicia was taken by ambulance to our hospital here at home. Her fever was at 104.7 and she starting seizing. An air ambulance from cincy is on its way now to transport her. Her bands are at 56% which means she is trying to fight an infection. Her pic line was pushed all the way in to her right side of her heart. That's how infection started. She will have to spend her birthday in the hospital which is a week from tomorrow. I will update more from Cincinnati. Mee-ma

Almost "8"

I can not believe that my baby girl is almost "8" years old... there were so many times I doubted that she would make it this far but I proven wrong. God is good!!!!!! I know it has been a long time since I updated, we lost a little boy named Nicholas from FA and I have been kinda depressed. His family is very dear to me.

2 weeks and she will be "8".  We leave for Cincinnati next week to see Doc Davies and I so hope we make it back home before her Birthday. We are set to come back on the 15th and her Birthday is the 18th... so close.

She is doing very good at this point. We are on a roll and have not been admitted in a month. (knock on wood) She is still on every med and has not been weened off any. She is still getting Chemo (Rituximab) every week and fluids every night and High Steroids and Bacterium and Antibiotics and Seizure med and Tacro and Blood pressure med. My kitchen looks like an actual Pharmacy. 

She was so cute on Halloween. She was a little witch. I will post pictures as soon as I get to Cincy and Tina helps me. (love ya girl).

Shel